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Colorectal Cancer

Archives for March 2021

Vague CT results
I have not been on the board much lately. I’ve been lurking, keeping up with everyone but not commenting. But now I need some help. So its been 5 years since my first diagnosis, stage 3 In 2016. Radiation, APR surgery, and chemo. Recurrence in left lung 2018. VATS to remove lower left lobe, chemo. Las t week I had my 9…
The port
I got the port out and it feels so good!
19 Years Later!
Hello CSN Friends! Just wanted to share hope and inspiration to anyone starting this journey. My surgery was 19 years ago today! Diagnosed Stage 3C Rectal Cancer with 10 positive Lymph Nodes at age 40. Looking back I remember how scared I was as I had a young son age 10. Now my son is all grown up and getting married this…
March Madness
Hope everyone is doing well. If you know American sports and/or colleges and recognize my forum screen name might guess that I am fully invested in college basketball right now, which brings me to the first topic, drinking alcohol. The only time I drink is when there is some kind of big time sporting event in the evening…
PET/CT Scan vs Colonoscopy
I could sure use some input. Diagnosed Stage IIIc Colon Cancer 2007 surgery and chemo PET Scan 2 weeks ago showed "Findings are suspicious for 2 areas of active malignancy in the sigmoid colon. 1st focal uptake near anastomotic site measuring at least 2.1 cm max SUV of 9.1 There is another hypermetabolic focus superior to…
CEA Increase worried
I posted last week about my husbands back pain. He has been seeing a dr for and is currently going to a chiripractor once so far and has some medical massages on the books. In the meantime his worry that the back pain could be cancer we communicated the concern with his oncologist. She reassuringly said it is hightly…
FDG Uptake
So after my dad's last pet scan he has been confidently telling people that he thinks his cancer is gone . Based of the fact that his last pet scan showed uptake going down . Yet his oncologist still insists he has cancer but since his oncologist has been wrong before we just don't know . So my question is has anyone had…
Update
For me this has been a rollercoaster ride. After feeling like my oncologist of four years was giving up on me, I sought a second and third opinion. I am now being treated at City of Hope, and have met with thoracic surgeons. I am currently on my 8th round of Folfiri and it has reduced the size of all three of my nodules on…
Update
So I started the chemo for the lung cancer, and lucky me, I've experienced almost every side effect possible. The worst of which is that I am losing my hair. It's started to come out in clumps, so tomorrow is "Shave Anne's head day". I've been pretty upbeat through the whole rectal cancer treatments and surgery. I kept my…
Happy Birthday MaryCarol5
I know you haven't been on the forum for a whle, but I still would like to wish you a great Birthday and let you know we are thinking of you. Have a super day. TRU
Hair....
So, I'm looking for advice and/or opinions based on your experience. I had significant thinning of my hair throughout chemo and radiation. Finished that all up in mid-February and am now waiting for surgery to take place in mid-May. My question is --- how long until I can return to getting my hair colored? The gray is…
"I'm back"
Hello to all, I havn't been posting for years but so happy to have a place to come back to. It is so nice to see some of the "old timers" . I mostly lurked but will try to be more supportive this time. Diagosed with Stage IIIc in 2007 ,partial colectomy surgery, chemo etc. Rough ride but beat all the odds. 2021 March Pet…
Long term chemo brain ?
When my dad was on chemo the worse side effect was chemo brain like it was bad he didn't know even how to get home sometimes . Now he's a few years away from chemo and I am noticing that he still struggles to find the right word sometime . Also he forgets names and he struggles to remember sometimes and really has to think…
Liquid Biopsy Question?
Hi Everyone, Just as a recap, my wife had colon cancer diagnosed in Aug 2019. Had tumour removed, then did 4 chemo treatments with FOLFOX, then they discovered 2 small liver mets in October 2019. They removed those and then she did another 8 chemo treatments with FOLFOX. Her last chemo was May 2020. She has had 2 NED scans…
Getting nervous
Hello, it's been awhile since I have been on here. I guess after going through everything with my husband it was hard to keep seeing stuff about cancer but it's always there like now. My husband started having some back pain, he has always had some back pain due to a fusion he had on his lower back in 2006 but it was after…
How do they compare scans?
So, this whole time, I have been thinking that they measure the tumors on the new scan, then compare it to the typed out notes from last radiologist. But this scan makes me wonder, are they looking at this one AND the last scan, measuring both, and making their own findings for both scans?
Covid Vaccine and false Cancer tests
Interesting! https://abcnews.go.com/Health/wireStory/swelling-covid-19-shots-cancer-false-alarms-76280958?cid=clicksource_4380645_3_heads_hero_live_headlines_hed
Fighting Dragons or Letting Go
Those of you who have followed me know I am as real as I can be. I wear my emotions openly for the most part...too much pretense and fear in the life. I wanted to reach out and just ramble. The steroids are keeping things at bay. I hate taking them but I'm just waiting for my oldest daughter to return from the Hawaii trip…
About those scans...
Well, the whole body nuclear bone scan can back as " no evidence of osteoblastic metastatic disease", the spine and lumbar MRI just appears to have visualized skeletal structures and found spondylolisthesis of L4 on L5 due to degeneration, and the CT PET with tumor imaging from the skullbase to the upper thighs said " no…
BRCA 2
So today we meant with genitics doctor and they let us know my dad's tumor did have a BRCA 2 gene mutation and no one told us . There running more tests on my dad to figure out exactly what it means but I am curious has anyone had experience with the gene mutation or know about it ? Does it make my dad harder to treat or…
About to ditch my ostomy supply company!
For those of you with ostomies who order supplies online- what company do you use (U.S. only) and are you happy with that company? Thanks- Kelley
Got my first dose!
I got my first does of vaccine for covid today! It feels so good that soon I only have to worry about cancer :)

Colorectal Cancer

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