Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for October 2004

Hello all!
Hi everyone, How are yall doing? I hope this message finds you in good spirits! I'm going in for my thoracotomy today. Let the opioid-festivities begin! Going in with a few tumors, hopefully I'll be coming out with none. NED! NED! NED! I can't wait to put those scoundrels in the bucket where they belong. I asked my surgeon…
Wife newly diagnosed
Hi. My wife (age 45) has been diagnosed with colorectal cancer (her father diagnosed at age 53; still alive and doing well). Malignant polyp removed by colonoscopy, and colon resection performed Oct. 12. She is now home and recovering nicely. No cancer in the colon wall or tissue, but 10 of 14 lymph nodes removed were…
Whats worse, cancer or chemo?
Well, I'm on my secound bout with this horrid disease -- this time mets to my liver. I am on the Folfox treatment (Leucovorin, 5-FU, Oxolipaton, and Avastin) and I am NOT tollerating it well. Even after the adjusted my dose, I'm still sick and puking for 5 to 6 days after treatment. Before i started treatment, the doc said…
I need Your Prayers Please
Hello to everyone. Tomorrow is finally my big day. I will have my Liver Resection. My cancer came back 3 years later from my Colon Cancer. Its been a long hard wait since dx in late August-early September. I have placed it in God's Hands. 3rd time around. Breast Cancer 1999 Colon Cancer 2001 now a mets. to the liver.…
alternatives
Hello all! It's been awhile since I've posted hope some might remember me. I have stage IV colorectal cancer and was in remission, but the cancer has re-curred. I was due to have a colostomy take-down when blood tests and cat scans revealed tumors in the lining of my stomache. I have recieved two treatments of 5 FU and…
Can someone please help?
My sister-in-law is in ICU with double pneumonia, a blood infection and very low platelets. She has stage IV colorectal cancer with mets to lymph nodes and spine. She is on a repirator now and is totally sedated. Has anyone been through this? We are so worried about her. Can someone help? She has been through so much, I…
CAT Scan
I just had my annual CT Scan and got the results. They did a complete chest, abdominal and pelvis scan. The results showed that I have scarring in my right lung (no evidence of mets)and what appears to be a granuloma on my speen. But no evidence of mets. It seems kind of bittersweet news - good news no mets, but what the…
Prayers needed please
Hello everyone, My Dad had his 1st CT Scan yesterday since he has started treatment. He will be receiving his first PET scan on Thursday. The last scans he had were prior to the start of any chemotherapy and showed 2 spots on the liver that were not seen at the time of surgery in June. I am praying for some good news to…
doctor's appt
Hi all, I went to my family doctor today. It was a new doctor that I hadn't seen before and the medical intern with her is going to be an oncologist, so they were very interested in helping me. I have a referral for a second opinion with a urologist, but it's not until Nov. 3rd. I guess that's not too bad. I'll just have…
littlejulie's engagement.....
Hi Everyone, I know we come here everyday to support each other with colon cancer. However good friendships are made here also...That's why I want to share with you all that littlejulie got engaged October 15. So together with all the Semi-Colons, I would like to " Congratulate " Julie & Steve on there engagement. May the…
low potassium levels...
Hi everyone, I not too concerned about this but I thought I would mention it b/c it can be beneficial to everyone. My mother was going to start her 4th cycle of chemo pills (5fu) but it's going to be postponed one week b/c her potassium are too low. Her blood levels are ok though. Her dose will be reduced as well. Instead…
sleeping too much?
Hello everyone Now that i am with my mom, i see much more of her symptoms... there is one thing she started doing a lot- sleeping. She sleeps all the time. It scares me ... is that normal.? DOes it mean anything? she is not on chemo yet but should be soon. she is eating so-so. she gets tired very fast... yesterday she…
One step forward, two back
Hi all, I feel like all I do is whine. So here goes again!!!! If you're sick of hearing me, just ignore this post. I won't mind. I would understand. Anyhow, this weekend was horrible. I've been having dizzy spells since surgery. They're getting worse and yesterday I had a splitting headache. My head hasn't felt right in a…
My brother John
Hi Again...I need your feedback. I'll try to be as brief as possible. I'm with my brother at the hospital who has recurring colon cancer. Just found out he has a massive tumor that is cancerous, on 2 lymph nodes and is in the wall of the stomach. His bowel is completely blocked. Nothing going into his colosomy bag. They…
I'm BACK!!
Hi All!!! Surgery is done--- glad that is over. Now on with the recovery. I had the whole ball of wax... APR, vaginectomy and hysterectomy. Drs say I am doing "fantastic" and am "Ahead of the game". Physically I am doing well. Emotionally I am on a rollercoaster. Can't tell if it is the whole journey or the fact that I am…
Update on Trip to Fox Chase!!!!
Hello Everyone!! Well, I'm sorry that I didn't post right away I was waiting for more info before I let you guys know what was up. Well, when we went to Fox Chase in Phila. it wasn't what we were expecting. It is a beautiful place but we weren't impressed. We waited 1 1/2 hours to see the Dr. which didn't help Bob's…
Doctor very positive today
Hi all, My surgeon's office called yesterday and asked if I wanted to get this port out, and I said, "oh, yes!!!!' I went today at 10am. It hurt like h#$%#*&, but it's out. I bled quite a bit, which concerned them at first. He said it's because of the blood thinners. He also said I will get to go off them in December and…
Lance Bracelets on the way
Hi everyone!!!! I mailed a bunch off recently and have a few more to send but you should expect them any day now...those of you outside the US, I have no idea how long it will take. I mailed them all priority mail.... Susana and Brenda, your will be mailed shortly!!!! My children's ones are still on back order but I still…
A New Book Recommendation
Hey my semi-colon crew! I am very excited about a new book I am reading and of course I have to share it with y'all cuz that is my reason for living ya know...haha. The Makers Diet by Jordan Rubin As many of you know I promote a green powder that I put in my carrot juice called Perfect Food by Garden of Life. I have tried…
Genetic testing
have recently agreed to being tested for HNPCC (hereditary nonpolyposis colon cancer) and attenuated FAP (familial adenomatous polyposis) after seeing the clinical geneticist. The reason they are keen to offer this is my young age of onset (31) and the fact my parents died young so they can't be certain of whether they…
Done with chemo
After seven months of 3 weeks on, one week off, I am done with chemo!!! I have been very fortunate in that I really only feel bad the day of chemo. By the next day, I was back to work. Next step is radio frequency ablation (RFA) on Novemebr 5th to zap the small met on the liver (less than 1 cm). They don't know if it is…
just wanted to say hi...
i haven't posted in awhile. my mom just finished her 3rd cycle of chemo pills which means 3 cycles to go. she's exhausted! she's been sleeping for 2 days! i know she'll bounce back though. her week off chemo is ironically always her worst. i may not post but i read every day. im a little down today but realizing that 'me &…
epithelial growth factor receptor (EGFR)
anybody have any idea what this is??
Test Results
Hey everyone. We saw my husband's doctor today and got all his test, ct scan..ultrasound..blood work..colonoscopy, results and he shows no signs of cancer anywhere. He will have the ultrasound again every four months for the next year. Thank God.... But after giving us the test results the doctor kept talking about how the…
Emily- Need your regiment!
Emily if you get a chance can you send me you regiment that Sponge Bob mentioned. I want Bob to keep fighting and I need you help to do that! If possible can you email me with the info. : bsrules@earthlink.net Thank You!!!! Sue
not good news
once again,i come to everyone for support.i've just found out that my chemo treatments are not working.i've had 3 so far so at least i didn't have to wait too long to find out.i was getting oxy/5fu/and leucovorin,but my lymph node involvement has increased in size so my oncologist wants to start me on cpt-11.he's hoping…
Good news
My computer is acting up again, so I hope this posts right. I will be trying Verizon DSL next week and if I like it, I will have a new email address. I will be sure and let you all know though. Anyhow, the good news now. Are you ready?????????? My mammagram was fine. Nothing seen now. Is that not wonderful?????? I don't…
Groin Pain
Hi all, hope this message finds everyone in good spirits. Well, as you may or may not know, Scott is done with chemo. He had been hospitalized for one night last week with an infection, but they will be removing his port next week, so we're hoping the infection does not come back. Now, he is experiencing pain in his groin…
update on Ben again
Hi guys... slowly healing here.. Well Ben has been put on what is called a wound vac to help with healing his incisions wounds..We have slowly been able to close the one at the rectum... but back in Aug he began leaking threw the front on and they had to reopen it from belly button to grion to drain it. The vac is being…
To jana11
Now why did I start a new thread?-mmm--simple--because in this world there are some very strong people, you included, and to start something new is like a new lease on life. Kanga is going to send you his special "rainbow". Remember the love at the end of it? Well that love has a special meaning for all of us but in my…

Colorectal Cancer

Discussion List