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speach/swallowing therapy
Hello, I have undergone reconscrutive surgery of my tongue because of cancer. It has been 4 months and I am cancer free and completed radiation therapy. I have two problems. First, I have very thick saliva and a lot of it. Does anyone have any sugestions to help with this problem. I am working again and this is very…
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thick saliva
Hello, It has been four months from tongue recontruction surgery. The flap has schrunk and has a provided a gap between the teeth and the new tongue for fulids to puddle. All treatments are finished, no chemo (neg nodes!) but I did complete six weeks of radiation thearpy. This has created salivia with a rubber consistancy.…
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what now? getting off the feeding tube.
My boyfriend was diagnosed with throat cancer in Sept. He had three chemos and 40 radiation treatments. The cancer is gone (Thank God!!) but what now? His taste is back (for the most part)but he can't swallow. His salivary glands are shot so his mouth is always dry and foamy. He aspirates when he tries to drink or eat.…
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Concerns about nutritional value from feeding tube products?
While they may work well for most people, the Novartis products that were prescribed for me I found wanting. I have seen on other forums that many have concerns about the nutritional value of these canned feeds. For me they were almost toxic. I felt sick from them. They were my only source of nourishment so I had to find…
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anyone using salagen?
My rad-onc has offered me salagn to preserve salivary gland functioning during/after rad therapy, but his experience with it is mixed. Has anyone tried it?
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need information on locked jaw from cancer
I am new on this board and am looking for anyone with information regarding a lock jaw as a result from tonsil cancer. I would like to hear from anyone that can relate to this problem and if anyone recovered from the condition.
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Carotid body tumors and follow-up
I have had surgery for bilateral carotid body tumors or paragangliomas. I was wondering if anyone has any advice on what I should be watching for in terms of this showing up anywhere else. After researching on my own, I am now finding that I should be doing follow-up care. Anyone with any advice, please let me know. I am a…
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are there alternatives to radiation?
I recently had squamous cell cancer in lymph nodes. I have a strong sense, based on extensive testing and the results of my surgery, that radiation therapy may not be necessary. As far as my doctor is concerned, radiation is the obvious choice, but given the consequences I'm not sure I'm ready to accept that. I'm looking…
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Metastatic paraganglioma -How are you doing?
Hello, Just wanted to find out how everyone is doing with this disease. It's been 12+ months since I first logged on. My husband is doing well and has been stable for the past two years now. Love to hear from other survivors and see how you all are faring with your treatments and therapies. Take Care...Beth