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Complex Cyst
I was just diagnosed with a 4.5 cm by 4.3 cm renal cyst on my right kidney. We do not know the category yet, but I do go in Wednesday for a Contrast CT, and meet with the urologist after that. I am quite terrified and panicked, and I am trying to understand what this means. I have looked at the different categories, and I…
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VOTRIENT
Stage 4 RCC -- just started a new drug, "Votrient" --- anyone out there familiar with this medication ?? Please advise - and thanks.
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Chemotherapy experiences
I am due to have chemotherapy next week Cisplatin and Gemcitabine. Would like to hear of others experiences with these drugs as I am not sure of what to expect.
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phase III sunitinib study for stage 3 kidney cancers - any experience?
Has anybody had experience with the clinical trial for sunitinib and sorefaneb? What was your staging and what helped you decide to join or not join the study? The side effects from the drugs seem to be very severe and these are possibly very toxic to the body. I was staged with pT3a tumor because my small kidney cancer…
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Hernia after Surgery
I had a partial Nephrectomy back in Dec. 2009 since then I have had a bulge(swelling)on my right side where the surgery was done. At first I thought it was normal part of the process. Today I saw my Urologist and he said it was a Hernia. He explained although not common, because of the loose muscle due to the surgery it…
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Kidney Cancer Advice
My husband came down with a bad stomach bug last week which we found out was Salmanella, we believe from the egg recall that is in the news. Anyway, he was hospitalized for 4 days with it, but the really bad news is that when he was in the ER they did a CT scan of his abdomen and found a tumor on his kidney. It was…
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Bosniak 3 confusion
Hi everyone, I have recently been diagnosed with a 5cm tumour on my left kidney, classified as a Bosniak 2-3. Everything I've read so far suggests that this in an "indeterminate" lesion but my specialist has referred me for a radical lap nephrectomy. He says that partials are difficult to do- I will be operated on by a…
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3.2 Solid Mass on kidney was benign Leiomyoma
I have been told that it is rare but after going through the fright of incidentally finding out that I had a 3.2 solid mass on my left kidney and having a partial nephrectomy I was told in the recovery room that it was BENIGN ! It was a leiomyoma on my kidney. Unbelievable...! Just wanted to share so that people know that…
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Please Help
Does anyone have or know of anyone with Transitional Cell Carcinoma,I was recently diagnosed with TCC of the kidney with spread to neck lymph nodes.I had a nephrectomy and one node was removed,the others are still very small.I really need some information to stay positive.
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Transitional Cell Carcinoma
Hi everyone,Iam desperately seeking advice as I have no one to turn to who understands our problem.Ifeel as though I have been on a roller coaster ride the past six weeks. I will try and make my story short. Seven weeks ago I had a nephrectomy for kidney cancer as well as a neck lymph node removal.I was first told that the…
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35 year old recovering from nephreureterectomy have questions
I am a 35 year old male that is now 2 weeks into recovery from nephreureterectomy. It was thought that I had TCC from the scope that the urologist took of my kidney, but they have analyzed my tumor and told me that I am the 8th case of primary thyroid-like follicular cancer of the kidney. There is one case study on this…
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Natural fertility options - Wilms Tumour survivor 35
Hi, I'm a wilms tumour survivor from aged 4, now 35. Previously I was on synthetic hormone replacement with irregular cycles then if I forgot to take them would experience menopausal symptons. For the last year I have been on BHT creams, which is the natural alternative and my body is starting to repair itself, and…
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Not sure and scared to death
I went to hospital on 8/5 with what I thought was a kidney stone. Classic symptoms: flank pain, foul smelling urine etc.. Blood and urine showed small UTI and CT was done. Some calicifications on right kindey and was told a cyst on the left. Got a call 8/6 from my husband's urologist and was told it was a " large probale…