Colorectal Cancer
Discussion List
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How often do you get your CEA #'s and when to get PET... Still in chemo phase
Ok...just a couple of quick questions.... How often does your onc check your CEA? My Dr ran it right before starting chemo and I asked him to do it again in Mid-September. it will be November 1st tomorrow...my next office visit. I am going on treatment #8 of Folfox out of 12 next Tuesday., My other question is when did…
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Hey Pete - "Got Coffee?"
Know what an avid fan you are of coffee and enemas… So, here’s an alternative therapy sure to prick your interest… It’s organic – and all natural… And comes from coffee beans digested by elephants… The beans are then picked out of their own poop…sun dried…and sold to make gourmet coffee… So, whether you’re in Baden…
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had or have - whats your view
So had 3month scan- everything clear and bloodwork good. Been this way for 16 months now. Just curious for those who are NED do you consider yourself as having cancer or that you had cancer? Semantics but just wondering.
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Surgery
My daughter's friend, the mother of 2 small children, will be having surgery for colon cancer Oct. 31 at 7:30 am EDT. Will you please send positive thoughts her way? Thankyou Connie from the uterine board
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Prayer
Before I start, there is a caveat: this is a religious post. If you're offended by this you are certainly free to click on the back button and not read any farther. I strongly believe that we are all free to our own opinions, but we are not free to force them upon others. I have no desire to offend anyone but only to offer…
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3 month check up
All is well! Blood is good, will get CEA tomorrow. Next visit in january the day before my 54th birthday... CT the week before that! Wish the MRI on my shoulder would have been as painless this morning!
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ted talk electric field therapy
dear friends, something a little different, any takers on this one ? http://www.ted.com/talks/bill_doyle_treating_cancer_with_electric_fields.html i wonder if this will help colorectals, i hope so! My wonderful American Integrative Doctor Todd Lepine sent me the link. If you are looking for one of the best in the USA i…
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PET Scan and other stuff
I'll be going in for my quarterly PET Scan on Thursday morning. I really cannot wait to hear the results in light of some recent developments. Over the past six weeks, my CEA has jumped from 218 to 404 then dropped to 402 before jumping again to 444 last week. My alkaline phosphotates have also been pretty high above the…
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Those in the path of mega storm Sandy - Please check in
I hope that all have weathered this terrible storm well. Here in north most Virginia we seem to have come through it without any serious issues. Power has stayed on, for which I am extremely glad. If you were in the path, please take a minute and let us know how you are doing. Hugs to all, Marie who loves kitties
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In hospital
Haven't posted for awhile. Got treatment last Tuesday and it has been really rough. Since Friday had vomiting and diaria. I thought I could fight it but just got to weak. Wife talked me into going to eER and got admitted. Had an infection but think they are slowly getting under control. Pray I get strong...have to go and…
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Three years on
This was post was inspired by another poster on here who has recently just come out of treatment. Touch wood (my head) I am in my third year of remission from stage 3 cc, 10/11 lymph nodes infected. There is life after cancer, although the little bugger doesn't ever leave your mind, you will slowly find you can start doing…
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USC visit and NYC plans - update at botton of first post
Hi Friends, We have been in So Cal for 4 days now and today **** had his appointment with Dr. Lenz at USC. Dr. Lenz was happy to see **** looking so good, 3 years and 10 months after diagnosis with 3c. He said that **** did amazingly well on the Folfori + Avastin for almost 2 years but that is was time to change the chemo.…
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My George - RIP
Well, it was not to be and my precious husband George Chris Gerges passed away cradled in my arms today like a newborn baby, 10/29/12 at 3:22 p.m. Our hearts are broken and we are totally devastated and lost. You come home knowing it is over and just walk from room to room not knowing what to do, it is heartbreaking,…
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Avastin on CBC this Morning
Hi: Did anyone happen to catch the program on Avastin (and other expensive drugs) on CBC's White Coats Black Arts this morning? Some provinces in Canada cover Avastin (British Columbia for one) but most don't because it is so expensive - $10,000/month they said. I know it isn't covered for me here in Ontario. Anyone out…
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Another arrow in the quiver?MGN 1703
cancernetwork.com/colorectal-cancer/content/article/10165/2107224 More info available as well at the first item on today's (10/29) issue of: oncologypractice.com (May need to enroll, so try this:oncologypractice.com/oncologyreport/news/top-news/single-view/immunomodulator-mgn1703-cuts-risk-of-colorectal-cancer-progressing/…
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Scan results TRC105 and port issue/question ********* UPDATE*********
Last scan at the end of cycle 5 trial drug TRC105 shows stable for the most part, a little shrinkage in the biggest liver tumor. Stable is good, more shrinkage would be better, however, we will take it. Our concern at the moment is in Robert's port...been trouble-free since day one. With the avastin and trial drug (works…
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TIMELINE FOR CHEMOTHERAPY AFTER COLON AND LIVER RESECTION
My daughter had colon resection August 13th , then liver resection Oct 17 th . all went well, now she wants a vacation, is 7 weeks after liver resection , 16 weeks after colon surgery too long of time. She has never had chemo at all yet. Just wondered if anyone out there knows, thanks
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Hitching treatments
Thought this might interest some people. pasted from curetoday.com Suzanne Lindley has become so busy that her husband, Ronnie, added a tracking device to her cell phone so he could keep up with her—not the life you’d expect from someone living with metastatic colon cancer. Just recently Lindley was in Florida for the…
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first day chemo since 14 april 2011, fasting today, praying, crying and smiling
still recovering removab, up all night to the bathroom getting over it. just like reconnection poos. my bp dropped to 60/30/60 which is about as low as one should go, so the treatments take you close to the edge here, which is what i want. so subject to bp and liver enzymes bouncing back i should be on low dose systemic…
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surgery tomorrow
need prayers ... surgery tomorrow ... my surgeon said since she couldnt find tumor she will just have to mop the place and cut the lymph ... love to all
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Steve? are you home yet?
I have been so busy with my own life- new granddaughter, Charlotte, born last Thurs, 5 weeks early- That I am thinking I missed the post you were home and getting used to your new world~
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Thank you to those who shared your thoughts with me - my talk from today's service posted on my expr
Hello, all - Thank you so much to all of you who responded to my post last week sharing your thoughts about Breast Cancer Awareness Month and pink ribbon mania. Our "Surviving October" worship service was this morning, and was an inspiring and emotional service for our congregation. I've posted the text of my talk on my…
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Hurricane Sandy - may all be safe
This massive storm is forecast to bring very strong winds, torrents of rain and considerable flooding to a good portion of the US east of the Mississippi. I hope that all who are in the potential field of this storm have made their preparations for power outages. Special prayers and thoughts for all at this time of…
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Back to work
After 16 months, Pat returned to work last Wed. He is still receiving CPT-11 and Erbitux every other week and he should be scheduled for a PET scan soon. He is tired and still has the infamous Erbitux rash but his spirits are good. They are starting him off slow at work and Pat is hoping he can be back in his truck and on…
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Update on my George:
Well where do I start. George is in big trouble. We went into the hospital last Monday and things are not going well. His poor body is just beat up. He is experiencing kidney failure, horrific diarrhea even while not eating anything. His heart is irratic giving them a bit of trouble, his breathing is labored although…
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Nana B
How you doing? Haven't seen you post lately. Hope your job is going good and keeping you busy. Just thinking about you. Kim
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neuropathy
My husband is having a terrible time with neuropathy in his hands and feet. My question to those of you who experience this is whether or not we can expect improvement and what period of time it may take.
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Fever whilst on regorafenib
My husband has had two cycles of regorafenib but in last few days has had fever on and off of 38.3, is also very tired, weak and a little disorientated. Anybody experience of side effects of this drug?
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Colonoscopy results
After 2 days cleansing and numerous sleepness nights of worrying, the day was there. Another colonoscopy, wondering about the pain in the lower right side. lt went smoothly and the end result is, Queecky clean colon or what is left of it. Do not have to do this again then in 3 years time. So relieved. The pain is probably…
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newly dXed.
How can we reach the new cancer patients so we can soften their fears and give them a hint of the future for them? I think our stories can help, encourage them, and perhaps allay some of their fears, but how do we get to them?