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Hints for returning to work
It has been almost one year since my diganosis and treatment for the tumor at the base of my tongue. Prior to that I worked as a RN of hospice. I was healthy(I thought) and weighed 164. I now weigh 107 pounds and have been off work since last May. They have replaced my position due to the lenght of time I needed for…
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Tongue not healing after radiation and chemo
My husband completed radiation and chemo the end of January for tongue cancer. He is still experiencing major pain and is unable to eat due to the pain. There is still swelling and raw places in his mouth and on his tongue. He did great going through radiation and the doctor is not sure why the healing process has not…
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Next Phase
Hi All, I just wanted to give you all an update on my treatment plan. Went yesterday to do a followup with my Rad Onc. It has been one month since the end of radiation treatments. We had a really good talk about all my concerns and symptoms. He checked me out completely mostly looking for any lumps or bumps. All looked…
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Glioblastoma Multiforme Grade IV
My Mother has just been discharged from Hospital having experience a life threatening bleed during her Biopsy, here Gliobastoma cannot be operated on, and she is taking initially 12mg of Dexamethasone to be reduced by 1mg every two days until we find a sustainable level, she is given a median of 12 weeks, I am looking for…
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Anyone had throat debris after radiation treatment
My husband had tonsil cancer (HPV positive) and is four months out of treatment. He had his tonsils removed and 7 weeks of radiation along with 2 chemo treatments (they told him he didn't need the third). The last couple of weeks he has had worse than normal throat pain, troat swelling and his voice is very hoarse. He has…
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Stage 4 level A Squammous Cell Carconoma P16 POSITIVE SO HPV
Hi everybody i have posted on here before but after getting a couple of opnions i'm now going to be at MD Anderson in Orlando fl for all of my treatments i have met with all the doctors and they are suggesting 7 rad treatments on one side of the neck and Cisplastin once every 3 weeks so 2 maybe 3 chemo sessions they told…
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I've got a "rough" spot starting on my lower lip....
it isn't painful, but after Laralyn's thrush party, and then of course the normal stuff that can start in the mouth from rads and chemo, I'm paranoid.....is "rough" the beginning of something I should be watching...doing something about, before it becomes something else? The Onc gave me a thing of MuGard to have on hand,…
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Medicaid not accepted for my laryngectomy supplies?
HI all, All going fairly well lately. I finally got the right size Voice Prosthesis installed & I can now talk pretty good. That's the good news. I just had an appointment to meet with my Speech Therapist & she fitted me with a HME ( Heat / Moisture Exchanger )She gave me 2 starter kits that include all needed supplies for…
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Another Biopsy?
Cancer Team wants another biopsy to see if they can confirm HPV+, not sure why it was not determined with 1st biopsy which confirmed SCC. My question is do I really need to know if its HPV+ and what does it mean if its not? I understand reading blogs HPV seems to have good results, but unless I missed it, it seems the…
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Survivor Inspiration of the day!!!
Thought I would post this for anyone having a rough day and for those who are at the beginning of your battle! There is always hope!!! This was a recent post on the OCF website in there surviror forum!! Stage IV Tonsil CA "Ten years ago they cut the cancer away, then proceeded to nuke and poison any lingering little cells…
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Clear Pet Scan
All glory to God...I had my full body scan yesterday and will mark year since my diagnosis on May 13 and I got an all clear.I want to thank each one of you for your prayers and the constant support you give to me and everyone here on this site. Just knowing that someone understands how you feel because they have been where…
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Back Home and New Puppy is Home
Hi all: Got back from NC Sunday afternoon. Was a a good trip but rather chilly for a few days; now back in GA and we're having temps close to and low 90s! This is just May 2 I fear the worst heat is yet to come! Picked up Chargee Monday nite and he is now home with Sammy and me and doing well. Sammy is adjusting but will…
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where do we go from here and what to expect-3rd recurrance?
hi everyone, not sure where to start. So after the surgery which my mom had on 3/1/12 which was a 3rd surgery since diagnosis in nov of 2010 we were planning brachytherapy for the tongue. So when we met with the doc to plan the treatment of brachy he said that there still may be some cancer left in the tongue therefore he…
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Dyna-splint
Three years after rads the trismus in my jaw has not gotten much better--probably even worse. I can barely open my moth wide enough to take in a grilled cheese sandwich. I tried a Dyna-splint right after rads and had a lot of problems with painful spasms--so I sent it back. The docs are now recommending the Dyna-spint…
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Starting Second Week
Week 1 went incredibly well. All lab work was good and meds kept discomfort at a minimum. Most bothersome issue was the pain from the Nuepogen shots (for WBC count). Today at chemo doc increased the dosage (last week he did a smaller dose to ensure his kidney's could handle) so he's now at 60 mg once a week. Radiation, to…
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Tracheostomy
Looking for people that was left with Tracheostomy due to their Cancer. I'm a one year survivor from Laryngeal Cancer and was left with a trach. God bless
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Pathology Results from Operation
Got the results through from my dissection, tonsillectomy and BOT biopsy this afternoon. Everything completely cancer free. 35 nodes levels I to V, all the soft tissue from my neck, tonsil and BOT all completely clean. This was a really good outcome. Firstly this means the outside chance that I am one of these rare cases…
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Need info on suggested treatment - Base of tongue - 1 lymph node - Stage III
Hi all. I am 3 months out from my treaments, but I have some questions. I went to the MSTI Clinic in Boise Idaho (great people, great experience) but I keep reading where many people seem to have had two things I did not have (if I am correct). So my question is what do you all think?? I was diagnosed with Stage III base…
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21 days of fever and finally admitted to the hospital
Well they finally admitted my husband yesterday. He went to see his GP and he did the echo and said regardless of the results he was admitting him into the hospital, saying that he was worried. Symptons as of today: Neck Tenderness Tightnesss of the spinal cord severe fatigue fever up to 102 in the am & pm night sweats The…