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Head and Neck Cancer

Archives for October 2020

Low Dose v. Regular Dose Radiation
Other than the obvious, what does this mean? I had my PET scan earlier this week and was very pleased when the doctor said that I was an ideal candidate for the TORS due to various factors (Caught early, only 1 lymph affected, etc). He said that it may just eliminate the need for radiation and almost certainly for chemo.…
Not able to eat regular food
My husband was diagnosed with nasopharyngeal cancer in late May. He went through radiation and chemo treatments through the end of July. Now he has one more post chemo treatment (out of three). The additional treatment was delayed for about one month due to weight loss plus his inability to eat solids. Actually, he stopped…
Webinar on Oral Care for Head and Neck Cancer Survivors
I just posted this on the CSN announcements board. Go there for the details, once the announcement has been approved by CSN.
Anyone ever experienced rash prior to diagnosis?
Hi everyone. It's been a while. I usually post here on behalf of my dad (usually to get support as a caregiver as he was diagnosed with stage IVB nasophangeal cancer back in 2017). His last scans as of a year ago were clear and he's been doing well. :) I am a bit concerned and curious about something though as he's…
Post 3 month PET Scan
Post 3 month PET Scan
Difficult to Diagnose? Anyone have this issue?
I am not sure I belong here or where I belong. I seem to be getting nowhere with diagnosis of the problem and feel worse everyday. Recap- since February a Chronic everyday sore throat (back of mouth all the way down to my pharyngeal area (doesn't respond to antibiotics, allergy meds, etc), I've lost 27 lbs now with no…
tonsil cancer
I am 48 and had night sweats for the last year and back in June had a lymph node swell up in the right side of my neck so my primary Dr. sent me to a surgeon and he did surgical biopsy of the lymph node and I was told it was cancer then refered to a nose, Ear, throat specialist who scoped the area and seen the tumor on the…
Poorly Differentiated Papillary Thyroid Cancer
Has anyone had Poorly Differentiated Papillary Thyroid Cancer. The cancer has come back twice and I have had two surgeries to remove the tumors. I am being offered 30 sessions of proton therapy as a prevetative against it coming back again but I am very concerned about side effects. I would greatly appreciate anyone's…
Best News from Bad News
Just got biopsy results back. And if one has to have bad news, at least there is some good components to it. The tonsil cancer has been confirmed, but so has HPV16. I am also being treated by a significant specialist in this field in Ft. Smith, Arkansas. So I am not pleased to be diagnosed with cancer, I am relieved that…
HPV - Post Surgery & Post Proton Beam Therapy
Hi all, first post. I'm 42 and I was diagnosed with HPV-16 in my left tonsil and base of tongue back in April 2020. In May I had TORS to remove the tumors and a neck dissection to remove the lymph nodes on the left side of my neck. I had to go through proton beam radiaiton after surgery due to the fact that it had spread…
Odd Rad Side Effect
Had lower dose rads in 2012. Lucky for me my side effects have been few. Most are the same as everyone else. The last few months I've noticed my lips hurt if touched or opening my mouth wide. No cold sores pop up and it doesn't hurt if left alone. A very strange one indeed. Didn't bother to Google it as all the answers are…
Post Treatment Question
I have, of course, been reading til my eyes are bloodshot about all this and what to expect, etc. So please be patient with me if I ask something that I could have easily found otherwise. I'll never know all my questions ahead of time, so I wil just have to go one by one as they come to me. I understand that during tx and…
Left Tonsil and Lymph Node Stg3 Recent Diagnosis
Glad I found this site. Seems to be THE place to go. I have already read dozens of stories and threads. As each of you have already experienced, I have a lot of questions... to be more clear, I am SURE that I have questions, but most of them have not yet appeared in my mental inbox as I really do not even know what to ask…
Never ends
Hi everyone, My name is Lisa & I had Ssc of tissue where left tonsil was. Tiny, had for 3 yrs all Drs I asked said it's nothing, irratition from allergies & a couple colds? Was sent to ENT for meds to control 365 environmental & 7 food allergies. Nothing was helping even steroid Sprays always coughing, sneezing, runny…
My neuropathy...
My neuropathy may not be from chemo after all... or, at least, not totally. I started noticing the tingling and spiny jabs about 2 years ago - roughly 5 months post Tx. It wasn't pleasant to say the least, but eventually I was prescribed Gabapentin and that seemed to calm it down. After a year or so I began winding down…
Starting radiation soon seeking advice
My fiancé was diagnosed with stage 2 tongue cancer she has a pre existing conditio, fanconi anemia that puts her more at risk of infection and cancers she is currently 24 and has had a 3/4 of her tongue removed her surgery was rough on her because her tongue began to clot so she had to go into surgery 3 times she is now…

Head and Neck Cancer

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