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Head and Neck Cancer

Archives for July 2019

Centers I had for treatment now in Class Action Suit
Yes I have been on here often asking for help or ranting but after reading a great article by a Onocologist, now a Class Action Suit against the Centers that treated My Cancer I feel strongly, that even 3 yrs NED does Not mean to Me I’m cured & if I knew than what I know now would have done things differentl. Cancer still…
I’m a little over a year out of treatment and still cancer free
Hello everyone I haven’t been on here in sometime. Hope you all are doing well and summer is treating you well? Question I’m a year out of treatment and NED so blessed!! However I still have numbness and very sore the side of my neck dissection and radiation. Is this normal after over a year out of treatment as of June 15?…
Hypothyroidism
I finished TX June of '12 (6 Cisplatin treatments and 35 rads, 70 Gy total - tumor near epiglottis) My thyroid had started to underperform in 2018 and my old PCP never mentioned it from the lab tests. I changed PCPs recently and my new DO started me with 50mcg Levothyroxin. We will monitor to check for dosage changes. I…
Paralyzed vocal chord -??
I recently had a scope done and my ENT said my left vocal chord was paralyzed. Just another wonderful gift from radiation. Ugh.. I was wondering if anybody had this problem when having a follow up from their doctor. I appreciate any feedback from you. Thanks. Hugs and God bless.
Difficulty breathing and pain
Hi H&N members. I had a few questions and I'm hoping that someone can help me. I had base of the tongue and left tonsil cancer. Been over year since treatments finished. I have ear pain and my primary care doctor said it was an ear infection but my throat doctor said I don't have an infection. He scoped me and said I have…
It appears my tongue cancer is back
I just read my PET scan and it says I'm being referred for tongue cancer again. I don't see it or feel it but Ithe scan shows a lesion. I can barely open my mouth which scares the **** out of me as to how they will tackle this. This is truly my worst nightmare coming true.
Scar tissue aspiration- any way to avoid feeding tube?
Help! ENT Dr. scoped my throat due to my swallowing test reults. Said he sees a lot of scar tissue, and attributes that to the aspiration. Anybody know of a way to eliminate the scar tissue impediment? Laser, for instance? I had a feeding tube and used exclusively for 10-11 weeks in tx, and kept for 17 months; however, the…
Dead Bone in Jaw
I went to my ent specialist with swelling and pain on the inside of my mouth at the bottom along the jaw bone. Through a hole in the inside skin he could see what he called a 'dead bone' from the radiation (which I finished my 30 treatments at the end of April). He has given me antibiotics for an infection there and said…
Waiting for PET
Newly diagnosed HVP+ SCC. I had tonsil stones but it felt different so I elected to have tonsilectomy which revealed the demon. They gave me a loose sketch of what they are thinking until they get PET. if it is negative they want to do TORS and clean up margins and possibly take a few nodes. If it shows other spots, then…
One year NED!
I really didn't expect any different, although the only reason for that would be because I feel great. But I answered all of the standard questions positively, and all of the visual and physical exams had nothing but rave reviews, so I feel pretty good about everything. I still have some neuropathy, but as long as I'm…
Agent Orange Cancer
Trying to find additional data and research papers and Doctors who support belief that throat and tongue cancer is part of the respirTory tract not the digestive tract to support my claim for compension
Post radiation rotator cuff tear
Hello everyone. I'm new to this forum and looking to gain more info on long term side effects of chemo/radiation. Finished chemo/radiation for tonsil cancer in April 2017. I have had a lot of setbacks during recovery, as I'm sure a lot of you have. The latest is a rotator cuff tear in my left shoulder. Saw a very well…
Base of tongue cancer non hpv
My husband finally got his official diagnosis today.Advanced base of tongue cancer that is also in lymph nodes which we knew.We were praying it was hpv strain but it's not.dr said he has 50/50 chance with high dose radiation 5 times a week sometimes twice a day and also chemo during radiation.Has not spread to other parts…

Head and Neck Cancer

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