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Taste
After Radiation treatment how long for taste to come back
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hearing loss
Kevin had a follow-up appointment with the audiologist yesterday. Kevin had a baseline hearing test before he started chemo. The cisplatin chemo he had did affect his hearing, which is why they switched his treatment plan mid-way to carboplatin and taxol. The follow up shows that he has hearing loss in the upper range of…
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Advice - MO Visits spaced out?
Hi - pretty new patient here, started round 1 induction chemo (21 day rounds) for Base of Tongue IV on Nov 19 - round two on Dec. 9. Round 1 I met with MO every week and had blood work done. GI tract got fried (meds helped w/ pain) and developed an infection while white cells were tanked (antibiotics worked). Started round…
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complete esophageal blockage
Evan went to have his esophagus dilated today, but they found that it is totally blocked. They could not believe that they had let him go so long without being checked out. They have set up an appointment for this Friday to set up a day for surgery, yet they know that they won't be doing it until after the first of the…
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re: Advice needed on healing
I am 44 years old and was diagnosed with Acinic Cell Carcinoma back in September. I underwent a parotidectomy on September 15th. Because the cancer was aggressive and had traveled into the lympth node within the parotid gland, my doctor said that radiation was necessary. I am happy to say that I finished radiation…
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ropey saliva following chemo and radiation
As you can tell we are newbies to this site but I've noticed that there is a LOT of information out there from everyones' experiences! My husband was diagnosed with a strange cancer located at base of tongue with lymph node involvement, so he had chemo (cisplatin),followed with 36 rounds of radiation in 08 which didn't do…
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Tongue & Throat Cancer
Hi Everyone My boyfriend was just diagnosed with cancer of the tongue, stage IV tumor and cancer of the throat. Still in the early stages of everything. He has seen the radiologist, had his CAT and PET scans. Will see the oncologist and will see the nutrionist all this week. Don't have a set date to start treament yet. I…
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Just starting out
My father-in-law has stage 4a throat/neck cancer. He's in his mid 70's and is in the middle of his third round of chemo coinciding with his first round of radiation. His cancer manifested itself in a swollen lymph gland that doctors insisted was an infection (two needle biopsies were negative). After they opened him up to…
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suv what does it mean
We just got back the new pet scan report and i was wondering what this means.... Two new hypermetabolic lymph nodes in the right level 2 neck, 2A lymph node with suv 4.8 in image 224 and 2B Lymph node with suv 6.1 in image 220. Its the suv that i dont really understand Doctor is not very good about explaining things.And We…
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Had feeding tube taken out today!
I had my feeding tube taken out! And it didn't hurt one bit! Here I was worried for nothing:)Now I'm on my own. Sink or swim. I will still drink 4 Ensure a day, untill I get up closer to the weight I should be. Also, I have been feeling a little down. And I should be one of the happiest girls in the world! My husband…
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Senate Health Care Bill Would Allow Insurers to Limit Coverage for Seriously Ill Patients.
A loophole in the Senate health care bill would let insurers place annual dollar limits on medical care for people struggling with costly illnesses such as cancer, prompting a rebuke from patient advocates. The legislation that originally passed the Senate health committee last summer would have banned such limits, but a…
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Looking for Kurt (doitforoj)
Not sure if this is the way we do this but I sure would like to hear from Kurt (doitforoj) Kurt, I sure would like to hear how you are doing. I know by now you are are deep into your treatment and not feeling well but want to you to know I think about you and your family often. Keep grinding and hang in there. Mike
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First PET Scan
I have my first post treatment PET scan this Wednesday. Have never had one before and was wondering how long they take. Before my treatment I had 2 CAT scans with contrast that were done pretty quick. (Head and neck area only) This PET is supposed to go from my knees to the top of my head. Also, I have a prescription to…
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Question about feeding tube
I still have my feeding tube in, plus I am eating most foods. The problem is, is I'm not gaining any weight. Do I have to keep using the feeding tube untill I get to a certain weight. And do you gain weight faster by eating real food as oppossed to the feeding tube. Like if the feeding tube was gone and all I could rely on…
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scalp itching
I am on 3 rd week of erbitux and my scalp has not stopped itching, i have tried many shampoos any one have any ideas. going for 3 week of radiation wish me luck..tonsil cancer -tonsil and 2 lymph nodes removed. diane from wisconsin
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Thank you all
Thank you to everyone on the board. I just wanted to let you know that sadly, my husband passed away at 3:00 a.m. this morning. I don't think I could have gotten through the past several months without all of you.
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False salty taste for meat
I just have to ask this one. I've gotten a lot of my taste back. Egg nog actually tastes GOOD. Chocolate, not so much. I'm crazy on vegetarian soups. Fresh fruit is good, most sweets are not. But the one that kills me is beef. I have tried several variations of beef dishes, soups, etc., and I've noticed that anything with…
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When is the PET Scan done?
I completed treatment about three months ago, and I have been under the impression that the big sign-off comes when I get my post-treatment PET scan. I just saw my oncologist this week, and she said they don't expect to do the PET scan for at least a YEAR! She told me that getting a PET scan this soon would show nothing…
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Hondo’s up-date
Hi everyone just got back from seeing my oncologist, first I would like to thank you all for the prayers offered in my behalf, it is proof that God hears when his people pray. As you know my doctors were telling me about two months ago that they believe I need to try cyber-knife to remove what is left of the NPC cancer…
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Surgery w/ or Rad/chemo only
I was diagnosed 8 days ago, Base of Tongue cancer spread to lymph node. Cancer has not crossed the baseline, but it is big. T2-4,N2b. I am 60 years old. As a young man I was an infantryman in the 101st Airborne division facing violent death everyday. I am more afraid now than I was then, which is saying a lot. I live…
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Radiation Question
I just had a glossectomy to remove cancer in my tongue and a selective neck dissection to remove 33 lymph nodes. Although my surgical oncologist believes he removed all the cancer and the lymph nodes were clean, the cancer was beginning to spread to the nerves. Because of this, my surgical oncologist is sending me to a…
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Update on treatment
Again, want to thank everyone for their support on here. I just completed #22 of 33 rads and last tuesday had my 2nd of 3 chemo's with cisplatin. Today I think was my last day of getting of the chemo. Kicked in about Friday and spend the weekend sleeping and trying not to be nauses. (I.E. Don't move a muscle. LOL) I never…
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Super GOOD news!!!!
Hi everyone!! I have got the best news that I have ever had in my life!!! I was told on Monday that I am now cancer free!!!!! I just cried with happiness in the Drs. office at the cancer centre. This may sound weird but, I am soooo very relieved on one hand and then on the other, I almost feel guilty. Because I made it…
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thrush
middle of second week of radiation and 3rd chemo-erbitux- got thrush already am afraid about whats going to happen as everyone says after the 2nd week of radiation all the sh-t starts.. need all the help to get me thru this time, did anyone not have a feeding tube, and how did your feeding tube get placed if you had one..…
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Thought I was going deaf
I am in my ninth week out of treatment for Stage 1 Left Tonsil Cancer. Had surgery, then 7 weeks IMRT and weekly Erbitux. About 6 weeks out of treatment I noticed my hearing became affected and I wasn't hearing well as if my ears were blocked. I went to a GP and he said my ears were full of wax, gave me ear drops and said…
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Just Starting
Hi, I am a 59 year old male. I just finished neck surgery where they removed my tonsil, and metastasized squamus cell carcinoma glands and nodes. Went to the dentist today to get teeth in order then start Rad treatments in about two weeks. From what I understand it will be about the same as everyone, 5 to 8 weeks. The…
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Looking to purchase cans of Jevity 1.5 ASAP
Hello, I'm in Colorado Springs, and I'm looking to purchase any cans of Ross Jevity 1.5 that anyone might have leftover. Most medical supply stores are not open today, pharmacies don't carry it, and the hospital from which we received the initial supply of cans is not available for us today. If you have any extra cans that…
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1st follow up visit:)
Hi everyone! I am leaving today to go for my first follow up visit with my Oncologist. I am going on my 6th week after treatments. (35 radiation) My appt. is Monday, but it is a long 8 hrs. drive. So we have to stay the night. Please wish me luck. I'm a lttle scared. But I'm sure that's normal:) Cindy
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2 Weeks Out - Question about Nausea
This forum is so helpful - thought you might offer your experiences with something my husband is going through. He is 2 weeks from last of 33 rads and erbitux/carbo treatments. He is doing well. Food still tastes like krap so he is doing nutritional shakes only, no real food for nourishment, but getting all his calories…
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immune system after chemo and radiation
Hi all: Been awhile since I've posted anything; but wanted to know about immune system after chemo and radiaiton. My husband finished his chemo in Jan. '09 (with two carbos in March) and finished his radiation in April. His PET scan on 9/1 was extraordinary! (Praise the Lord!) His three month check in with his radiation…