Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines.
Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide.
Other areas of CSN are restricted to members only and cannot be found by search engines.
Head and Neck Cancer
Archives for November 2016
Discussion List
Three months out - hoarse and pressure on windpipe
I'm my husband John's caretaker and haven't posted in awhile. He was diagnosed with HPV+ oropharyngeal cancer in May. Primary tumor in lingual tonsil at BOT and one lymph node on side of neck 4cm. He had 35 proton therapy sessions at Scripps with 7 concurrent cisplatin. No PEG. Lost 30 pounds. Has regained some appetite…
Chills / Shivers During Chemo
Hi all - wondering if anyone else experiences chills / shiver attacks during their chemo infusion? My episodes tend to last 30 minutes and I get chattering teeth, shivers and nausea. Things then go back to normal as if nothing happened. Nurses / Drs are unsure why this is happening and will wrap me in blankets until it…
Warm place to spend winter
G’day too all of you, well it looks like old man Winter is on his way to Louisiana early as Monday will be around 49 degrees here in Lafayette. Is there anyone here who lives down in Miami Florida or Brownsville Texas that has an extra room in their home. I am not sure what I will do this winter as I cannot stand the cold…
New to site vocal cord cancer and partial laryngectomy Help
New to site Have many questions Help My husband was diagnosed 8 yrs ago with left vocal cord cancer he had 8 weeks of Radiation and 6 weeks of Chemo. He faithfully followe up with his ENT all of those years and was considered cured. About a year ago his voice start going out on him we thought it might be his job he's…
By the time this year is out...
I would have endured... 5 biopsies 2 surgeries 4 CT scans 4 PET scans 2 MRIs All this for a stage 1 tumor on my tongue. Does this seem excessive?
Cancer in throat that has spread to glands in the neck.
Dear Sir, I need your kind help regarding my father cancer. He has a Cancer in throat that has spread to glands in the neck. Which treatment would be better for my father? Cyberknife treatment? or VMAT? or chemoradiation? "Hydrogen Peroxide Cancer Treatment, nitrogen flush" "transoral laser microsurgery" ? Thank you very…
Doctor did not let me do my Erbiux today, cause neutropenia was 0.84 (840)
Hello after they took my bloodtest the NP came to me and told me I cannot do my Eritux treament today, cause my neutropenia was 0.84 (840) which is less than 1 (1000). I asked her to message the doc. and she was nice enough to do it and got another nope from tthe doc. explaining that I will pose myself to having serious…
I hate to complain
But the fatigue is overwhelming at times. I'll be four months post radiation on the 12th, and thought by now the fatigue wouldn't be as bad. I do exercise (walk 3 miles) or go to the gym about 5 days per week to see if it would help. I get a bit of a burst of energy after exercising, and then the plunge into a suffocating…
Throat went south fast! Almost everything I try to eat burns ...
Overall still feeling good, but in the last 5 days, my throat has gone from tolerable with no meds, to needing some Advil, to the magic mouthwash, and now I tried my first meal with Oxy/MM, and almost everything still burns. The senstive spot is the very back of my throat which is hard to target with the MM. A little worse…
Help !!! Recommendation needed for Radiation Oncologist in NJ
I need reviews for Dr Shupack in memorial Sloan in Basking Ridge facility. Or recommendation for the best radiation oncologist in NJ. My 42 yr old non smoker husband is diagnosed with stage 1 vocal cord cancer and dr shupack at MSK is suggesting 6 weeks radiation. We are also awaiting CT scan to finalize the stage. I…