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Head and Neck Cancer

Archives for February 2013

Tired , mucus and unable to eat.
I am writing for my husband John. He was diagnosed with tonsil cancer in Oct. had his tonsils, part of soft pallet, and tongue removed late in Nov. After 2 months of recovery and delays , he started chemo and radiation last week. He complains of being hungry , but full. We can't tell if it is related to mucus Or…
Can I rent a new body. Lol
I don't know what is wrong with me, but I have been having a lot of numbness and tingling in my hands and arms every night for a few months. my body is really stiff in the mornings and I have to be careful not to trap drown the steps on the way to take care of David in the morning. I have actually fell once and luckily…
Balancing Act
I'm performing a balancing act. With the "right amount" of pain medication and the "right amount" of anti-nausea medication, life can be pleasant. Too much medication wipes me out. Some medication seems to wipe me out a little anyway. I am also having a little trouble with the eyes (focusing). I have recurrent iritis (a…
Concerned
This monring I was roughly awakened by my wife at about 11:30 am. Now what was weired about this is I NEVER sleep later that 7:00 am. and am usually up by and having my coffee by then.. Also that I went to bed right after the superbowl game (around 9:00). Right now, it's 1:00 PM and i'm bone tired and could sleep for the…
Last Treatment.
Today was my last rad treatment. About a week ago I switched to shakes and smoothies as only source of nutrition. Can't wait to switch back. Mild sore throat and I am always trying to wash out my mouth. That taste is unreal. Doc says 2 to 6 weeks and I should start to feel some relief. It has been a long 6 and a half…
Clear Scans
Hi All - good news today, so wanted to share as I remember in my darker days seeing good news posts always cheered me up. I was most active on here in April 2012, I had what was believed a cyst surgically removed, which despite lots of clear tests (including PET) came back from the labs as being MEC (salivary gland…
Tonight is difficult
I am putting together a care package for my mom, of all the pretty headscarves and 'buffs' that I used when I went through my chemo and radiation treatment, and I am feeling pretty upset that she is going through this right now. I posted a couple weeks back - she presented at the hospital on January 1st with difficulty…
Old lady chin :-(
About a month ago I noticed my chin getting more and more wrinkled. I'm 7 mo this out from treatment and it seems to be getting worse. I am pretty sure the rads just depleted all of my collagen in that area. I'd really like to stop receiving gifts from rads. I still have Lhermitte's too and I thought that would be gone by…
Does dry mouth ever improve?
Hello, I'm curious, has anyone had dry mouth (and thickened saliva) get better in time? (None of my doctors have said anything to make me think it will.) I'm not getting my hopes up, but I thought I had read in posts that some had gotten better. I'll be 12 weeks post radiation and chemo this Thursday. Bye the way, my…
The after tx "Turkey Gobbler"... : )
Hi Folks, I didn't know how else to explain this hanging thing under the chin after treatment. We're calling it the "turkey gobbler" right now...LOL. Any advice about this disappearing or trying to tighten it up? Just curious if this is another gift that keeps on giving? ~Cureitall (Cris)
MISSING FROM ROLL CALL - Have not checked in
It has been over a year and prior to January 1, 2012 since we heard from the below folks. If you know the status of any of the listed members, please post and give their status. DO NOT ENROLL or REPORT your personal status on this thread. I would appreciate it if it is posted on the actual ROLL CALL roster. Mahalo.
Rx confusion
Hello again kind friends, I am checking to see if anyone has had similar problems with their prescriptions. I have been prescribed MS coton for pain, this is slow release and the dose prescribed is 60 mg per 12 hrs. which I have been taking. I tried to refill the script the first time but the chemist said the insurance…
SuperThread Fix....
Just wanted to let everyone know that the SuperThread will be fixed soon... Actually I already have other than a few dead links.... With the new format on posting, Dawn tried to check in and post something, when she saved it, the thread format got hosed. I asked if she minded if I took it over as I originally helped her a…
Question about HPV+ throat cancer and how it might be spread (Update)
My mother had stage 4 throat cancer, her two year battle ended in October. She was HPV positive. Now I went to the dentist on Wednesday and he said I have a mass that needs to be looked at. I did not tell him about my mother being sick and passing away. But this is like De Ja Vue. All my life my mother and I shared drinks.…
Silver Something
For some reason the formatting of the superthread is all jumbled up (at least on my machine) and I can't find a product I remember seeing. It was Silver something and it was supposed to be great for neck burns, and man do I have neck burns. Anyone help? Thanks, Joe Cortney Dallas, TX
Ok... this Beast is starting to hurt for real :(
Hey folks, On Monday, I visit the dentist to have a tooth extracted and a small cavity filled. That along with previous exams, cleanings and flouride treatments will give me dental clearance for radiation treatment. The journey officially starts next Thursday with surgery to remove the tumor, do further biopsies and…
Erbitux Rash-help!
Jeff has gotten the dreaded rash. It's on his face. It's oozing and bleeding. He is using a steriod cream he got awhile back for eczama, the aquafor which he uses on the burn on his neck. He just took som otc benadyl tabs. Any other ideas? Should I call the dr office on Monday. Thanks guys and gals Sue
Some days I should just stay in bed !
Hi everyone, I had a pretty big scare today. After such a wonderful visit w/my ENT yesterday. I had severe chest pains that radiated down the left arm. I thought what.....no way this can't be happening. So I went to the hospital for an EKG, and of coarse the enzyme test. Came back all normal (I was so relieved) no signs of…
Good news!!!!!
Hey dear friends!! My dad had his first CT on Wednesday, and today he got a written report!! I guess it all looks pretty much ok and my parents are just thrilled!! Actually when they got this report, Mom immediatelly called me, but when she read it to me, we were not completely sure what exactly does all this mean. So she…
Outcome of PET/SC scan and another waiting game
Not such great news from my husband's PET/CT scan. Now we are awaiting the scheduling of two biopsies -- lung and at the cervical of the esophagus and a little ways down. Specialist thinks that maybe the PET is wrong concerning the cancer dealing with the cervical of the esophagus and that it is only inflammation.…
Stir crazy and love starved
I am having a hard time trying to stay chipper and hopeful. I have been stuck in the house for two weeks with the exception of the one doctor's appointment and chemotherapy. We don't have company other than David's mom and we don't want her to have to come out everyday since she hasn't been a widow much longer than I've…
ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted
CANCER SURVIVORS. Please enroll or check in for year 2013. WE SURVIVED! Read about us and for the newbees, hope this forum brightens your day since a great percentage overcame this dreaded disease. We have 97 folks who registered or checked back in. For those who have not checked in since January 1, 2012, you have been…
Anyone getting treatment in Austin, Tx ??
As mentioned in an earlier post, I may be moving from STL to Austin. There is no NCI certified facility in Austin, and my medical team feels ok with me continuing my once a week Erbitux treatments in Austin if we move, my wife's new employer is Seton Health System, and I can receive treatment there, (Shiver Cancer Center)…
Thread error.
Am having trouble transferring the roll call data. I will post it later. Please do not update your status on this thread. Thank you. I do not know how to delete this entry.
I Am Numb
First, let me apologize for never being able to post any good news. I'm afraid I wouldn't recognize good news if it hit me square between the eyes. We saw the MDA doc today, and much as expected, not too much can be done for my hubby. The doc was taken aback when he saw the shape my poor hubby is in. The cancer in his lung…
A strange Occurance
Hello, hoping to find someone who can help me stop worrying. My husband had a very advanced sinus cancer 2 years ago. Invasive squamous cell carcinoma. The tumor had grown to attach to the brain, eye and orbit, tissue and bone. He had an incredible life saving surgery which saw the removal of eye and orbit as well as parts…

Head and Neck Cancer

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