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Colorectal Cancer

Archives for June 2019

Whirlwind
The next 10 days are going to be a whirlwind. I had a liver resection in February and in March a PET scan showed a liver met that wasn’t there 30 days before. The plan was to see what 4 rounds of Folfox & Avastin would do to the new tumor. Unfortunately, I did not tolerate the oxalyplatin so for session 4 it was Xeloda &…
DPD deficiency..another life lost
I switched over to the liver forum yesterday and was saddened to read of a member's story about the loss of her husband due to DPD defiency. By the time it was discovered he had it, it was too late. My husband had it as well. He suffered severely and expereienced horrible side effects that destroyed him from the inside…
HAPPY BIRTHDAY, KIM (Annabelle41415)
It's party time on the forum Kim is having a birthday. WOO HOO ! Dearest Kim, I hope your day is fantastic from the minute you got up to the minute you lay back down again. HAPPY, HAPPY BIRTHDAY ! Tru
First Appointment W/New Oncologist
I had my initial appointment with my new doctor yesterday. I really liked him. He spent 1 1/2 hours just listening and talking with me. He truly listened and was genuinely interested in every detail of my care from the start to where it will go from here. He did not try to influence me on taking chemo. My oncologist in SC…
Afinitor (everolimus) Chemo Pills
Mom has been on many different chemo and surgeries. She has stage 4 colon cancer mets to liver. Last chemo was Stivarga which she was on for 2 cycles and the CT scan showed tumor growth in the liver. We've tried all the common chemo for colon cancer so there's not much options let. Now the oncologist started us on Afinitor…
A Happy thread
Please share your happy days. Your happy pictures. You happy thoughts. Your joy. Happiness is sometimes elusive when you are going through treatment, and especially when you are newly diagnosed. A happy thread is here, to show there is joy and hope for those neck deep in treatment, when things look dark and dreary, and all…
Inspiration
The pic I uploaded to my profile is one of a day that was full of joy and happiness. I uploaded it in honor of my husband and his fight with this God awful disease. You don't know him. If you did, you would know that he fought his battle with the disease with everything he had. He did it with more grace, dignity and…
Stivarga
Has anyone taken this drug? Does it work? What are the side effects?
positive cologuard test
Hi all, I recently had a positive cologuard test which I took at the request of my primary. Now I have a colonoscopy scheduled this coming Friday. I had my first colonoscopy done 5 years ago and it was a complete disaster. The prep made me very sick, my colon did not clean out completely even though I followed the…
Finally today is the day supposed to discuss treatments
I realize my cancer is slow growing but I have had such anxiety at tumors growing while no one seems to be in a hurry to discuss my treatment options with me. I sent message how anxious I am so they assured me today I would be finding out about possible treatments.
Numbers Numbers Numbers
I have said it once and I will say it again.....I HATE NUMBERS! Jim's CEA is doing well small drops and that makes me so happy but on Friday, we got a call, his potassium numbers went down....way down.....hovering at severely low down, 2.3 (aka severe hypkalmeia).....Naturally they wanted to admit and he didn't want to go…
Manapart
Haven't heard from you in a while and just wanted to know how you are doing. Have you had anymore updates on pathology or any recent doctor appointments? If you are still here lurking on the boards, we just would like to know how you are feeling as you went through a lot of surgery. Continued healing. Kim
Depression kicked in..................
Years ago I had a personal situation in my life that one day literally overnight sent me in a department of anxiety and depression. I eventually seeked a professional help and it made things sonewhat better. Some things took place later on that were very significant and the matter of depression and anxiety was resolved. It…
New Oncologist
I guess I am "attached" to you guys here, lol. I had an appointment with my family doctor here in the mountains after I got settled back in to update him and hopefully get him to monitor me so I wouldn't have to travel back to SC for scans, etc. He was wonderful and admitted that he would prefer me to be under the watch of…
Update- surgery last week
Hello all. Been away from the discussion boards because I needed a mental health break leading up to my surgery. Here's my quick update. Surgery went extremely well. It was the proctectomy with coloanal anastamosis. My family said surgeon actually did a happy dance in the consultation room post op. She said she had more to…
Endoscopy nurse with colon cancer
Hello everyone, I'm Andrew. Ironically, I am an endoscopy nurse at a hospital and see, unfortunately, colon cancer quite a bit. I am 34, and wow was I shocked to receive this diagnosis. Last September, I had a few weeks of not feeling well. Eventually I developed RLQ pain, and after a few days had a CT (helps having a…
So we get to add a new Dr to our giant list
because the moron I am married to ( said with love and a little annoyance) did a dumb thing. We have to go to the wound center. Luckily I know everyone there and they are amazing because my Dad was there almost every day for years. One of the nurses came to his room and stayed with my mom when he died, she loved him so…
Cancer come back?
I had surgery for colon cancer 4.5 years ago with no chemo or radiation, and my CEA's and labs show no problems. However, I have had an umbilical hernia repaired with the cancer surgery, and several months later a ventral hernia repair, both with synthetic mesh. I am having a CT scan tomorrow for possible adhesions or…
Help. Rectal cancer. Now radiation and chemo 5 days a week
My partner was just diagnosed with rectal cancer. The tumor is close to the anus so they recommended 5 day a week radiation for 6 weeks and portable chemo that he will "plug" into a port using a take home machine and wear it 24 hours a day M-F and then have it undone and start over the next week for 6 weeks. Has anyone had…
Pain in port
I had my port flushed yesterday. It had been about 8 weeks or so since it was done. I have not had chemo since the end of December so it does not get used. Today I feel an ache where the port goes into my artery in my neck. It’s almost like twinges. So it doesn’t really hurt, just is kind of throbbing. Has anyone else had…
Lyrica and gabepentin
I had fairly extreme neuropathy issues after my 2nd infusion of oxalyplatin...constant stinging, particularly in my hands. Some of the kind souls on this forum told me to make sure, not just the nurses knew, but that the doctor knew. Infusion 3 they took it down 20% and the neuropathy got worse. I said no more, onc agreed.…
Had pain in hip for a year, bone cancer discovered 3 weeks ago
I haven't been on the forum much lately due to stressing out over many new developments. I learned 3 weeks ago that I have a "lytic bone lesion" in my lower pubic ramus - at the part of the bone that hits the chair when you sit. A lytic lesion eats away at your bone, so it looks like Swiss cheese and makes your bone…
No Regrets
My profile pic is from an outing with my "boys" this past Friday to a beautiful park near my home. We hiked and then spent the day swimming at the base of a waterfall. I couldn't help but think how this moment would never have happened had I continued with mopup chemo. I would have been too sick and weak or worse yet,…
Hope this isnt too personal...
Now I'm reading that the surgery. Chemo and radiation can Cause erectile dysfunction. Anyone have experience with this? Is it more temporary or permanent? My husband is only 47 and I'm 40. What else do we have to deal with?

Colorectal Cancer

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