Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for August 2020

Late Update--Just Info
OK, folks, I am doing a little catch up here but will try to make it as brief as possible. Whoops looks like brief didn’t work this time if you get tired reading take a break or just skip it. I apologize for waiting this long and making this so long-sorry. Not in perfect order that’s for sure. I had a CT scan with dye of…
Tooth Care Reminder
An 11 year and 4 month Nasopharyngeal Survivor, unknown Primary, the costliest post-tx expense has shown up in my Dentist's bank account. Over $12-K out of pocket in the first 8 years, which included 2 root canals and 3 Crowns, the tops of 12 teeth rebuilt (front ones more than once). Anyway, tonight I had nothing in my…
Therapy after complete removal of the tongue
My daughter has had 3 surgeries for head and neck cancer. The surgeon originally scheduled her for removal of about 75% of her tongue but the scan showed the cancer reached the entirety of her tongue so they removed the entire tongue and using her leg as donor they constructed a whole new tongue. When she tries to speak it…
just finished
Done with treatment was a lot harder than i thought having trouble talking and not able to swallow throat feels like it is on fire since i can not swallow water not sure what to do they say give it time neck is also on fire and peeling wonder if any one has any advice on what to do thank-you Matt
2 yr and 7 month check up
Hey All, Just wanted to share a little good news I recv today. Had a follow up wtih my Surgeon today and he says everything is looking really good. Wants to do one more CT Scan of Neck and Chest in Feb (3yr mark from Surgery) and if that comes back clear and clean, then wll only need to start seeing him once per year!!!!!!
Four year post
Lapped four years today, still clear. Neck gets stiff periodically, dry mouth continues to improve tho more slowly than earlier. Taste came back mostly. Some things are not the same, and there remains a residule of saltiness in the background. I have to be fanatical about sun screen on my burn area. If I had it to do over…
Proton or IMRT
I have HPV tonsil and back of tonge cancer spread to lymph node {T2 N1 M0}. I will be starting radiation treatment and weekly chemo. My question is I was suppose to start IMRT radiation and weekly cisplatin next Monday and just found out my insurance approved Proton Treatment but the hospital MD Anderson will not have a…
28 mos post
I had BOT HPV a little over two years ago. 35 rads and 8 weeks chemo. Just wondering how long certain side effects last. Dry mouth and cough at night when laying in bed, throat still narrow and choke when eat certain foods., always seem to have some phlem in the back of the throat. when I have a big yawn i can feel…
Any suggestions that will help before and during radiation
Was.wondering if there is anything that may have helped before or during radiation that you could share with me. I am juicing carrots because I was told it helps the tissue to not burn and break down as bad. Any advise would be appreciated!! I was diagnosed with moderately differential SCC. I had a portion of my tongue…

Head and Neck Cancer

Discussion List