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CP4 ~ Stacys Days Of Our Lives Video
Hi Everyone, On the opening night of CP4 we did a dedication to Stacy Gleason to celebrate her 5 years cancer free. My son Andrew made it and I hope you all enjoy it. Also Andy & I did a video of our lives just to share some of our past and to have some good laughs. Stacys Days Of Our Lives…
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CP4 ~ a poem for stacy
Hi Everyone, At the opening reception of CP4 ~ The Stacy Gleaso Celebration a beautiful poem was written from Jane (stage4mom) that was very moving. Anyway I just wanted to share it with you all and to thank Jane also. I have over 500 pics and a video will follow in a few days when I can get my son Andrew to help me. As…
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WHAT A RELIEF
I just got back from the onc and there is no spread of cancer to my bones or my back. I guess I'm just a wimp when it comes to back pain. I now can look forward on this chemo regiment and kick the cancer right out of my stomach! Away I go!
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re; Linda...btrcup
Hi all. Linda asked me to pass the following on to you all. She had us worried for a while. I know Scotty was watching over her. Linda writes; All went well with the surgery. No cancer!! Thank God! Please pass this to everyone for me. I'll be home for a week and don't have everyone's addresses on my home computer. Thank…
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Light at the end of the tunnel...
Hi everyone! I have been reading here everyday, but not posting much....just taking it all in. I am down to my last 5 weeks of chemo, and I'm so happy that it's almost over, but I'm beginning to feel a little nervous. How do I know if this chemo worked for me? I haven't had too many bad side effects at all, well, maybe a…
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Cofactor instead of Leucovorin?
Has anyone used cofactor instead of leucovorin when getting 5FU? Cofactor is in trials currently, but not approved yet by FDA, I believe. Cofactor, as I understand it, has the same stuff in it that leucovorin has. It works with the 5FU to kill the cancer. But the cofactor does not have to be metabolized like the leucovorin…
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Support Groups?
Don't know if it's appropriate to correspond with you good people now that I've lost my husband but want to let everyone know that my prayers continue for those afflicted with this terrible disease. I never had my life impacted by cancer until my dear husband. My heart is breaking from the loneliness I feel without him. He…
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False Positive Pet Scan - Has this happened to anyone else?
Where to begin... My dad has stage IV colon cancer (dx 05/02). In 2003, his colon lite up on a pet scan, so the oncologist ordered a colonoscopy - clean. In 2004, his colon lite up again on a pet scan along with 2 liver mets. Oncologist ordered another colonoscopy - clean and he had surgery (colon biopsied and reattached -…
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Oh boy, let the fun begin
Hi all. I just wanted to share with you that I am driving the porcelan caddy today... in .... oh let's say a couple of hours. Yes, I am starting my prep for tomorrows annual exam. Please please please pray for good results. If all goes well tomorrow I am that much closer to being NED for two whole years (still have to have…
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So, What Now?
Hello Semi-colon family, It's Mary from WI again and I know, I know... although I haven't posted in awhile; I do try to read through these posts everyday. And everytime I read through them I am just flabbergasted at how "wonderful" each and every one of you are on here! ; ) Also, I wanted to give you all an "update" on my…
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Repost
http://www.thesurvivormovie.com/ I just watched this short movie again. I thought it was worth a repost. It is beautiful. It is why we are here. It is why we are all friends. HAve a nice Sunday. Barb
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Irinotecan side effects
Mark will be starting this soon. Can you give some ideas of the usual side effects so I can be sure to have all necessary meds on hand in advance to avoid him being sick(er)? I've read about the severe diarhea that can put people in the hospital. Anyone have this? What did you take? Thanks so much. ML
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Thanks from Andyman CP4
Just a quick note to say thank you to ACS for their part in CP4 it was very much appreciated and was excellent!!! Before CP4 I thought NS stood for Nova Scotia but actually it stands for NO SLEEP !!! It has been a wild time following this group of ladies around,I have been teased kissed, hugged,and made fun of many times.…
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Out of surgery - Not great news.
Well---They opened me up and closed me back up. They told my partner that my cancer has spread past the point of surgical removal. I have tumors on my abdomen, in my back and of coarse in the liver and outside the colon wall. Suggestion is to do agressive chemo to knock down the tumors and surgery if it becomes operable…
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Need Help & Support
Maybe I am being too much of a baby or sissy with this beast. Since the beginning there has always been a bump in the road and it does not look likes its going to stop. 10 July 06 - Colon cancer tumor Stage II NO/MO removed. 18 Aug 06 - Port-A-Cath implanted 17 Aug 06 - Air in lung cavity due to implant of port-a-cath.…
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have a question
On monday I have appoitment with my oncologist, and I was wondering if he is going to order any ct scan or pet scan, I had a pet scan before surgery, is going to be 3 months from surgey, I would like to know more or less what is normal, I think I have read about every 3 month for the first year, any response will help…
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starting chemo monday, feeling down
Hi Everyone, I hope you are doing well. I'm starting chemo again on Monday, Folfox and Avastin. I know that once I get started I will be ok, but right now my anxiety level is really high and I feel like nothing is in my control. It's unfortunate that I don't drink or do recreational drugs, but I'm such a control freak that…
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TO STACY!!
Stacy, As an almost 8 year survivor of stage 3 rectal cancer, I know the feelings that you are expressing all too well. There are people on this site who are fighting brave fights against recurring cancer, and sometimes I wonder whether I should even post my own good fortune. however, the new people on this site deserve to…
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Canadian Giggles
Hi Guys: I am pulling out all the stops this week! As you know, the semicolon palooza 4 is taking place this weekend in the beautiful Halifax. To mark this wonderful occasion, I am offering a special edition of the Friday Giggles - the Canadian Giggles. So, empty your bladder and prepare to laugh until it hurts :) Cheers,…
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Canadian Giggles
Hi Guys: I am pulling out all the stops this week! As you know, the semicolon palooza 4 is taking place this weekend in the beautiful Halifax. To mark this wonderful occasion, I am offering a special edition of the Friday Giggles - the Canadian Giggles. So, empty your bladder and prepare to laugh until it hurts :) Cheers,…
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Palooza
Hello everyone! I have to tell you all about the wonderful surprise everyone here had for me in Halifax... Lisa Rose & scouty arranged with one of my sisters to get some pictures of me from baby to now. (UGH! Love those hairstyles!) And, are you ready for this? They have been the only ones to get me to shed some tears…
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HELLOOOOOOOOOOOO!
Greetings all from beautiful (and I mean BEAUTIFUL) Halifax, Nova Scotia! I cannot even describe how much I miss these gatherings. The warmth is irreplaceable. The support is overwhelming. The sense of family is amazing. Kay experienced her first shots with us....this time, no needles involved as in chemo. There is a bad…
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re: For jennhws
Hi, you responded to one of my posts. I just wanted to see how you are doing. You have a similiar situation as my friend Mark who is stage IV rectal with mets to liver and lung. How is your treatment going? Hope all is well. Talk with you soon.
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Run in the rain.
NEED WASHING?? A little girl had been shopping with her Mom in Target. She must have been 6 years old, this beautiful red haired, freckle faced image of innocence. It was pouring outside. The kind of rain that gushes over the top of rain gutters, so much in a hurry to hit the earth it has no time to flow down the spout. We…
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To Jana
please keep me in the loop RE your new protocol; I have lung mets, and will go on monotherapy next week.. let me know what's happening with your tretment.Bud
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worried
Hi Everyone, I posted for the first time in August when I was still having numerous bowel movements daily. I had rectal cancer diagnosed in 9/04, 6 weeks of chemo-radiation, surgery 1/05, 6 months chemo. I was taking Lomotil daily and I ran out for a few days and started feeling better. I didn't seem to be going as much…
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Anyone do Irinotecan alone with any luck??
My friend Mark is stage IV, between trials and they want to give him just Irinotecan alone to hopefully stabilized the disease until a slot opens up for him. Anyone have any luck with this, especially stage IV's?? Would love to know...
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re: Yer not gonna believe this
Well, I went to visit my friend Mark today and he announced that there is no room on the trial that they had him agonizing to decide on, had him fill out lengthy paperwork and spend an entire day yesterday without food to stand in line for bloodwork, a PET scan and more in preparation for this. I am flabergasted! I didn't…
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heding for surgery Friday morning.
Hi All, as many of you know I was stageII that turned stage IV when it came back outside of my colon. I did Chemo (Folfox) and went NED. Now that beast must be fought again. I am going in Friday morning for a liver resection, colon resection, removal of my left kidney and Ureter blah blah blah. My surgeons are going in…
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Chemo ended 6 months ago - WBC
Hi again, Forgot to ask another question : How long did it take your white blood cells to get back to normal after finishing treatment? I finished chemo 6 months ago. My white blood cells are still just below the low normal. They seem to be stuck there. 3 months ago the count was exactly the same - just below normal. I…