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Head and Neck Cancer

Archives for March 2014

ct results update
ok, i went to the ent today that the new oncologist recommended. he asked why i was there and i told him the doctor wanted me to see him to be scoped. i also told him that i just had a ct on 2/28 and it said i have a lymph node that had grown from 9 mm on last scan to 13 mm on this scan and we were doing another scan in 2…
Update on might fight - late update :P
Hey Guys, I apologize I dont get on the boards much, and perhaps many of you newer folks dont know me but, I wanted to give you an update (late albeit) but an update. I had a CT scan & Doctor's appointment in mid Feb, The results of the scan was this: The doctors said that there were additional tumors on my ribs, spine,…
Stopping chemo temporarily
I hope all my fellow warriors are doing well. I saw my Oncologist yesterday and we have decided I should stop the Taxotere for awhile. I am for the most part in remission, no visible cancer in my lungs and Mediastynal nodes. The long term use of the Taxotere is what seems like will do me in. My Doc told me last May when I…
Uncle's Condition
Just recieved news that my uncle who has been battling cancer in bones and gaul bladder and now brain was told to call in Hospice,Hate this disease,I pray that when that time comes he is out of pain and comfortable,Have watched my Dad and Sister both pass away from it,sorry had to vent.Just askin for prayers, Thanks Chris
3 am and no sleep UPDATED
UPDATE: THANKS FOR ALL YOUR PRAYERS, THEY WORKED. WE BOTH FELL ASLEEP AROUN 4-4:30 BUT JIM AWOKE AT 6:30 NEEDING TO GO TO THE BATHROOM. I MESSAGED A NEW FRIEND I MADE WHO IS A RETIRED NURSE. SHE SUGGESTED I LIE NEXT TO HIM AND HOLD HIM. IT TOOK ABOUT AN HOUR BUT HE EVENTUALLY SETTLED DOWN AND FELL ASLEEP, ALTHOUGH HIS…
First check up following Rads/Scan ?
Had first check up following rads; throat feel, nasal scope and met local rad/onc. Seems C21 R/O does not have many follow up appointments, hmmm. They had time to see me before treatment started... Anyway, he said all looks great! Also liked his + outlook. Now for the usual confusion about best practice regarding PETs, CTs…
Update March 4
I haven't been on for awhile and wanted to update all of you on how I was doing - first physically I feel fortunate - I finished my treatments on Jan 17th this year - 7 chemos and 35 rad treatments for tonsil cancer - the last week was the hardest - just a few days shy of the last rad treatment I stopped drinking Ensure…
speach specialist
Went and seen my speach specialist today and she took x-rays and gave me the ok to start eating soft foods and liquids.Was nice just to swish water arounf my mouth again.We will start next week before the rads so she can teach me the exercises and massaging of throat and tounge to get everything strong again she said she…
Lung scan
Back from Penn State Hershey Cancer Institute. Had my scan at 7:45 this morning and then wait. Got to see the oncologist and Radiation guy at 9:15am. Everything is fine with my lungs. I have had the nodule for over two years now and it has not changed, still at 5mm. No new nodules. She said one more follow up in six months…
results of ct scan of lungs and neck
just got results of cat scan. lungs look fine. there is a node in the neck that the doctor wants to f/u on so instead of seeing me in June, i have to have another scan in May, then see him right after. darn, that means another IV and blood draw. damn. the doc said he's not too worried about the node but wants to be safe,…
Calcium, Who Knew?
When I was in the hospital for my laryngetcomy, they couldn't release me until my calcium levels stabilized. Okay - no problem. When I went home, I took the supplements. After 5 weeks, I followed through with my primary care to get them tested, but never heard back from him. Hmmm. Anyway - started throwing up 4-5 times a…
food in peg tube
Hi everyone Was just curiois I thought I read somewhere I put more then just Jevity that they have givin me.As in blending my own food just for a change of pace.Have been thinking of blending fruits while going though my rads.
Soreness around PEG tube stoma
After 5 months of pain free PEG stoma I have just developed a shiny deep pink lump to one side of the hole! it's only small but goes half way round the hole? it stings when I move and also leaks slightly! should I be concerned, I put some cream on for sores should I wait and see if it clears or see my GP. I hate goingto…
30 years
To day we celebrate 30 years of marriage! Because of our age difference Jim had asked me, at the beginning of our marriage, if I realized he may not make it to 30 years. I said, sure we will. I am thankful for these 30 years with the love of my life. This past week Jim improved so much he started planning fishing trips.…
Checking in
Just checking in- I have been lurking in the shadows popping in and out just reading posts and just wanted to say hi to everyone. I am coming up on 15 months post treatment and have learned to live with the side effects. I am back to my normal weight. Back in the rat race fully. Biggest side effects remain dry mouth…
Treatment plan
Ok, I went to see the oncologists on Friday. Going to have combo chemo and rads. 6 weeks of rads with cisplatin at day 1,22, and 43. I went to the dentist yesterday to get cleared by them. All was good there-thank goodness. Have to go in this week for them to fit me for a mask and also going in for a peg tube-just in case.…
Catluver
Has anyone heard from Vicki since her surgery? I know that some people have connected by Facebook. Hopefully no news is good news. I know I am off of the grid when I am on strong meds.
First PET scan since final Radiation in Oct NED!
May 31 2013 i found out i had Squamis cell carsanoma (spelling) and started 9 months of almost hell. I had my last radiation on Oct 29th, first PET Scan end of Jan and It was clear also. I had 3 rounds of Chemo, a blood clot in lower lung, 4 trips a week each spent in hospital for one thing or another. 37 daily mon to…
Chemo Rads or Just Radiation
God Bless you all for sharing! :) I am a 49 yr old Non smoker in excellent shape with a wife and two wonderful children. Then 2 yrs ago I was found to have HNSCC HPV pos They did a modified neck disection and transoral surgery to remove the primary from the base of my tongue. Surgeons thought they'd caught it early enough…
Decision Time
I need to decide my next treatment step. The surgery biopsies showed clear margins but closeand radiation should be considered. Spoke with the radiation oncologist today. He said 50 precent overlap between radiation fields from 2007 and what I need now. If I do radiation now, there could be lots of issues down the road…

Head and Neck Cancer

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