Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for December 2011

Article on Dr. Burzynski
I know nothing about the author but thought this was interesting: http://scienceblogs.com/insolence/2011/12/personalized_gene-targeted_cancer_therapy.php?utm_source=networkbanner&utm_medium=link The clickable link genie is more than welcome to fix this link!
Dopamine added to 5-FU?.....interesting article
medicalxpress.com/print242316296.html "Neurotransmitter might improve cancer treatment:study" and two similiar articles on tumor/genetic sequencing: medpagetoday.com/tbprint.cfm?tbid=29952 and medicalnewstoday.com/releases/238482.php
Update
all polyps benine yea but dr did say they were pre cancer so colonoscopy next year .One big worry not bad now whew take care michelle
It's Dutch St. Nicholas day today!!!!
http://www.stnicholascenter.org/pages/netherlands/ Hugs to you all! Kathi
Extreme Fatigue on Camptosar???
My dad was on oxalyplatin(?), then they stopped it for awhile and switched him to just lecuvorin/avastin/5fu, that combo quit working so now he is on Camptosar. He is extremely tired, falling asleep without warning, ect. His last chemo cycle ended last Wed. It is now Monday. This is his 2 round of this. Is this normal?…
Twin Cities new support group
Our new group meets again tomorrow. All affected by the colon, anal, and rectal cancer world are welcome, whether you are a patient, caregiver, medical professional, or nonprofit fundraiser. Anne Carlson of Get Your Rear in Gear will speak at our next meeting on 20DEC. This has been rescheduled from tomorrow night because…
Hi I'm back !
It's been quite hard one week at the hospital .It was a varicose vein hemorrhage in my esophagus due to hight portal pressure , already put rubber bands on the vein and some portal vein anti inflammatory pills . Hope this is sorted out forever . Hugs family !
Surgery---stunned
Since my Stage IV diagnosis the doctor has said I would never be a surgical candidate, too many tumors in my liver. I have been doing chemo for 14 months. I know that I've responded very well to the chemo, as the doctor was actually noticeably excited by my last CT scan. At my last oncology appointment the doctor said "how…
Xeloda and dizziness
My husband has been on Xeloda now for 4 weeks (except weekends) and he is dizzy a lot of the time. Just wondering if anyone else experienced this. His oncologist was concerned so I'm assuming it's just a side effect. Michele
cea levels
just wondering if it is normal not to have the cea level tested during the routine bloodwork...my dads onc has not tested his since start of treatment.. he is now starting his fourth round tomoro.
Husband Half Way Done
Hi everyone. My husband is half way through his treatment. He has done 6 of 12. We notice that he is not due to go get the 7th treatment until the 19th of DEC. This means that he should get a treatment tomorrow. He also gets a follow up with his Oncologist. Is it normal to skip a treatment half way through? Last follow up,…
Lower back - dull ache
After about 15 minutes of house cleaning, my lower back, I mean low,, like above the gluteus, starts hurting. Like a dull pain. I don't know if it's bones, or what. But this has been going on for a long time, over a year, It makes me sit down and rest until it passes. It could be bending, mopping, a lot of walking. I am…
3 year anniversary
Yesterday was the 3 year anniversary of my diagnosis, it is weird the way I will start to get stressed when it gets close to that date, even still. Yesterday though I bought a bottle a champagne and celebrated still being alive. I feel that every year I am alive steals one year back away from my cancer. Thank you to…
Wheezing after liver resection
Hi everyone! Hope everyone is doing well. My husband has his liver resection onWednesday and has wheezing bad all day? The nurses don'tseem concerned but he has never has asthma before and he isn't able to breathe deeply. He is able to walk but has hard time getting up and down. They took 10% of his liver but the incision…
Cant find much info....
My friend just called me with the name of her Cancer... "Adenosquamous" of the Colon. I cant seem to find much information on this. I gather it's a bit rare. Does anyone now anything about this "Villian"??? I would appreciate any info at all. Thank you so much... Liz
just merry xmass and love
Dear friends, First merry xmass to everyone and if you sent me a card, thanks. they are next to my juicer. we are all real people with real lives and real challenges from all over our beautiful planet. i hate the false names. i like using first names but thats me. the present i want for myself is awareness and insight and…
Health Insurance - Open Enrollment
A thought just occurred to me: it is now Open Enrollment for health insurance plans for many businesses. Now is the time to review your options, and see if you can change for January 1. Many United HealthCare plans have a Cancer Resource Services plan that will pay for you to go to certain cancer Centers of Excellence -…
Lynch Syndrome
After being diagnosed with Colon Cancer (at age 31) I ended up being diagnosed with Lynch Syndrome (at 32) as well. I am wondering if anyone knows of any online support groups for those who have had hereditary cancers. It is believed I was given the Lynch mutation from my mother, who passed away at age 50 when I was 23. I…
Liver resection and chemo following
Hello and happy Friday- Tony and I visited UCLA this week and he is getting set up at the liver cancer center with an amazing Doctor to have liver resection surgery very soon, within the next 10 days. I am a nervous wreck, as I know many of the other wives or caregivers on this board have expressed. I am thankful we have…
my friend...
My best friend has had surgery they took part of her liver. later they went back in and removed some stuff from her colon and lymphnodes. After all this, they now say...Oh, you had stage 4 colon cancer. It didnt start in your Liver! She is now back in the hospital. having scans, looking for more! she is getting ready for…
cea dropped
update. My cea came back 3.7 from a 4. yea!!! also, since my feet now look like Rocky's face after a fight, i am done with chemo. Yea!! CT in jan so i have a month off from everything. yea!!!! I have my Christmas present, now am praying everyone else gets the news they want to hear. Hugs to all, Judy
Something tells me I am back in the fight ...
It has been a little bit since my last post, but I have been lurking and reading post pretty routinely. Anyway, I finished treatment in April of this year and have had clean scans since with a normal CEA. However, over the past couple of weeks I have noticed some blood streaks when I empty the bag and I have had the same…
Note on sending cards....international is more....
For our friends in the US, it's standard mail rates, But, for our friends in Canada it's .80 per ounce. Our friends in the U.K., Spain, and Australia it's .98 per ounce... Oh, and it's good to put U.S.A. after your zip on the return address... (sigh, from a confused person that doesn't know WHAT country she's in...*smile*)…
Hi mates it's FRIDAY any interesting plan for the week end ?
I'm in the hospital nothing important but a bleeding ulcer caused by old chemos hope to be at ohm on monday!
tcm really helps lung cancer, maybe good for those with mets
Below is a very interesting about tcm and lung cancer i just found on the rgcc website. i posted it on the lung board, but them i remembered we have got lots on our board fighting mets to the lungs so i thought of posting it here. hugs, pete ps last post for today, its just i have been very very busy getting organised for…
starting hyperthermia with iv vit c, thank god, what a nice xmas present.
god works in mysterious ways. i got news today that i can start down melbourne to iv vit c and hyperthermia. its a 12 hour drive, i may take the kids and our little 4wd motorhome as i think the protocol is 6 sessions over 6 weeks. i will know more on monday when i call to book appointments. now i think i can relax this…
Last Post so Take Care
It's been quite a while since I posted here. For those of you who don't know me I had rectal cancer stage 3c. 1n 2006 usual treatment radiation/chemo/surgery/chemo then NED until summer 2010 about four and half years later. Colon cancer stage 3c again but this time in the ascending colon by transverse with three localized…
Got PET scan results today...
...And not what I really wanted to hear.Appears my cancer has metatisized to lungs. Multiple 5-7mm nodules in lungs all new compared to my last scan. Most have mild FDG activity with a SUV max of approximately 2. Onc basically said I'll be on indefinate chemo. Had already done 12 rds of 5/fu and now wanted to put me on…
Round three and the hair is falling
OK, I was hoping to keep my hair during the 12 rounds of FOLFOX but I might have been wrong. Started the third round on Monday and today I noticed the hair coming out. Oh well.... Now it's just a question if it's a little bit or enough to warrant chopping it all off and going bald. How did you fine folks deal with this ? I…
Is PET scan a must?
Is PET scan a must at the end of t the end of adjuvant chemo therapy treatment for rectal cancer stage IIIc? My mother had surgery and then chemo + rad. She hasnt been thro PET scan till now. chest x-ray + CT - abdomen was taken before to confirm no metastasis. Will it show up some false positives? will it have any…

Colorectal Cancer

Discussion List