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Recurrence already?!
Ok, our cancer story. Hubby diagnosed with Stage 4 base of tongue and one lymph node. We were not a candidate for surgery due to an unfortunate accident which landed him with a broken leg and several blood clots. We completed 35 rads and 3 Cisplatin on July 29, 2019. Had a CT scan in September which cleared the lymph node.…
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FT life update
Been a while. FT on 8/6. GP said 1600 calories, but struggled w/1.2 Jevities and aspiration. Had to get pro-active to get 1.5 okayed by a competing Medical system. Dietitian said I need 1900. So, doing 1-Boost VHC & 4-Jevities= 1940 calories/day. And, my weight loss has stopped! Physical Therapist said I should have gained…
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Good News Update!
It has been 5 years since I was diagnosed with stage III edinocarcinoma in my ethmoid sinus. At the time, I had suffered from a stuffy nose in just one nostril for about a year. I had gone to my GP several times before his substitute referred me to a specialist -within 5 minutes of that office visit. The specialist did an…
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Thyroid
Had blood test for Thyroid yesterday and it is starting to fail. My numbers were normal in March and are now over the normal range. I start medication for my underactive thyroid as soon as I pick it up at the pharmacy. I finished treamentt for Tonsil Cancer last September and had 35 rads and 3 high dose Cisplatin chemo…
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teeth
Had my first teeth xrays since finishing my Tonsil Cancer treatment last September. I was a little nervous after reading all the possible issues with teeth after radiation. Dentist said all looks excellent with no decay and gums look perfect. My treatment consisted of 35 rads (70 greys to right side and 54 greys to left…
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15 months NED!
Just a quick update. Went to my Onc doc for my 15 month check up. all good. Slight dry mounth on right side of throat mostly at night/when I wake - other than that....100% back to normal. Right side of neck shows slight dryness/scarring from proton rads. Happy with results.
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ROLL CALL 2019 - THIRD UPDATE OCT. 22, 2019
PLEASE READ ROLL CALL 2019 Third UPDATE October 22, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. ROLL CALL Guidelines:…
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Metastisize to lung
I had HPV16+ tonsil cancer in 2016, stage 4. Had 35 radiation treatments and 5 cisplatin. Then in 2017 I had anotehr occurent on the left neck. Had partial neck disection, 35 treatments of prton radiation and 5 of erbitux. Now it has spread to my right lower lung. I am very discouraged. It just keeps spreading. Has anyone…
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Sore throat so soon, normal? Location of symptoms? Also remedies?
I woke up yesterday with the sore throat I was told to expect. The thing is, it is pretty bad and I have only had 11 out of 33 radiation treatments. For some reason I was under the impression that the side effects only got bad for the last two weeks or so. I'm seeing my radiation oncologist today, so I will ask her too,…
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Stage 4 Buccal SCC PNI, poorly differentiated, 3 Positive nodes
Hi warriors, My husband (48yrs old non-HPV) has stage 4 Buccal (Cheek) cancer, poorly differentiated, three positive nodes, deep invasion with peri invasion. He starts radiation Monday. Two cancer institutes did not recommend chemo since margins clear. All of my research gives a VERY poor prognosis. Thanks to this group…
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G tube placed. Hurting
Hi Husband got G tube and Portacath today. G tube hurting more than I anticipated. What are your experiences?
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Up Date and Thank you's
So many in this group to thank. The list is very long, and some we have lost even. Just some, debbiejeanne a special lady that greatted me first and a long time friend. CivilMatt allways there to offer me some very sound advice when I needed it and listen when I needed to vent. A true friend I am privileged to know and…
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Full Disclosure Survey
Just wondering how many of you were informed of the severe consequences of treatment? Our docs soft-pedaled info and were quite evasive. Is this common?
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Not doing well
Hi everyone: Appt tomorrow with speech/swallow therapist. Saw another specialist last week. He said my difficulty in breathing from scar tissue in airway area and from paralyzed cord also blocking airway. I can breathe just shortwinded. Kind if difficult, but living like that. I'm on a FT for life, and they want to put…
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Wbcgar update
After five operations and complications I am hoping to be home soon. Too hard for me to post right now, but I will tell my story to you guys later. Wishing you all well - God Bless!
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Improvements
There is a bit of a gray area between improvemnts and just getting used to the new normal, but little by little I've noticed some definite improvements, especially in my saliva recently. When I think back to a year ago I didn't really know about Xylimelts or Act dry mouth lozenges, so I had to be absolutely sure that I had…
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Abi-normal?
We use abi-normal a lot to describe our lives as cancer survivors. I know what it means when we say it, but does anyone know where it came from? Thanks. mike