Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for December 2012

Seeking Advice
Last summer, I was diagnosed with autoimmune hepatitis. This seems to be complicating my CRC follow up. My CEA, previously dependable for me, appears no longer so. I have been told my slowly rising CEA is due to the hepatitis. Scans of my liver are also confused by the hepatitis. I am concerned that what I previously…
Port Removal without Anesthesia
I'm 6 months post chemo and with a clear colonoscopy and CAT scan, I can get my port out. I hate the bloody thing, but my surgeon says that she uses no anesthesia. In fact she implied I was a bit of a baby for being nervous about it. She says no local is needed either since she cuts along the scar tissue and there "isn't…
Appreciate any help
Hi all I’ve been lurking for the past few days while awaiting diagnosis. CT Abdomen Pelvis (with contrast) and colonoscopy showed a 7cm malignant looking rectosigmoid lesion along with 6mm sigmoid polyp and a tiny 3-4 mm rectal polyp (likely Hyperplastic—hot biopsied). The initial (most certain) diagnosis is Sigmoid c. The…
New Historic Low for My CA19-9 Test
"74" The reference marker is good for anything under <55 But, this is the very best number I've been able to achieve in just over 8.6 years of fighting. In my early days, I was in the high 600's....over the past year or so, I've still trended between 174-260. So, as I was reviewing my new CEA level...2.8 and trending a…
long term stage iv w/o liver resection?
I've read a lot of survivors that say they have had liver rescetions and that has contribued to their long term, but i'm wondering if the dr. says that it is not possible (ofcourse there is hope the chemo shrinks enough so that it is possible!!!) is chemo enough to keep a person longer term?!
going it alone
New to posting, but I have been following everyone for a little while. I have stage 4 in remission for 2 years!! no treatment, feeling really good. last few years heave been very difficuly physically and emotionally- you have to count in the crazt menopause. Anyway, my normally wonderful husband has been very distant since…
Severe dehydration on folfox
Has any body has severe dehydration whilst on folfox. My husband has just been hospitalized as he is not recovering from his last treatment. He has his next one(no.5) in three days. They have put a saline iv up and he is being rehydrated. His blood glucose is all over the place. From talking with colleagues this can be…
I've been 'graduated'....
Only once a year appointments now with the doctor!!! She was emoting over my labs, my scans....EVERYTHING....she said "You know, for a person who has never had cancer, you are healthy...but for you, after 2....WOW! this is fantastic!" Dancing! Hugs, Kathi
Hi Mates it is FRIDAY here,any interesting plan for the weekend?
I'm going to Christmas shopping , do you ladies have any suggestion for my wife? She deserves a great present . Also will be having lunch on Sunday with my family except for my sister an husband who are in London . What about you Mates?
CEA Increase
Devasted. Cea went up from 7.9 to 14.7.
Two Chemo Agents May Thwart Immune Response to Cancer THIS COULD BE THE ONE
http://www.cancernetwork.com/gastrointestinal-cancer/content/article/10165/2117999 the good bit below, I will email this to me oncologist and immunologist. we live in exciting times. Chronic inflammation has been previously linked to cancer initiation and progression, including over-activation of IL-1β. The differences in…
Scan result
Mentioned recently was in for scan results this week along with several others. Was all clear. It was first postop scan since amputation and as such was really meant to just document a baseline to compare future scans to if worried and not expecting problems but still doesn't stop the anxiety that they will show…
What to expect after stent insertion ?
Hi, Some background: For last two years, my mother is undergoing treatment for stage-4 cancer. She has had in total 23 chemo sessions and two radio sessions so far as cancer detected three times now. First it appeared on surface of liver and abdominal region that followed surgical removal and chemo sessions. Than it…
Scan results...
Mixed bag, but of course the "bad" is getting my attention. I have rectal -- mets to liver. Last scan showed liver mets dead...caput. That still looks good. But my diahrea/constipation has increased, as well as frequency -- kind of like when I got dx 10 months ago. Anyway, the onc said it looks like the rectal tumor has…
Cards are forth coming
I had my Christmas Cards printed up yesterday and the overseas ones are already for postage. (Reckon Pete's gonna have to wait for him to get back to Oz to get his.) I still have to stuff and seal the rest. I'd wanted to write something personal on each, but my hands are still a bit too tender. I've assigned Lulu the task…
Update on my mom
Hi everyone. My mom recently completed round 7 of chemo of an expected 12 and surgery after that. As i'm only the 18 year old son, i'm not fully filled in with the details, but i'm pretty sure she is receiving three chemo's- folfox, oxiliplatin, and another one that i'm not sure of the name. From rounds 3-5 she didn't…
Three years ago tonight....
My dear friends, As many of you know, my Rick passed away on Thanksgiving morning. But it was exactly this date and time three years ago that Rick was initially diagnosed with colon cancer. He had arrived home after spending a wonderful day with his son at a Boston Pops concert. He brought me home two signed CD's by the…
Scan had concerns - very discouraged
Well returned from my CT and Dr.'s visit and radiologist had not read report. She said she had concern about the liver -a spot in the same area of last tumor removal. The liver surgeon had already called her to say he could do surgery again. She mentioned some type of radiation procedure to burn the tumors starting with an…
Need some advice - Dad diagnosed with stage iv
Hi all - been following this board for awhile now reading everyone's stories and have been finding it a great sense of positivity seeing how many ppl have stage iv and are doing well and even NED. My dad is 63 and up until this summer has always been very healthy. Started with what we thought was IBS, then they said rectal…
This Is For All You CareGivers Out There – For Those That Gave ALL)
I just can’t sit still without offering something from the heart… I was sitting here trying to do my work at work and in the background, my mind is whirring about all of the other deadlines and commitments I’ve got for this weekend with the upcoming estate sale - and in the upcoming couple of weeks or so as I try and move…
been in the hosptal 8 bays now
wet for petscan reuslts last thursday, greta new on what thw cemo has don but this lower bowel in fection is bad went in to take care of te problem via surgerie,,,,,,canoot do a tinng due to danage that med has cause, i now sit with a huge hole in my abdomen with no real end in sight.....cant eat or drink@!11 bummere peepps
Another Kick in the Balls
No typo in the subject title. I got my CEA today and it jumped again for 613 to 937. We are keeping in mind that this is after only one treatment of Zaltrap, the problems I've been having lately and accounting for dead cancer cells. I've also been pretty concerned about the severe and increasingly painful edema I've had in…
CEA up a little... concern???
Greetings I had a blood test on Monday, and received the report today. my CEA level over the past year went from 65 down to 8, then down to 2, then down to 1.6 which was about six weeks ago. (after 24 weeks of Folfox6 & Erbitux) this week is week 12 of the Xeloda/Avastin... and my CEA level today is up a little bit. it…
I'm pretty excited...a personal best.
So I realize there may not be a category for this in the Guinness Book of World Records, but maybe there should be, given how many of us are dealing with cancer for years on end. As of today, I have officially made it for one whole year without any kind of surgery. Since the fall of 2009, I've been disemboweled five times,…
"And Now For The Rest Of The Story"
Hello All, I have been mostly silent for the last month. I have been swept up in another horrible tornado, just as I was back in 2008, when Johnnybegood uttered those words "Mom, I have colorectal cancer." At my hubby's insistence, we had not told her the news. She is feeling better, and her platelets are rising, and may…
Scansiety.... 1st scan since pre-surgery
I am happy and apprehensive... The insurance co agreed to pay for my ct scan on Thursday...happy. My first ct scan since before my surgey is scheduled for this Thursday... Anxiety. I don't know if I will find out the results before my next appointment with the oncologist... My appointment is Christmas eve...I hope I don't…
I missed the Christmas card list
but please know that I wish you each a healthy, happy, Merry Christmas. I think of all of you so often, even though I don't recall all the names, everyone is always in my thoughts and prayers. Stay well, stay happy and please stay healthy. Marianne
New drugs for my aunt Irinotecan & cetuximab
Irinotecan and cetuximab anyone hear of these? Any experiences. I'd like to hear anything anyone has to say on either or both of these please.
what to ask the surgeon - updated - holding off on surgery
Meeting with the surgeon tomorrow -after my husbands first pet scan. He's had 6 folfox treatments...only 3 with avastin. We will be asking about his experience with the surgery. He seems to be a good surgeon, all speak highly of him...he was referred by a doc friend. another local hospital does davinci but this one does…
hospice
HI! I was wondering if someone is put on hospice, is there any chance that they are ever taken off it? I was put on hospice two weeks ago and I have gained strength and just curious.

Colorectal Cancer

Discussion List