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a few more hours
David will officially be done with round one of chemo at around 11:30 tonight. He still has a chemo shot he has to get on the 7th and 11th, but the constant tethering will be over, at least for a couple weeks. They told us he may be able to go home this weekend if we can get his stomach to accept food and fluids. We will…
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Info needed from fellow NPC veterans
Hi all! Its been awhile since I have posted though I do come back and check on the board every now and then. I just hit my one year anniversary from treatment last week. I can't believe where I am right now compared to where I was last year at this time. Life is just about back to normal (my new normal that is) however its…
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Prayer Request
Hi all: Got an urgent prayer request. My best friend's husband had a CT scan yesterday of his lungs and now is having a needle biopsy on Thursday. There are three spots on one lung. Of course nothing is totally sure, but he is 75; has been a drinker and smoker for a long time. I have known my best friend since we were 2…
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If you knew then what you know now...
Hello All, My dad is getting ready for radiation and I need your help. What "tricks" or "tips" do you wish you'd known about earlier in your treatment? Was there something that actually made eating...skin care...or treatment just a little easier? The "packing list" has been great and the discussion on Mugard. Any and all…
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“Picture Your Life After Cancer”
New Meaning and Drive in Life After Cancer NY Times has a paywall, not sure everybody will be able to read the story. but there is a book out too. and in the blog story, there's a link for adding your photo to the collage. "A new book, 'Picture Your Life After Cancer,' (American Cancer Society) focuses on the living that…
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Partial Glossectomy?
New to the site. Wondering if anyone can give me any info on what to expect with a partial glossectomy & removal of lymph nodes. My husband was diagnosed with base of the tongue cancer in January 2012. He had 40 radiation treatments and 8 rounds of chemo (erbitux). They thought they had gotten the cancer, but it has…
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Good news bad news
Ok so last night went better with the exception of his hiccups and constant staff being in the room. This morning we found out the cancer js responding to treatment. His absolute plasma cell count was .22 down from 2.58. The goal was 1.29 by the 10th day following the start of chemo so we have already made the treatment…
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WBC boost anyone?
We arrived today for our last chemo treatment, but Steve's counts were too low so they sent us back home. His WBC is 1.4 and Lymphocytes, 300 and Neutrophils, 700. Took him 2.5 weeks to get the nausea under control and then his throat was burning so he's using the feeding tube but not as often as he should/could. Til now,…
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Reflections...
I was searching for a post from awhile back and came across the one in the link below; Reflections It was one of the first where Dawn and myself first interacted...LOL. A lot of people in the many posts that I read are no longer here for one reason or another. A few I know have passed, and that is both sad, and actually a…
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Biopsy Tomorrow
My lung (needle) biopsy is tomorrow. Compared to what I've been thru, compared to what my wife and caregiver has been thru, compared to what David is going thru, the biopsy should be a piece of cake. Nevertheless, my anxiety level is high and going up. Both my wife and I will have a tough time sleeping tonight. We will get…
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Still alive
I don't know if everyone realizes how close David was to dying on Thursday. He doesn't even remember the day. It was so scary and I was looking bid death square in the face. I know the last couple of days I have been so thankful when he awakes in the morning. I know God is giving me one more day with him. An update on his…
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throat cancer
hi there friends, my name is sylvan and i will be communicating my record of my cancer with photos from the first day i saw it august 13th till this week december 2, 2012. I am on going into my fourth week of radiation and chemo. I will be showing pics from the different changes my tumor has gone thru. I am being treated…
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Uplifting website
Just wanted to share this. On my H&N surgeons website I saw a post for this this survivor who sings songs to patients all over the country and world for that matter while they are going thru chemo. I went on his site and read about him and listened to him sing to some of the patients, very touching. His web site is:…
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Life...
Four years ago at this time I was contemplating the easy way out. The unknowns was a monster I was seeing as only worst case scenario. The fact I now write this is proof that monster did not get the best of me, nor the ordeal of tx. And my recovery went very well, I think. 6 months after my last rad my only Sister died. 3…
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Hyperlinks:
Tim asked how to embed hyperlinks. Well there is no simple solution; but there is a complex solution. One can embed a hyperlink in a message by using the html anchor tag. Sounds easy. Here is the trick. WARNING: All parts of the hyperlink must be balanced. For example all open quotes much have a matching closed quotes. An…
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Anybody heard from?
Forgive me if I get their screen names wrong, but has anybody heard from Nick770 or BarefootBob? I know Nick was supposed to have a biopsy, but haven't seen him post anything. Also am curious how Bob is doing. If anybody ever wonders if your posts matter & people really care, trust me they do! I don't post as much as…
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Yesterday was a good day
David had a much better day yesterday. No vomiting, fever or much blood loss. He talked to several people and ministered to anyone who crossed his path. He said yesterday was the first day he woke up and thanked God for giving him one more day. He realized the scope of his diagnosis and so does his church now. The whole…
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What the?!?!
Someone is posting spam stuff on here again. How do prevent this? Billie
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Speaking of tasting things...
My husband has his left tonsil removed along with a bit of the wall behind it, and a left neck dissection a month ago today (3 of 29 nodes effected with 2 having growth outside the nodes). Tonight he wanted wings from a local restaurant, then said they didn't taste right. I ate them too, and they were the same as every…
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Dropping in to say hi!
I hope everyone had a good thanksgiving. We had it in our new house we were building while I was in treatment. I cooked the entire meal except a few sides. It went really well. I've got about 70% of my taste back. Saliva is better but hard to say how much is back. I guess about 50%? I have decided I definitely am…
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DAMN CANCER!!!
Just had to vent to those who truly understand. Thank you.