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Hospice Care?
Anyone knowledgable of hospice care? The case worker at the hospital told me today that I should check with the doc about signing up. I thought it was used only for the end time? She said no and advised if we go through Home Health Care they are more restrictive regarding him taking trips, etc., (Lord willing if he ever is…
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I'm a STAR, revisited!
Check out September Reader's Digest, page 14...'You said it'....letters to the editor...."WHY ME". THIS is ME in Rancho Cucamonga...yea yea yea! (Autographs will be given during the hours of 1 and 3 am....rofl) Hugs to all my people, Kathi
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My Neice.
I just got off the phone with my sister. My neice had a colonoscopy today and they found a polyp. She's 36 yrs old. She's had some bleeding off and on for a few months, and because of that, and what I am going through right now, she went straight to a GI doc. She also had some inflammation in her rectum. I am praying that…
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Friday Giggles
Hi All: I am back, fresh from a lovely vacation on Martha's Vineyard! On my trip to the East I also got to meet Beverly and Judy. What a big treat that was to have our very own mini-palooza! Anyways, here are the giggles and have a great weekend! Cheers, Ying - - - Escaped Midget! What do you call a psychic midget who just…
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Chemo or no chemo????
Back in 3/06 I was diagnosed with Stage III rectal cancer. I immediately began radiation and Xeloda. On 7/06 I had surgery to remove the tumor(approximately 3"). According to my surgeon and path report the tumor shrunk to the size of an ulcer(no evidence of disease) and no lymph nodes were affected. My oncologist told me I…
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happy
I've been reading most of the messages here and it really makes me happy to see such a large group of people with positive attitudes. What brought me to this board is my sister (35yo) who was diagnosed with CRC 2.5 months ago (stg. 3 1of34 nodes) she just began her chemo treatment last week and so far it hasn't been going…
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Chemo and Thyroid
Hi everyone! I have a question.....I have Hasimoto's Thyroiditis, and have been on Synthroid for years. Every now and then, I have to adjust my dose because of fluctuations of my TSH levels. I am half way through my chemo (5FU/Leucovorin). Can 5FU affect TSH levels? I saw my endocrinologist today, and she says my TSH is…
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Anyone used a port for the quemo?
I just came from my first appoitment with the oncologist, and every thing went fine until he told me that he wanted me to have what is call a PORT to get my treatment because the first to treatments I need to get like a pump home for 48 hours I said is fine, but now here at home reading the pamphlets about the device I got…
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looking for diet info for post-op resection
I'm looking for help with managing problems associated with low re-section surgery. For instance what foods trigger frequent bouts of burning, abdominal pain and other symptoms. thanks in advance for any suggestions. I'm writing on behalf of my husband who is almost 6 monthes post-op and pretty discouraged with his lack of…
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Regarding Ron
I'm so very tired and have come home tonight to try to get a bit of rest. But I want to thank all of you collectively for your replies, suggestions, and prayers. I will try to respond to each of you individually at a later date. Until then, please keep praying for Ron. They are trying to find an effective pain treatment…
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cat tomorrow...Please ...
send a player for another NED. this time i'm very scared because i have been feeling vvveeeerrryyyyy tired lately(last chemo was a year ago )....I also gained 25 pounds....any comments ? Thanks and God bless
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frustrating
well...I went to my naturpath and told her I was ready to start treating this naturally and she told me that she doesn't have experience with that. SHe has cancer listed as a specialyty, but apparently she only knows how to support people thorugh chemo. So, do as lisa says...interview them by phone first. Mary
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Happy Birthday Lisa P
Hi Everyone, Tomorrow August 10th this wonderful lady and my good friend celebrates her 52nd Birthday. So lets all join in and wish Lisa a very Happy Birthday Happy Birthday to you Happy Birthday to you Happy birthday, dear Lisa...... Happy Birthday to you ! And many more. So much to celebrate in Halifax . . . Love, Lisa…
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Colonoscopy Soon
My question may seem silly since so many survivors who post here undergo many uncomfortable procedures while battling the beast. I am 55 yrs. old, having a routine colonoscopy done in a couple of weeks. I had one five years ago with clean results, but had a terrible time swallowing the Fleet solution in preparation for the…
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hello
I have posted afew times on here before but i doubt you remember me. My mom died at 46 of colon cancer. Her mom had it and also her grandmother. I am 32. Do not have health insurance and have given up on finding any help anywhere because everywhere i look even with my history they blow me off because of my age........but i…
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Chemo Brain?
Hi everyone, My husband has been battling recurrent colon cancer for the past 2 years. He recently completed 6 months of chemotherapy (Avastin, Oxaliplatin, 5FU). I started to notice about midway through that he was becomming more and more forgetful. He finished his chemo about 6 weeks ago. He is still forgetful. He can't…
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Air Canada Seat Sale - CP4
Hi Semi Colon Friends, Air Canada announced a pretty good seat sale today. So if you've been thinking of joining the group in Halifax for Colon Palooza 4 check into it today. If you 've been on the fence maybe the sale is just what you need. It's such a wonderful time of love & friendship and many many laughs. Hope to see…
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Neuropathy from oxypalatin
Hi everyone. My husband just completed his 5th round of chemo and is experiencing significant neuropathy in mouth, hands and feet. He has trouble holding things and has fallen a few times. In previous posts I've seen several references to B vitamin supplements that may help offset the neuropathy. Can anyone offer…
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My first oncologist appoitment
Hi everyone! tomorrow I have my first appoitment with an oncologist referred to me my surgeon If anyone has some advise about questions I need to ask,I already started a list,and I would like to ask you if I have a good feeling with him should go ahead and start the treatment that he tells me or should I get second…
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swelling in legs and ankles
Hello. I'm new to this site. My father is 76 years old and has just been diagnosed with colon cancer. We went in for a surgical consultation to remove the mass and found out that he now has 10 large tumors in his liver and some small spots on his lungs. We are still reeling from the shock of it all. We are waiting for a…
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Geez, can the guy get a break?
Since Chris's stage IV dx 7/7 (recurrence from stage II in '03) he's been through enough hell, damn it. He's only 36 years old and having to face this, now his port developed an abscess, he had to have it removed yesterday. The beast is in his spine, inoperable and they can't radiate. They won't restart chemo until he's…
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Jucing/Supplements and Sensitve Bowels
Hello : ) Calling all nature freaks! (I mean that it the very best way!!) Does supplements and juicing cause much problems for your sensitive semi-colon? My bowels are still adjusting post treatment. I go someties between 5-10 times a day. It is not diarrhea, thankfully. But the urge to go is there often nonetheless. I…
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Post Ileo Reversal/Sensitve bowels/Juicing and Supplements
Hello : ) Calling all nature freaks! (I mean that it the very best way!!) Does supplements and juicing cause much problems for your sensitive semi-colon? My bowels are still adjusting post treatment. I go someties between 5-10 times a day. It is not diarrhea, thankfully. But the urge to go is there often nonetheless. I…
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ileostomy
Hi again everyone! Once again it has been a while since my last post. Turns out after recovering from 3 weeks in intensive care after emergency surgery for a perforated colon, I needed more surgery on July 31. Recovery from the May surgery was so hard, but the colostomy never seemed to function correctly. After fighting…
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What do you think?
I have not posted in a very long time but I read this board almost daily. Here's my story. Father diagnosed with very large liver mets Aug05. Immediately started chemo FOLFIRI+ Avastin every other week for the last year only missing one treatment due to low WBC count for sinus infection in March06. Works full time and…
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SIRT Radiation for Liver Mets
Hi everyone, I heard about this treatment for liver mets. I was wondering if anyone has tried it or heard of it. I don't have liver mets, but I go to a support group where two people are having it done. One of them is NED after chemo, but their doctor is still going to go ahead with the SIRT. My understanding is that you…
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"goldfinch" please respond
I was reading your earlier posts and note that you mentioned that you had been on folfox/avastin then went to folfiri/avastin...why were you switched and able to keep the avastin. My husband progressed on folfiri/avstin then was switched to folfox BUT was not prescribed the avastin anymore which made me nervous..can you…
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joint pain and stiffness
I finished chemo the end of May 06 (oxy and xeloda). Although I am healing well and getting my energy back I find that my ankle, wrist and finger joints are sore and sometimes stiff. I am 42 years old and walk 3-4 miles about 5 times a week, I try to eat healthy and had no health problems before my dx. Do you think this…
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All Hope is Gone
Just a quick note to ask all of you to please pray for a miracle for Ron. They opened him up and said his entire abdominal and pelvic area is full of cancer which is very agressive. They put in a colostomy and sewed him back up. I plan to try to get him into Indiana University for a second opinion but as it stands now, the…
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Exercise improves survival rate for CRC
Told about this by a friend...common sense, but great to see in writing!!! http://www.medpagetoday.com/Gastroenterology/ColonCancer/tb/3740 Hugs, Kathi