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Colorectal Cancer

Archives for December 2006

An Extra Giggle for KathiM, Musiclover and Mark
Well, Somebody obviously has to keep the North-South CA rivalry going. Here are some giggles for our friends from LA. From San Francisco with laughter, Ying ================================= Christmas in Los Angeles is always interesting. Seeing carolers dressed in Bermuda horts...groping their way through the smog…
Ho ho ho - the Christmas Giggles
Hi All: Here's wishing you a Merry (Please circle one: Christmas, Kwanzaa, Eid al-Adha, Hanukkah, Winter Solstice, or Bah Humbug) and a Happy New Year filled with peace, love, hope, laughter, clear scans, rising WBC counts, dropping CEA counts and many NED naked dances! I also want to add that I will also be celebrating my…
Postcard 2 From China
Hi Guys: Sorry I've been AWOL for so long. I work for a SW company, and we just put out a new version of our SW. I've been writing manuals, and it really put me off writing anything else :) . Also I've just been working really hard for the last 3 weeks. So sorry for the missed giggles and the late postcard. They've been in…
Twelve Days of Christmas
Good Site: www.crivoice.org/cy12days.html
MERRY CHRISTMAS!!!!!!
Merry Christmas and a Happy New Year to all the wonderful people on this board. May God bring good fortune to everyone.
CT Scan Results
Hi All: I had my first ct scan on Friday since my diagnosis. I had it a day early because I wound up in the ER with severe abdominal pain. So, they did a ct scan and couldn't find anything wrong (except cancer of course) so it was determined that the Avastin was causing my pain. I'm much better now. Anyway, the results of…
Toxic Megacolon
Mark's docs are mentioning toxic megacolon -- and he seems to be presenting with more and more of the symptoms. Has anyone had it? If so, what was successfully used to treat it? I'm going to get up EARLY to meet with the doc during rounds tomorow. At any rate, if anyone has dealt with this I'd really appreciate your…
FOLFOX + Avastin
Would appreciate advice from folk who have been on this combo. I have done a course of FOLFOX previously (completed 11 of 12 cycles). Experienced many of the side effects associated with the oxaliplatin (o joy). What new can I expect with the additition of the Avastin? My oncologist has warned me of possible risks…
Catching Colds - good or bad?
Hi all, I was wondering if anyone else gets nervous when they get colds. I just got my first one since finishing treatment last spring. It worries me because I know that gettting a cold is a sign that your immune system is overwhelmed. And cancer is held at bay or eliminated by our immune system by my understanding. But…
CEA :-(
Well, I guess the naturopathic method isn't working for me. My CEA has climbed after 3 solid months on it. More like 3 and 1/2. I have the cat scan Jan 2, but based on this I already know what it will say "all lesions show small growth." I will probably resume chemo one week after I see Dr T on Jan 3. It's enough to make…
PETSCAN CLEAR, SURGERY OVER WITH
Hello everyone. Got the news this morning my petscan was clear. THANK GOD AND EVERYONE'S PRAYERS. I had that kyphoplasty done for the compression fractures on my spine. Turns out I have 3 compression fractures. I got home late last night from the hospital. UPon being discharged My right foot blew up. So now I had to have a…
FRANTIC
Hi, Just wondering if anyone has heard from Fran... I have been wondering if she received her results from her scans? Praying everything turned out good for her. Gail
a little nervous !!!!!!
hey guys, i am a litle nervous because i am going to hospital for my surgery in a couple of hours. i guess it is normal, well i put everything in the man upstairs hands. happy holidays to all the semi's be well never, ever give up !!!! BRUCE
clincal study
Hi,all. My husband is coming home tomorrow from a liver ressection that was succesfull. He is considered cancer free now but still have to go to more 7 and a half months of chemo. It is a clinical study, and we are wondering if anybody in the group had to go to such a long pos-treatment or if the fact that Sloan wants us…
Pseudomembranous Colitis
Hello all! Well, the c. diff and all of it's toxins seem to have left 'the room', as it were, but Mark now has pseudomembranous colitis. Frankly, we can't much tell the difference! Both create profuse diarrhea. Now he's on potasium and such, as this has been going on for 11 days and even IV fluids 24/7 aren't keeping him…
Anyone w/Stable liver mets??
My dad has been on FOLFIRI + Avastin for 16 months with his Aug 2005 dx of stage IV Colon cancer w/inoperable liver mets (many of them on both lobes of liver) . He had a little bit (20%) of shrinkage in March 2006 cat scan but since then it has been "no change..."no change"..."no change"..."no change" He has gradually been…
Primary Tumour removal
Your advice please... It is now 9 months after diagnosis of StageIV colon cancer. I have had 6 months of Folfox & Avastin, and with 3 months rest, not bad blood test results, I am off for a colonoscopy to assess me for removal of the Primary tumour in the caecum.... in January. Who has had this done? What would you…
Brain Cancer - PRAYERS NEEDED
A good friend of mine mother's was DX with a primary brain tumor and had surgery on 14 Dec 06 and went home on 16 Dec 06. She had an MRI switch indicated that is was very bad and that shey may only have 18 weeks to live, but when the Doctor performed surgery he told the family that it did not look as bas as he thought, now…
I am ready to change my diet
But I need some help :) I have Quillen's book and Frahms but I am just overwhelmed with all the info. What should I do first? Can you share juicing recipe's and supplement info? I feel like I need someone to take my hand and guide me through this. I have been fighting stage 4 CC for over two years now with just some little…
Mixed Message Today...
Hi Everyone, Well, today my mom (stage 4) had her 9th Avastin treatment. She was originally scheduled for 12, but is headed for surgery to remove the tumor on her left adrenal gland. She must be off the Avastin 6 weeks before they will do the surgery. Therefore, that is why she is will not be continuing with the Avastin.…
Another Question....
Okay so the onocologist called me back. The ultrasound on my husband's kidneys showed nothing, I asked what his CEA level was finally and it was 1.1 doc said that's good. Well of course I didn't ask what is the norm for that blood test if there is one. Does someone know if there is a range that is normal for the CEA. Also…
CAT scan results...
Hi everyone, I just want to let you know that my dad (diagnosed a year ago with stage III and then two months later stage IV with liver mets)is still NED. We got the good news today. His colonoscopy was clean also. For those who don't know, he finished his chemo treatments three months ago. We were very nervous about this…
Chat
Well gang I have been trying to get in on some chats but am having some problems with my java stuff. LOL this old puter is like its owner. (Got some issues). I guess I will get there sooner or latter. hehehe maybe later. But I shall keep trying. Anyway I wanted to wish all of you Happy Holidays. Hugs and well wishes to you…
Show you love them...MAKE A WILL!!!!!
I have not been posting lately, because a phone call last Thursday afternoon turned everything upside down! My EX-husband (daughter's dad) was found dead in his room where he was contracted for a computer job. He left without a will, or any other advance directive. My daughter being of limited processing capacity, guess…
Two Years
Hi all, I'm at the two year point and so far, so good. I had a follow-up with my oncologist on Friday and he said all looks good so he "graduated" me from 4 month visits to 6 month visits. I guess I should be ecstatic...my wife is. But I don't seem to feel that way. I'm feeling a bit more guardedly optimistic. As a recap…
Has anyone taken Xelox instead of FOLFOX
Hi All, Question. My husband starts chemo on the 3rd of January. Was researching and found an article of a phase III trail that says Xelox is as effective in delaying disease progression as FLOXFOX-4. Do you think this could be an option for my husband (dx stage II perforated the wall of colon). It just seems it would be…
How long can one have an iliostomy?
Sorry to hog the board but I've got a lot on my mind and I think they are important questions. Mark had a temporary iliostomy when he had rectal surgery in Feb.'06. At the time the goal was to reverse it but since he has developed mets in the liver and lungs (and he is inoperable), I don' t know if he'll ever be able to…
Hyperthermia shrinks tumors
There are numerous studies in this country proving that hyperthermia decreased tumors and pain in cancer patients. I am intrigued by this especially after a recent visit to Mexico to see the clinics there. This treatment is used in several of them. It was alarming to me - the body temperature is raised to 107 + but after…
Scary back pain, vague answer from Dr.
Mark has been experiencing some ferocious back pain lately. He has a bad back, has for years, so this episode may actually be caused by his back going out. I emailed his doctor nevertheless and he informed me to take Mark to the emergency room if he had 1) weak and/or numbness in legs 2) incontinence and/or 3) worsening…
Mark back in hospital
Well, Mark has landed himself back in the hospital. The c. diff has created so much diarrhea for so long that the dehydration was starting to up his heart rate and BP. So, we're back. I suppose the 'good news' is that we are way past his deductible for the year, so it's 'free', he has an enormous room with a view of 10…

Colorectal Cancer

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