Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for April 2013

CAM: Hydrazine Sulfate
John hopefully you will provide some information here, also perhaps Tony. I know you have both mentioned this supplement. ------ NCI site detailed information: http://www.cancer.gov/cancertopics/pdq/cam/hydrazinesulfate/patient/Page2#Section_27 NCI overview: Hydrazine sulfate is a chemical compound that has been studied as…
The "Dirty Dozen" and "Clean 15" of 2013 if what you eat matters
www.ewg.org/foodnews/summary.php
If You Hear Maniacal Laughter From The Southwest
That will be me. As hubby grew progressively weaker last night, I had to call our son to come back & get him from the chair to the commode. His whole body was becoming more & more swollen. I had noticed a dramatic physical change when I picked him up from the hospital, but this was getting worse. So, I made the decision to…
IBS
As well as having mass in colon Dr. Thinks IBS is causing the horrible pain.Does anyone have suggestions on what could help feel better if it is?
Hard choices
Well, after 8 months of non stop beating up I have decided to stop treatment. With the horrific weight loss I've suffered and unable to regain any of it, I just want to live out my life without the side effects of chemo. What really had boosted my strength in just the past few days is my lady friend Marie has some for a…
Surgery to remove mass in colon
Can you give me any advice on this surgery.What side effects are they.How long to heal.Am I going to be able to eat normal foods?Dr, will remove piece of colon with mass.he will do la oscopy if possible.
Tony -- Hoping your son's MRI results were ok.
If you get a chance and feel up to it, please check in. Sincerely, Cynthia
Second opinion ,I am so scared
After having 3colonoscopys and scope and cat scan,I seen another dr. Today.We talked about mass that was found in colon wall.This dr says it needs to come out.I am scared out of my mind.Said he would take piece of colon out with it.hopefully their is no Cancer under mass.other dr. Did not get deep enough for a good…
Still in hospital
Had to go to the ER on Saturday morning because I couldn't pee and I was in so much pain. My blatter was hard as a rock and I could hardly walk. I was also so tired it took all my energy to just get out of bed. Anyway my wife said wewere going to ER and I knew that was the right move even though I dread it. This time the…
OT, But This Really Sucks!
Hubby is supposed to get out of the hospital tomorrow and I am sick. Last Friday, I started to feel achy, so I left the hospital, came home & went to bed. Lived with fever & chills all weekend and a steadily increasing need to urinate every hour. I thought maybe it was the crazy electrolyte stuff I had back in Jan. so my…
Second Opinions Lung mets- specialists - how to help
Hi everyone, After all your wonderful responses to my first post, I would like to ask you for advice. My partner has coloncancer IV, originally diagnosed with mets to the liver. The most recent full body pet scan showed lesions in the lung, three on the left side, one to two on the right. We are located in europe and he…
Bowel movememts
I seem to have bowel movements every time I urinate or close to it. Not a lot but a little. This was not so bad before I started maintenance chemo. After treatment I am constipated - when I get over that I seem to go all the time. Has anyone else had this problem.
Relief from pain in the butt
Day 6 since chemo started and in my husbands words his butt is on fire! "a cross between a hot poker and pool acid" every time he goes. So dear friends, any suggestions for relief from the pain? Thanks, alex
Folfax reduced treatments from 12 to 6
Hello everyone, newbie here. I've been searching all over the web for information on people like my husband. He was diagnosed December, 2012. Right hemi-colectomy, 2 feet of colon removed, 13 lymph nodes. Stage 2 with no lymph nodes involved, large tumor removed with resection, very successful. Oncologists and all other…
Phil64?
Anyone hear from Phil lately? It looks like the last we heard, he was going for tests.
Husband's surgery tomorrow
My husband goes in to have the rectal tumor removed tomorrow. He is not thrilled about this since he's been feeling so well lately and is afraid that this is going to knock him down and out for awhile. He's been working since his diagnosis in August, with the exception of every other Friday on treatment days. The surgeon's…
Costs of Conventional vs. Alternative Therapies
-- Cynthia This seems a useful discussion ... I'll start .... my only experience is that of having standard medical insurance through my husband's employer when he was diagnosed. As in most standard U.S. policies (I think) there is a max out-of-pocket expense. In our case it was $3000 annually, thus after we paid the…
Colorectal cancer
Hi everyone, I have been reading a lot here and would very much like to post here now myself. my boyfriend has colorectal cancer stage IV with mets to the liver at initial diagnosis. In the course of his treatments, the mets on the liver shrunk and he has had numerous (difficult) surgeries to remove them and also ablation…
Postcard from Gallipolli turkey and the GCMAF conference in Frankfurt
Just saying Hi from Frankfurt airport as family and I take off to istambul for a week for ANZAC day dawn service at Gallipolli cove. Its an australian thing. I have been advices to break from immune therapies for 3 months to allow my immune system to rebuild, so its a good window to catch up with family and friends and not…
Colostomy post-op nightmares
Hi everyone, I am re-posting something that I asked on the United Ostomy Association board, because this has been a great and supportive community so perhaps I will get good answers here too. So instead of a ileostomy, my mom got a colostomy. The operation was last Thursday, without the removal of the rectum and anus, so…
5th year,the golden ring?
May 20, 2008 I was dx'd with cc, I was 50 years old. June 7, 2008 I had an emergency resection at Mayo in Rochester, MN Stage 3b dx, 6 months of rough times chemo Take down of colostomy in Feb 2009 I have a new granddaughter! Born Oct 24, 2012 to my son and his wife. Charlotte Luana I continue forward, rather rising to the…
Is Gleevec suitable for me as a prophylactic?
I had a polyptetomy done for cancer in the sigmoid (large intestine). The polytectomy was sucessful and a followup CT scan showed no spread of the cancer i.e. liver, lungs etc were all clear. A full blood scan showed perfect results. Can I take Gleevec as a prophylactic ? Would appreciate any advice. TIA.
Question on PET SCAN
Hello all, I am a bit confused and allot nervous looking for some input. I had colon cancer treated with a re-section in 2009. Since then all colonoscopies have been clear. I also have what they call a nodule in my adrenal gland which we do a CAT scan on once a year to be safe. The CAT scan is a head neck and chest view.…
TONGUE, HANDS AND PALM OF THE FOOT TURNING BLACK
Since my mom has just started her chemo (on her 2nd cycle), we are noticing that her tongue has this black patches, and her hand cuticles and foot are turning black. Mom is taking Oxalipatin, Avastin and Xeloda 3,300 mg. I wonder which drug is causing this?
New possibility in the fight?
Jackson Lab Researcher: 'Incredible Breakthrough' in Cancer Treatment04/18/2013 Reported By: Tom Porter Learn More.... About Tom Porter Send Email Maine scientists are celebrating what's being described as potentially "an incredible breakthrough" in cancer treatment. Researchers at The Jackson Laboratory in Bar Harbor have…
just a hug to all of you!
... from Strasbourg, France. Enjoying some days off (everything) before husbands next check on May 15th. After a few wonderful spring days with sun and much missed warmth ( it should be spring here in middle Eurooe since some weeks but winter is tough this year) today cold rain and wind has returned. Thorsten spend the day…
One of our old friends posted an update and my PET good news, too
dianetavegia posted a picture on Facebook with her oncologist saying her PET scan a week or so ago was clear with no concerns. She had a liver resection just over a year ago. She's over 4 years since Stage III dx and 1 year since the small met was removed. My PET was also clear. Haven't gotten my CEA back but I'd just had…
Update on Jason....
Hey everyone, sorry I haven't been on in a while. I just wanted to let you all know how Jason is doing. He had his 3rd chemo treatment Wednesday & everything went fine....still no bad side effects. (thank goodness) He is gonna start getting Avastin w/ his next treatement which will be Wednesday. He had a follow-up…
Mammogram
I'm scheduled to have my mammogram on Thursday but I'm as nervous as this was a scan. I've felt my breast so much in the last 3 months that I've got it aching trying to find any little thing wrong. I'm getting to the point where I'm just so afraid of any doctor's appointment and my anxiety level is so high. I'm just…
Erbitux and Irenotecan did the trick for me
I just saw the liver surgeon this morning, I am off of chemo for the next 5 weeks, and then off to surgery. I am very excited, just a few weeks ago I quit the chemo because it was hurting my liver (blood results) and would have rathered died from slow cancer then quicker liver failure, onc talked me back on it, took a…

Colorectal Cancer

Discussion List