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Head and Neck Cancer

Archives for June 2010

Post Treatment Insomnia
I'm fairly new here so apologies if this has been discussed before. I'm a year post treatment from Chemo and Radiation and Haven't had a good nights sleep since. If I'm lucky I get 4 hours in a night but I also have nights when I get less than an hour. My Oncologist, who gave me as much Oxycontin as I wanted during…
strange symptom
Hi everyone. Has anyone felt an odd sensation in your feet when tucking you chin? It might be residual from the surgery, or damage from radiation to nerves, but when I tuck mu chin to my chest, I have a sensation in my feet that feels like the rug is being pulled out from under me. It's very odd. I just emailed the Drs so…
'The China Study' - excerpt on my 'Blog'
A combination of me having had to explain this passage to 'many' people and also a way to allow those interested to read part of 'The China Study' who haven't bought the book, I have copied a 12 page segment into my Blog Page which explains how cancer works and the effect of Animal protein (In this case Casein or Milk…
Possible Underactive Thyroid?
Hi all out there: First want to thank all of you for congrats on hubby's ent visit last week. Now, basketcase wife that I am, I have another question. Charlie is 14 months post radiation and 17 months post chemo. He had cataract surgery on May 3 and 17 (thinks it's nothing short of a miracle how well he sees now!)…
I know it is really trivial and meaningless...however, have you had problems with earrings after ra
Please accept my apologies for this very shallow post. With all that everyone is going through, earring questions are at the bottom of the list.. That being said, even though I can hardly eat and have all of the usual problems..I would like to wear both my earrings, but one ear swells up everytime I try.. Has anyone else…
1st Scan Clear!
Hi All. Haven't been on in awhile as my computer shot craps and I just got around to getting a new one. Received "all clear" on first CTscan last week. I know first scans show a lot of false positives. Hopefully this isn't the opposite - false negative (if there is such a term). More exciting for me is I finally ate after…
Waiting Game
Hi everyone, Went to see my ENT yesterday, he gave me the results of my scan and scoped me with one of those new scopes with the camera. He explained that it was a sugar scan and how the whole thing worked. He put it on a number system for me saying that when the results come back as a 10 or 11, that is probably cancer.…
First PET scheduled redux
I have a date for the PET/CT scan: 28 June. My first milestone! Fingers crossed. Steve, isn't yours coming up? Best, Mick
10 more to go
My dad has 10 more rads to go and 3 more chemos. He has been one of the lucky ones and has improved during the treatment. So far he has only lost around 10 pounds and still able to eat, but nothing has a taste. Can some of you let me know what to expect next as far as a time frame for appointments and scans. He already has…
My brother Paul has cancer
Yesterday, my brother Paul told me he has been diagnosed with tongue and neck cancer. The cancer is on the back of his tongue and he has one large lump plus 3 smaller lumps on his neck which is also malignant. He has, over the past 3 months, lost 30 pounds so when he told me that, I knew that the possibilities of it being…
Port out tomorrow woot woot!
Hi guys, Sorry I havent been on in a week or so, hope everyone is doing well, any updates anyone post on this thread. But yes, as the title states, I will be getting my port removed at 3 pm tomorrow!!!!! Any advice? I have been working like a rented mule these past two weeks, but I promise I will do better with checking in…
Start tomorrow...didn't see it coming...
Just to let you all know, Mark starts tomorrow. Just learned it today...thought we had until next Monday. Not the best coordination...it is what it is...start early end early. He will have 30 rads in 6 weeks with the 3 doses of cisplatin. I have been following j3rey's post of "getting started, what to expect" so no need to…
throat cancer
My wife has just been diagnosed with a tumor, and we are just before doing the biopsy stuff. Have no idea what to expect next. Has anyone here gone through this experience and if so, can you relate to me what is going to happen next. This waiting is the worst part. Oh, it is in the lyrnex sp?
My husband was terminated from his job - any advice
HI Everyone, My husband was just terminated from his job. The company where he had worked as a manager doing stand-up training and had to travel for the position, said if he could not be back at the office by June 1st then he would be terminated. They said they had fulfilled their obligations under Family Medical Leave Act…
Ear Pain after treatment and work
I am 4 weeks post treatment and for the last week or so I have been having some stong pain in my left ear, this is the side with the tumor. Also I have a question about work, how many went back to work and how many called it quits. Just currous, I have a very high paced and stressfull job and my brother in law does not…
Shoulder Muscles after treatment
I had a lymph node removed on the left side and 37 rad treatments ( last treatment Feb 9 2010)for cancer at the base of the tongue. Getting back some salvia, taste, eating a little better. The problem is my left shoulder now feels like I have BADLY pulled a muscle. If I try to use the mucles a certain way it pains me very…
Leukoplakia (sp?)
Had my 8 month checkup with ENT Friday and he used a new 3 chip scope to look in my throat. Old cancer site looked good but he spotted a couple of little whitish spots on my vocal cords. Called it Leukoplakia and said it was the result of heavy smoking or GERD/ acid reflux. I've never been a smoker and although I have had…
Can you swim with a PEG?
Can you swim with a PEG? What are some things the doctors don't tell you? Do's and Don'ts?
treatment started - what to expect next?
Hi everyone, It has been a little while since I posted. I am a teacher and the last weeks of school have left me crazy busy between work and home. My husband started his radiation treatments this week. (One week down, seven to go!) He has not really had any side effects yet. His docs gave him a rinse to start using several…
Depression
I hate being so alone and the doctors telling me how thankful I should be, "to be alive." Noway! How is it a blessing to have my children see me suffer??? I can never uncerstand why this has happened to me, since their are others who have snoked for more than a decade. My children struggle with my condition, and deny that…
What to expect after treatment
Hi Everyone, My husband was diagnosed in January with Stage 3 base of the tongue cancer with a matasis in one lymph node. His treatment consisted of full body chemo, one treatment every three week for three sessions. This was followed by 7 weeks of radiation, 5 days a week where one day each week included a chemo session.…
Low Blood Count Question
My dad was not able to take his chemo this Friday, because his blood count was 64 and the doctor said it needed to be at least 74. Is this something to really worry about. The nurses sais it is normal after 4 rounds and he just needed to get some exercise. Did this happen to any of you and should I be worried. he has 3…
boosting immune system
Hi all I have a question what is good as far as vitamin's and other things that is good for boosting the immune system and what kind of excercise would some of you recommend to start off with thank you and God bless
lousy news
Hey guy's got hit with the bombshell today, the cancer is back, but not from my original Head and Neck, I was diagnosed with Non Hodgins Lymphoma. Apparently this has no known correlation with my orginal cancer, I feel like a belong to the cancer of the month club! I have a spinal tap scheduled a week from now ,along with…
Sorry took me all day to post........good news so far!!
I am sorry it took all day to post.....I was a "mess" this morning when I went to the doctor but figured it was nerves. My doctor confirmed the one of course was a cyst. The second the doctor said came back as "lymphoid and follicular lymphoid hyperplasia"...It continues to say the "specimen is being forwarded to a…
Erbitux anyone?
We have decided to use the radiation therapy, but now we need to decide by tomorrow whether or not to use Erbitux. Anyone have any experience with it? what about having to stay out of sunlight during and after treatment? We are aware of the 2% heart attack during injection, and the acne rash any other complications? Thank…
Good New's!
Hello everyone! I had my post two month checkup with my oncologist & ear nose & throat specialist on tuesday. He went & took a look with scope down my nose & he could not see any trace of my tumor etc. Needless to say I am relieved. I decided there is nothing I can do about it anyway & said alot of prayers hoping for the…
Question about PEG tube
Hi-I need info on peg tube. Husband has end stage laryngeal cancer and down the road will probably need peg tube when he can't swallow anymore. I need to stay 3 steps ahead of everything. What kind of Dr. puts the tube in? Is it an out patient procedure? How do you take pain medication through the tube? Also how do you…
Tomorrow is my day...........wanted to say "thank you" to everyone
Tomorrow morning I go in for the results of biopsy.....(laryngoscopy). I will not lie to you-I am a nervous wreck. I have no idea how you do this...you all have so much strength. The waiting has been a roller coaster of emotions....and a nightmare. You have all "helped" me in your own ways-from trying to "calm" me-to…
Hubby's ENT check in A-OK!
Hi all: Just wanted to let y'all know Charlie's ENT check-in went great! He scoped him and said all that was there was scar tissue! I am so relieved and so grateful. Thanks for all the prayers and encouragement. He said to check back in with him in 6 months and also gave him a prescription for Wellbutrin to try to help…

Head and Neck Cancer

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