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Head and Neck Cancer

Archives for June 2016

One week down
I feel good just having finished a week without screaming when the mask is bolted down. No symptoms yet. I had fatigue from surgery which is improving, but still there, so not radiation related. Stilk eating well, and able to do some exercise. Enjoying life. Met some really nice people in the radiation waiting area.…
Radiation fibrosis syndrome
I heard that vitamin E can reduce the cramping. Any truth to that? I'm 4 years into remission but the lingering after effects won't let go. Help.
Is one month too long to wait to see oncologist after biopsy results?
I just got my biopsy results on June 2, and my report was faxed to Johns Hopkins by my oral surgeon. JH called today and said the first available appointment for my consult with the specialist that my oral surgeon recommended is July 5. His office told me that he will see me that morning and decide which scans/tests to…
Lotions or creams?
I am not enjoying the Aquaphor. Sticky, gooey, yucky feeling. A nurse at MDA mentioned Jeans Cream, but at $45 for 7 oz, I think I'll pass. Basically they said it's okay to use Coconut oil or any lotion we want as long as there is no alcohol. I think someone mentioned Calendula. What worked for you?
Video: What to expect from head and neck cancer
Has anyone seen this video? https://www.youtube.com/watch?v=pxjDHcCHHZg How did it compare to your experience? My husband has been diagnosed with HPV related Oropharangeal Cancer (which is what I think the gentleman in the video had) and he found and watched this video by himself. I've never seen him so scared. He's…
Introduction
Hello all, I joined a few weeks ago and have been reading your very helpful hints, which have been invaluable. My husband was diagnosed in March, Stage 3 SCC of the right tonsil. He has had 27 radiation treatments and two rounds of Cisplatin, no surgery, no peg. Fortunately, he is still eating some solid foods with the…
Going for implants and wondering
Hi everyone.I had a cat scan yesterday to check for the density in my jaw from the radiation.Doctor was very happy with the results so now we moving forward.And wondering if anyone else has gone though this?He is going to trim my gum line and move my tounge flap back a little.And also having the denist make up a splint as…
My radiation journey - Week 3
I just completed 14 treatments out of 33 and here's my experience to date. Lost one day to the holiday last week. However, the radiation forgot to celebrate Memorial Day like the rest of us. Sores on my tongue, inside my cheeks, and one near my throat, got pretty serious. Although I'm still eating a regular diet, I have…
Received Possible First NED
Hi Everyone, Lisa here, Going on 6 wk post-treatment. Cancer located left tonsil area, HPV+. Saw my ENT last week for a scope of the mouth and throat. Pictures were taken. Compared to the "Before" pictures taken in January, the mass is no longer raised and is systemical to surrounding healthy tissue. My ENT pronounced it a…
Info from others please
my husband was diagnosed with neck tumor along with lymph node in December 2015. Primary was never found. He finished chemo and radiation on 3/15. doctors were very positive when they could not feel tumor anymore. On 4/6 ct scan done on neck and lungs and only showed small lump left in neck. on 5/27 he had a restaging pet…
teeth
I had tongue cancer 16 years ago. Been having a battle with my teeth ever since. I keep losing teeth and the dentist do not give me options to replace them. They make is sound like I can't have dental implants or dentures because of the radiation damage. I know many of you have dental issues and any ideas on what to do…
Necrosis problems in jawbone
I am sorry to bring up a new situation since there are enough going on already during everyone's cancer treatment. I survived stage 4 throat cancer that was treated in Chicago and Munster, IN. Since then I've had many more medical situations including falling over and getting injured and then being diagnosed with vertigo.…
Waiting for first biopsy results today and scared
Hi, All. I'm a newbie. I just had a biopsy on Tuesday, March 31, 2016, and was told the surgeon would call today with the results. They took punch biopsies of my upper back gum area, left side, and one of the right side of my tongue. For years, I have suffered with Oral Lichen Planus, and the oral surgeon thought the…
GU Energy Gel - did anyone try it/like it?
I completely forgot about this until just now. While I was in recovery...and feeling lower than low...a client sent me a box of GU Energy Gel in all the flavors. He is a marthon biker and bikers use them to refuel. Plastic envelope, tear off the top and swallow. It was pretty good, nothing I would buy now...but at the time…
Introduction and a couple of questions
Greetings all. My name is Gregg and I live in Raleigh. I stumbled upon CSN while searching around for some recovery and after treatment topics on the web. I was diagonosed in August 2015 with stage IV squamous on base of toungue and spread to lymph nodes. Was fortunate enough to get into the de-intensified treatment study…
2 days left of radiation and I'm so nauseous! Help
I only have two days left and I'm so nauseous haven't eaten all day. I do not have a feeding tube and I don't want. I've been drinking water all day. My throat is so swollen and tongue is full of sores. I keep reheating a bowl of puréed rice but can't seem to eat it.
Introduction
Hello everybody.... I am new in here and unfamiliar with the protocol. I thought I'd start here with an introduction. I'm Sam from Columbia, SC (actually relocated here in 2002 from NY). I had stage 4 head and neck cancer, originally diagnosed Oct 2015. Travelled to NYC for surgery/treatment at Memorial Sloan Kettering and…

Head and Neck Cancer

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