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Digestive Issues?
So, theres been talk here to the new folks about how we will talk about anything, including the color of poop. SO, that has inspired me to ask the following (and its not really about the color, by the way.) Prior to my diagnosis in May 2005, I had been having digestive problems where big or fancy restaurant meals (or…
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In Love with NED!!!!
Hi all - Your good vibes, prayers, wishes, hugs etc. must have done the trick. My PET and CT scans from yesterday are NEGATIVE!!!! The radiologist (one of the few who will talk to patients) actually called me because my oncologist is on vacation today. He told me about the great results and then asked how my treatments…
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I'm back...
Hi everyone, I had to take a short break. Things have been a bit crazy in my life for the past couple of weeks. As most of you know, my mom had a heart attack and was in the hospital for a week. I was there with her everyday practically all day. Then, this week we had another scare and thought she had another heart attack,…
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Not so great PET results
I do not post very often, but read all posts daily. My husband originally dx 09/02 then mets to lungs 05/05 went today for his PET results. The mets are adapting to the current meds 5fu/leucovorin/camptosar with Avastin. Was on Oxiplatin (sp) for about 3-months after mets dx, side effect pretty bad so changed to Camptosar…
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Fatigue
Hello all, My relative (stage IV colon cancer, dx summer 2004) has gone through many cycles of FOLFOX and, after the cancer finally progressed, is now on 5 FU + Leucovorin + Irinotecan. At his last CT scan, they found that much of his liver has been overtaken by the cancer. My main concern right now is his fatigue. He's…
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More in the news....
FDA Grants Priority Review Of Panitumumab For Treatment Of Patients With Metastatic Colorectal Cancer THOUSAND OAKS, Calif., Jun 12, 2006 (BUSINESS WIRE) -- Amgen (Nasdaq:AMGN), the world's largest biotechnology company, today announced that the U.S. Food and Drug Administration (FDA) has accepted the Biologic License…
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Possible new test....
Shining a Light on Colon Testing Researchers at Northwestern University have been developing a technique called enhanced backscattering spectroscopy, or EBS, which will help in early colon cancer detection. With EBS, light sent through a fiber optic cable shines on human tissue and scatters. About 10 percent of the…
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Confused on scans
This board seems to be more active than the breast cancer board, so I am going to ask here. It is my understanding that a CT Scan checks your organs and a Bone Scan checks your bones. What does a PET Scan check? Is a Bone Scan & PET Scan the same Scan? Thanks in advance. LoVonna
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Who is NED and how can I become him? LOL!!!
OK, I get it. It's an acronym for something..... but what? Can anybody point me to a glossary of colorectal acronyms used on this board? Thanks!
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New Here :(
Hi all. Just checking in to see what I can find out about this "crappy" disease. Pun intended. I had a colonoscopy yesterday after enduring seven years of on-again-off-again diahhrea that my doctor called Irritable Bowel Syndrome. The gastroenterologist found something he highly suspects (to the tune of 80% certainty) to…
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Friday Giggles
Hi All: Happy Canada Day and Happy 4th of July! Here's something to help get your weekend off on a silly giggling start! Have a great weekend! Ying - - - There once was pirate captain who, whenever it looked like a battle would be imminent would change into a red shirt. After observing this behavior for a few months, one…
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Article on Colon Cancer Detection
There was an interesting article entitled Cancer Detection Makes a Stride in Thursday's Kansas City Star. Here's the article in case you didn't see it: Scientists have developed a simple formula that can help find colon cancer patients with certain inherited bad genes. The information can help determine the best course of…
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NED BABY
Hi All, I had my CT scan today and NED. AHHHHHHHHHHHHHHHHHHHHHH. crap that feels good. the Onc wanted to do a pet/ct in 60 days and i said naw lets go 90 days - I want my summer and I dont want to think about a glow worm test. he agreed. He did mention to me that although Chemo usually does not cure cancer, all looks…
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vacation bible school
It over for another year, hooray, what a lot of work. Now for some peace and quiet. I have a lot of reading to catch up on. I love mystery books, but have been too busy to read any. Now's my chance. Thanks everyone for their support, it has meant so much. Thanks again Ladybug
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colon cancer has most post?????
I just have to ask why this is one of the biggest groups? I know it affects more people than other cancers but I still question the number of post. Just me being.... me. gracegirlnow
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You can't get rid of me THAT easy!
You guys didn't think you could get rid of me THAT easy???? Huh????? I'm still hanging.... Thank you all for the kind words! I went and had a BIG dinner Tuesday night (paid for it yesterday with an upset tummy..hehehehe). I am going to a spa in Palm Springs after the 4th of July....just me....to celebrate! Hugs, Kathi
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Recovery
Some will know me from the past but I haven't posted a lot lately. I am a 33 year old stage 3 rectal cancer survivor, two years post op in England (from New Zealland originally). The reason for this post is to ask people for any reflections they have on the concept of recovery. I work as a psychiatrist in England and…
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New Here
Hello all, I have just stumbled on this message board. You all seem to be so positive and supportive. I have been reading your posts for some time now, so thought I should stop being so shy and say "hello!" I am 33 was diagnosed w/rectal cancer on July 20, 2005. I had the "normal" route of 6 weeks of radiation and chemo,…
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My Dad's At Peace
Hi Everyone, I want to thank everyone for all their support over the last year. My dad passed away this morning at 12:55. I didnt make it there to be with him but I am at peace with that. The funny thing is my mom told him at 12:45 that I could not be there I was home taking care of the baby and he passed on at 12:55. I…
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Thanks for all your good wishes
Thanks all for the good wishes and great images. I'm off to the scanner and will be taking them all with me. You guys are the best! Betsy
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CT/PET scan on Thursday.
Hi all, my first pet/ct scan since ending chemo for the 2nd time and having surgery. i spent the week at the lake forcing myself to not think about it. The demons got in my head today. sometimes it is really tough to turn this over to God. Thanks to this site, wonderful kids and a supportive partner. and a good friend that…
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Hi all ... newbie here
Hi all, I am on my third year of dealing with colorectal cancer. I had chemo, surgery, radiation and then chemo again three years ago. I guess that is a big trend here. I have never posted on a meassage board about this. I am new to the site. I am just looking for others who deal with what I am dealing with each day. I had…
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Can I make up an acronym? NES!
I just had to share our news!! My hubby got results of PET scan yesterday and he has NES (no evidence of spreading)! For us, that is good news! His liver and colon tumors are shrinking and there's no spreading!! This is NES and we are HAPPY to see her! I was chasing Kathi down the street dancing (I was the one with clothes…
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correction
actually - i was just re-reading my post - my mom was diagnosed in January 2003, not 2004.. Time flies - it has already been 3.5 years..
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NED !
Hi everyone - I just wanted to share some more happy news. My mom (originally diagnosed Jan 2004/Stage III) went for a follow up colonoscopy today and everything looked perfect. For those of you who don't know, a few months afer my moms original surgery, a local recurrence was detected during a follow up colonoscopy, and…
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FYI
I found this in Mondays paper: Leroy Sievers, a respected veteran ABC News producer and cancer survivor, will launch a monthly series of commentaries,"My Cancer," to air on National Public Radio's morning edition,starting today ( MOnday). He was diagnosed with colon cancer 5 years ago and is currently undergoing chemo…
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spiritual question
I lie awake at night wondering if there is a dog. I am a dyslexic, insomniac agnostic.
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NAKED happy dance!!!! DONE!!!!
Yes, good friends, I had my LAST radiation treatment TODAY.....no more!!!! MAN, I am going to sleep FOREVER!!!! No having to drive EVERY DARN DAY to treatment...and all the blue marks, and....well....if you see a newspaper article about a woman with multiple scars dancing naked down the street....that will be ME!!!!!!…
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CT or PET for follow-up
Hi again everyone, What are people who are considered NED getting for scan as follow-up? My oncologist plans on doing CTs instead of PETs. I asked him why and he said it gives a better picture. That PET scans are better for monitoring response of existing cancers to treatment. I though I was going to get PET scans for…
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When do you start counting?
Hi all, I'm doing well today..I'm sorry to read that others aren't. I got another clear CT Scan today since being dx'ed in Feb 2005. The weird thing is though that my oncologist told me today that he considers me to be 15 months out. I started chemo in Mar 2005. That was 15 months ago. So according to my doctor, I am 9…