-
PET Scan Clear!
I finished treatment in August of 2010, this week I had my "1 year" post treatment PET scan. I got the results today and it was all clear! It was a full body scan and not a trace of cancer anywhere. I wish all of you could have seen my wifes face. I don't post much, my wife, "noelles mom" usually does it but this one I had…
-
Cruelty to animals
@ to BP to help the gas shortage. Well the time came for my first normal BM in over a year and I proudly sat my butt on the throne, a smile on my face looking forward to my greatest achievement. Now I need to digress a bit. I must sat that I have the most wonderful cat ever. He is solid black and actually acts like a dog…
-
USMC - 236th Birthday
Just wanted to wish my Marine Corps Brothers a Happy 236th Birthday. Proud to have served, and proud for all of the others that have gone before and after me... John SGT, USMC ~ 1973 - 1977
-
Just Started Chemo......
Hi everyone, My husband just had his first chemo treatment that lasted 6 hours and came home with the pump. So far he's been doing pretty good and is on a break for about 2 weeks. Not feeling sick to his stomach yet however his mouth is getting really dry. He has been using the salt and baking soda mixture with water about…
-
PET not clear
Well the stress goes on. The PET shows the lymph nodes are clear but there is something still at tumor site, scar tissue, inflamation, cancer? doctor is not sure. He will do another PET in 3 months. The bad news is that he has a lot of symptoms for metastasis to brain so has ordered a CT of brain right away. Doc wanted a…
-
MRI or CT Scan
My husband has been having CT Scans for his checkups since he was first diagnosed in 2010. He is seeing new Doctors and they are having him take MRI. What is the difference. Is one better than other? Vsudd
-
Treatment is done!!!
Thank you everyone for all of your help and encouragement. After the Trans Oral Robotic Surgery (TORS), neck dissection, and 30 radiation treatments, I am sitting back and waiting for the radiation to finish its work. Today was my last radiation treatment. The biggest decision of the day was, keep the mask, or let them…
-
Wonder if I'm that weak or can others share similar stories
Love this site don't post very often but read and cry and learn everyday. BOT 3 and 35 with peg tube now 7 weeks out of last radiation and I still can't eat. I see others that did this without a peg and I am even now brought to my knees with pain when I try to swallow most foods. I can swallow fine everything works fine it…
-
Where'd my mullet go? Will it grow back?
Just kidding, I think I had a mullet once in my life and that was years ago in high school. So I took a shower today and to my dismay, my hair was falling out. They said I wouldn't lose my hair with chemo and at first I thought they were wrong, but then I realized it was coming from a patch on the backside of my left…
-
Modified radical neck dissection issues for an athlete
I had cancer in my thyroid and neck and had a thyroidectomy and modified lateral neck dissection on Sept 6, 2011. He removed 59 lymph nodes and 4 of them had cancer. I am a triathlete and was training for an Ironman that took place this past weekend. I didn't do the race because of many issues I am having recovering from…
-
To Dilate or not to Dilate?
Hi Everyone - my husband Sam and I are new to this site. He was diagnosed with Stage 4 Throat cancer in May; had a growth surgically removed that was just above his vocal chords and had some in his lymph nodes - no surgery there. He finished with his chemo and 37 RAD treatments 2 month ago and although his spirits are…
-
Trying something new
I have been tube feeding for over a year using Ensure. While I have been keeping my weight around 158 I wasn't gaining and I have been tired all of the time. I didn't want to bother my wife with trying to fix special blends because I thought it would be too much trouble. However she finally insisted I try blending foods so…
-
Techniques for coughing out mucus
I know this sounds rather flaky! But has anyone perfected the technique of effectively coughing out mucus without too much pain/discomfort? I managed to get a blob of thick green mucus the size of an avocado stone out last night. But nearly coughed my insides out. I would leave it inside if I could but it's impeding my…
-
Week 2
Week 2 of rads starts this evening @ 7:30, so far feeling good and eating well, all though I expect from everything I have read on this site that can change on any day. Linda
-
Second Round
I have been off of the pill chemo for two weeks now and I have to start taking it again today. I have been able to enjoy some good food and an occasional beer since my mouth/tongue soreness have pretty much gone. I suppose some or all of that will start to come back soon now that I am on another four week course of the…
-
Twitchy Lips and Earlobe Lumps
Yes..I know it sounds like a punk band from the 70's but... does anyone else have these (very minor I will admit, but would like to get rid of) issues and knows how to make them go away. 1. Twitchy Lips My lips feel like they are vibrating or twitching almost all of the time. 2. Ear Lobe Lumps I cannot put earrings in my…
-
Big day Monday
Next week is a big week, especially Monday. PET is at 10:30 am followed by ENT visit to check the knot under Jim's tongue. Wednesday is the radiologist for PET results and Friday is final message therapy for neck lyphaderma. Pray for Jim to rest tonight. He says the nights are worse because he wakes up with dry mouth and…
-
Neck dissection complete
Hello everyone, Sorry I haven't posted in a while. I have been bust getting back to my new normal. My neck dissection is complete now and the pathology came back negative: no surviving cancer, thanks to the team of Doctors at University of North Carolina's Cancer Hospital and of course, GOD. As of now I am cancer free and…
-
Extranodal extension/extracapsular spread? No radiation?
My husband (now known as FrankenBob since the incision of his neck dissection a few weeks ago looked slightly worse than Frankenstein's neck) had extranodal extension in one of the cancerous lymph nodes. Another node positive but contained. Cancerous lymph nodes are bad enough, but the extranodal extension (AKA…
-
mucus????
How long does the mucus problun last?? I have it bad when I get up It takes a hour to get It up then it is all through the day. I have took a head cold with draining??? Has anyone goy amy sugestions ???? Wishing everyone well. Robert
-
Giving-up
Do you ever feel like giving up? Sometimes I know that I do when the side effects just keep coming and it seems like there is no hope in site. Today I realize something that I guess I had forgotten and that is how much I love my Caregiver Wife. For some reason I was just thinking about the past and ever turn I made my…
-
Mugard
Hi, I am going to start a ten week program of continues 5 fu and 50 doses rad for tonsil cancer. I have read great things about mugard for mouth issues. Has anyone tried it? experiances? Any feedback would be great! Thanks in advance. John
-
Nephew Update
Hi all: First, want to thank all of my csn buds for your prayers for my nephew Brian. Second, please continue to pray for him. He was taken from the nursing home/rehab and admitted to the hospital yesterday to determine his weight loss. It wasn't an emergency moving; just that they don't have the capabilities and equipment…
-
how long have you survived after recurrance or second primary or metastasis after first treatment wa
would like to hear from anyone who experienced any of those 3....also how long after completing first treatment did you experience that?
-
Base of Tongue Cancer - Throat Cancer
Throat Cancer - Base of Tongue Tumor with 1 lymph node involved.
-
Raw honey to help reduce radiation induced mucositis and maintain weight...
(Dawn, I apologize if this info is already in the superthread, but please add it if it's not and you think it would benefit) A helpful member on CancerCompass recommended I drink slippery elm tea with raw honey in it every day as I progress through rads. I haven't found the tea yet, but I bought some raw honey the other…
-
Sweetblood was right
You have to love the Social Security Administration. Last week I received a notice to go for another SSA doctor appointment and in the same stack of mail was another letter cancelling the appointment. Today I check my on-line banking account and find a rather large deposit had been made by SSA so I assume I am approved for…
-
SLOW page and FB question
so is there a page on Facebook that people frequent for this group? I figured if so, it would be a place to check out info and not have to spend forever waiting for things to load. I'm limited in my internet time while at work (duh, I'm supposed to be working), but during breaks I like to see what's up, etc. If I could…
-
Too early to put up Christmas lights?
Funny Costco had Christmas stuff out way before Halloween was even approaching. Anyway, I get chemo next Wed, and rads are progressing so I'm gonna put them up in the next few days while I know I can and feel like it. In Canada, our Thanksgiving is in October, so there are no holidays now until Xmas. I guess my question…
-
Calories
I have to monitor the calories I take in , does anyone have or can recommend a good program that will allow me to do this. I have to maintain my weight and I know that thru the course of rads getting adequate nutriants, protein, and hydration is vital to my well being. The nutritionist I see recommended using beneprotein…