Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for May 2016

Can I borrow a shoulder to lean on?
Hello all. I'm post-port. Just like all of you shared with me, it wasn't bad at all. Logistically, it was a whole production like surgery but the procedure seemed like hanging out with the radiologist and nurses to swap tips on where to get the best fish and produce. Yes, that's what they talked about while I was in my…
Further update on Jeff (Janderson1964)
Jeff asked me to let you guys know that he is still in the fight. His pain is under control and he has asked his doctor to put him back on Lonsurf. He tried this chemo before, but only for one round in the last three months, so giving it another shot makes sense. Please send your prayers, good vibes, hope, and whatever…
Another post surgery update
I had my post surgery consultation with my oncologist yesterday. She agrees with my surgeon that right now as far as surgery, scans and pathology show there is no sign of any cancer left. That said, if there are tiny microscopic drop cells still hanging out they are to small to show up. With my history after 3 times it is…
CEA Numbers Question
Question on CEA numbers... In December my dad's CEA was 14. After 2 weeks of radiation on his thyroid it went down to 8.6 in January. At one point, he said it was 125 - this was well over a year ago. He has not been on chemo. Also, even though he has two small mets in his liver, liver function tests come back awesome -…
Good news from pathology report
Hi all, Getting released from the hospital today. The surgeon just stopped in to let me know the pathology report showed clean margins and no evidence of disease in the 19 lymph nodes he removed. Hopefully this bodes well for the future. I will continue to post from time to time. Wishing you all the best. Ellen
Belated Birthday wishes for our lovely Easyflip/Richard
Richard's birthday was yesterday, and its not that I forgot, its just that I didn't sit down long enough to post. So, Richard. Feel the love, and know that we wish you a Happy Birthday and a very happy year ahead. :( I can no longer post my emoticons. Must check with the powers that be, to find out why. SUE
Panic Attacks? Anxiety?
I'm finding that now that I'm feeling pretty good and living almost normally when something good happens it makes me anxious as well as happy. It's like I've lived with so much bad news and things going badly for the past fews years that when something good happens I feel like it's a magnet for something bad to happen…
Been a while...
So the last time I updated, things were okay. He was depressed. About a week later I was visiting and he had a stroke (or a seizure, I'm not sure). Lost the left side of his face/upper body. We call 911, they come, take him to the hospital. We get to the hospital, and it was like nothing had happened. Then they did an CT…
Post Surgery Appointment
Appointment with my surgeon went well. He was astonished I was off pain meds, just taking a Tylenol once in awhile and was walking so well. In fact he told me I was amazing. Some of his patients half my age don't recover so well. The staples are out all 89 of them. 2 more weeks of being careful of stairs. 1 more month of…
Janderson1964 update
Better late than never. I just finished making the biggest decision and change of my life. As of last Friday I am retired. I now have the same BCBS I had through group insurance but now I am getting it through the Affordable care act. We still have the tailor shop for income and I am in the process of obtaining disability…
Anticipation
Hi! So after 2 1/2 weeks of radiation/chemo for very low stage 3 rectal cancer, I had to stop treatment. It turns out that it worked so well that the radiation burned through the wall of the rectum and through the wall of my vagina resulting in a rectovaginal fistula. I will spare you the details of the effects of this....…
My Scan Results 15 Months Following Surgery
One Post Or Reply
Then I cannot do jack all. Nice upgrade.
How Accurate is a PET Scan?
I saw my family doctor today. We were discussing my situation and I mentioned that my surgeon had said that the PET scan had showed that the spots in my lung were likely cancer but they weren't certain. My family doctor agreed. I didn't grill him because I had other things to ask him but I'm wondering. Just how accurate or…
For those with a HER2-positive mCRC
(Tho probably most of us don't get tested for HER2 which is more common in breast cancer-which is why a breast cancer drug is now being suggested: http://medscape.com/viewarticle/862774 Link doesn't seem to work as you need to be a member of site but study cited says Herceptin has proven very effective in mCRC involving…
Cannot Post
Trying again
Celebrating TWO YEARS NED
Today I recieved the results to my lastest set of blood tests, and my CEA (a good indicator for me in the past) is 0.9. Now I am two years out from my Liver Ablation. Happy? Indeed I am! SUE
The Waiting Is The Hardest Part
Well kind of. Scans done today and waiting. Bloodwork done and I have results, other than CEA which is the one I want to see. Turns out a few CRC types were waiting, including yours truly, for testing today. We spent some time putting some minds at ease for newbies and their family. CRC people rock :)
New to group - survivor
Hi everyone. Just found out about this board. In a nutshell - February 2014 - Went to ER with extreme pain in my right side. Doc thought it was my appendix. Small incision...couldn't find the appendix as it had been swallowed up by a mass. Split my belly wide open and performed a resection of the colon taking the mass out.…
Understanding lab and pathology results better
Hello everyone; My wife had a small orange size mass removed from her colon a month ago, the pathology came back saying the tumor was cancer (20 of the 24 lymph nodes came back cancerous as well). The Oncologist stated she has stage 4 cancer and once she heals from her surgery we would start chemo. His plan was to approach…
How good can come from sad
I followed Stephen Sutton's short life, impressed and motivated by his determination to do good with the hand he was delt at such a young age. Diagnosed with CRC at 15, dead at 19; but wow, what a legacy he left behind. Of course, we are all not able to make such a huge, newsworthy impact, but we are still able to make an…

Colorectal Cancer

Discussion List