I had a pet scan on the 8th June which showed a spot on one of my lungs. My oncologist ordered a ct scan for the 17th June so a "work up could be performed" . The spot that was on the pet scan had disappeared on the ct scan.........but the ct scan showed there was another spot beneath the original that was 4.9 mils . The…
dysphagia swallowing problems following NPC
Hi from uk. Have not caught up with this board for years. plagued by swallowing problems since treatment 20 years ago. Eating has never been the same and cannot eat lumpy foods at all well without choking .does anyone else find it has not gone back to near normal?
Ear pain after tongue biopsy?
Hello. I had a tongue biopsy a little over a week ago. I still have a fair amount of pain and fullness in my ear (same side as biopsy). I wake up at night with a stabbing pain in my ear. During the day, it's mostly a dull ache right next to my ear, where my jaw starts. The oral surgeon suggests I go back to a soft diet and…
Looking for advice about radiation tx
49 yo female/non smoker. Diagnosed with squamous cell carcinoma on my tongue. It was caught early, was a small spot on my tongue and was anticipated that surgery (with modified neck dissection) would be the end of it. Blessedly I made it thru the surgery with very few issues and am healing well. Unfortunately the neck…
Hi, my name is Brian. I'm 45 and was just diagnosed with cancer last week. I had a small lump in my neck and they found "fragments of squamous cell carcinoma." The ENT doctor informed me this is not the source...I have a PET scan Thursday. To say I'm scared, anxious and nervous is an understatement! I don't smoke or drink…
HPV16 Symptoms! Not Cancer Symptoms! past or present?
I was P16+ T1 left tonsil, I had TORS radical tonsillectomy and selective level 4 neck, 44 nodes all clear, No rads No chemo. I believe that I could feel HPV16 flaring up causing tissue change a year before I found a bump on my tonsil. It first started a year before finding the tumor with a significant episode of extreme…
Wow! Thought I was in the clear! Three weeks from my fourth year NED report! Now I have something else to deal with! Osteoradionecrosis! Quite the mouth full, literally! I have options of , hyperbaric chamber and surgery to do skin graphs, or chamber alone, or try meds to help encourage blood flow.. anyone out there have…
Still loosing weight after peg removal
G'day im new here and have been eating by mouth for about a month. The problem I'm still loosing weight, I have the peg still but am very reluctant to use it. I'm going down to the hospital to have a cat scan and the peg removed this week as they found a spot on my lung. I've had my post treatment scan and there was a…
I had early-stage NPC in 2009 and had radiation and chemo. I had extensive scans till 5-6 years post treatment but not lately. I have been having mild headaches for a month now. I forced them to do an MRI for the H&N. It showed an increased nonenhancing low T1 signal intensity in clivus. The report mentions that it can be…
I thought I would just post this and maybe some readers or someone they know may be interested or need it as an option. PDS Biotech is developing a new immuno-therapy designed to target HPV-16 called PDS0101. PDS0101 has been shown to stimulate high levels of HPV-16-specific killer T-cells that target and kill head and…