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combination of drugs
There is a fairly good chance that my husband will be put on avastin and interferon. Am I right to think that this will increase his chances of getting side effects if, for instance, if both drugs list a particular side effect. If anyone has been on this combination or can speak to this situation, I'd be grateful
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Clinical Trial: Sutent/Nexavar/Placebo. Anyone on this trial?
I was diagnosed with stage 3a kidney cancer. Had radical right nephrectomy on 7/2/09. Oncologist says I need to be in a clinical trial. I got two other opinions and both said the same thing. Since the tumor had come out of the capsule a little bit, my risk of recurrence is higher. Has anyone else taken part in the clinical…
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Good News on most recent CT
I really can relate to all the fears, problems, etc. that you all are going thru. But just have to share that my CT came back OK. After having the initial surgery in 2006 and mets recurrences in 07 and 08, plus some really questionable CT's this past winter, I was ecstatic to get a clean report this week. Altho I'm used to…
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recently diagnosed with renal kidney cancer
I am terrified of the word cancer. Mine was accidentally found and now have had biopsey to find out it is renal cell. Now I have to wait till Nov 12 for surgery. The tumor is about 2 inches and I had no symptons. I also have fibromyalgia so my whole back always hurts. I feel like I've been handed a death sentence. I don't…
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Questions
I am 64 years old and have just been diagnosed with Kidney Cancer. My Tumor measures 2cm, I have no health insurance, but being a veteran the VA provides me my medical needs. I was scheduled for surgery (Partial nephrectomy) but the surgery had to be put off, as my blood pressure was too high. They have rescheduled my…
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Anyone tried cryoablation or RF ablation?
I have just been diagnosed with a 2cm renal mass suspicious of RCC. Both of the doctors I have talked to are recommending ablation. Has anyone had either procedure done or have any information.
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Accidentally found 2cm RCC approx 3 wks ago - scared and have alot of questions
I am a 38 year old female with two small children. I was having difficulty urinating about 3 weeks ago. I was sent to have an abdomen ultrasound by my primary care doc. They found gallstones and what looked to be a renal mass. So she sent me back for an MRI with and without contrast. They found a 2 x 1.8 cm mass suspicious…
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Awaiting Open Partial Nephrectomy
New here. I am having an open partial nephrectomy on my left kidney on October 1st. I haven't received an actual diagnosis yet. As I'm reading through so many of these posts it seems as though many people already know the stage, etc prior to surgery. Urologist told me that 90% of the time, the type of tumor I have is…
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Recurrance , 3 years clear, new spot
had stage 3Tb in May 2006, 10cm tumor removed along with my kidney and adrenal gland. then on Nexavar for a year. that was so much fun. have been clear for 3 years. then on my recent MRI, they found a 2cm spot on my right kidney. just had a cryo-ablation procedure, walked in, walked out the end of the day. i'm told this is…
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Did anyone here get a biopsy before surgery?
My doctor said that getting a biopsy of the tumor on my kidney to make sure it is malignant is risky because it could actually do more harm to me. He said the normal treatment is to just go ahead with the kidney removal. I was wondering if people here heard similar advice and did anyone go ahead and get the biopsy anyway?…
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Other forums like this?
This is a very informative forum but I was just wondering if anyone can suggest some others? I haven't had much luck finding many from Google searches. I just find places like this with comments from real world kidney cancer survivors very supportive and helpful. If you know of any other similar forums, please share.
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Question about translocation renal cell carcinoma
Are there any recent, effective treatments for translocation renal cell carcinoma? a friend asked me on my website. I know it's rare, I have never looked into this type, anyone can help?
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TF+
As a newly diagnosed and post surgical patient I was told to take TF+ (4life transfer factor plus) by another poster. I thought I would do some of my own research but also start a new thread here to see if others have taken it and what their experience has been? Can anyone provide some insight or thoughts of TF+? Thanks so…
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New Patient with Questions - Help Please
Hello. I am 39 and just had a partial nephrectomy on my left kidney last week. I had a 2.2 centimeter clear cell tumor. The surgery was done lap and I am slowly recovering. I wanted to ask some questions and thank anyone in advance for some help or insights. First, my surgeon said that removal of the tumor is the only…
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How many "second opinions" did you get?
I was wondering how many "second opinions" people here got before finally deciding on their treatment. So far I've seen two doctors and am seeing a third next week. Is it typical to see three or more doctors? Did your insurance pay for all these visits? On a related question, do you tell the doctors who else you've seen?
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DaVinci Surgery: who has had it?
I was wondering how many people here have had the DaVinci robotic surgery and if so how did it go? Where did you have it done? Were they able to just remove the tumor or did the whole kidney need to come out? I'm having trouble finding a doctor who will use the DaVinci on me. So far two have said it would be overkill in my…
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hair dye and diet soda
Hello, After my nephrectomy this summer I decided I needed to make some changes in order to strenghten my chances of avoiding a recurrence. I didn't have the risk factors for kidney cancer that are typically listed, but I have been trying to drink more water and eat more vegetables and things like that. I also decided it…
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Kidney cancer is suposed to be curable
I'm shaken, I'm confused. My mom was diagnosed with Kidney Cancer April 7th 2009, my birthday. OK, it's kidney cancer....research shows this is a very curable disease. Remove the affected Kidney, things get better...she will be a cancer survivor right? No. It's not the case. She has stage IV rare aggresive chromophobe…
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Avoiding kidney removal: who should I see?
A recent catscan turned up a 4.9 cm tumor on my right kidney. I've seen two urologist surgeons who both want to remove the right kidney completely. I read an article on WebMD about a study done in 2008 that showed that most surgeons prescribe kidney removal because its easier than just removing the tumor. So how can I find…
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Freezing your cancer tumor: anyone do it?
Hello everyone. I am brand new here... recently diagnosed with a tumor on my right kidney. Will probably do the surgery in a few weeks but am doing tons of research first on the internet to learn more about my condition. One thing I read about was the idea of freezing your tumor and/or kidney after removal so that they…
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Swollen ankles, feet
Hi ~ I've been on once/week Torisel since March, 2009. Suddenly, within the last several weeks, my feet and ankles have swollen incredibly. I can't fit into most of my shoes. I bought compression knee-hose at the drug-store, have been taking 20mg of Lasix every other day, and have just about depleted my salty snack intake…