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Caregivers

Archives for September 2012

feel worthless and helpless
I am the caregiver for my mom who has sclc, she has had one round of chemo, and a few treatments of radiation, we go back this week for second round of chemo and more radiation.Her pain has been very bad, so bad that she has been put in the hospital twice because of it.The biggest problem is the meds they give her for pain…
Has your loved one 'bounced back' during hospice care?
Wife finished radiation two weeks ago. At the last appointment, the oncologist told me that there doesn't seem to be a whole lot of results. He was ordering hospice in order to help us. My wife looked awful and sounded worse, so I understand. The last week or so she has maintained as far as her condition goes. Maybe the…
Cindy thinking of you
Cindy just wanted you to know I was thinking of you today. I was driving down the street and tears starting coming down my face for you. Someone Ive never even met. I hate this cancer. I hate what it has done to our lifes. My heart hurts for you. Im in Calif but sending you a big hug. I hope that you have a peaceful day...…
Please, God, help me be strong until the end
I cry so much. My heart is so broken all the time. All these years (3 1/2 of them) I fought so hard and I amazed everyone I knew with my strength, with my fight fight fight, believe we could win attitude. Now I'm just so weak that I can't talk to anyone without crying. I go in David's room every two hours and change his…
What to do when you have no support
Hi, I am so sorry if this is not in good taste for this board, but I need help. I am interested in hearing from those who are taking care of parents with no help from your siblings. My brother has done nothing to help my mom since her surgery. When I asked him for a little help, he told me "why would I have to do that when…
curious about relationship issues
I am a caregiver to my live-in boyfriend of 6.5 years who is currently undergoing his second round of chemo for testicular cancer. This is my first time posting. I am just in need to talk to someone who has gone through this. A few weeks after my boyfriend was diagnosed, he began pushing away from me...I know this is…
Deciding How to Pass
I am so emotionally exhausted...spent last night arguing with my brothers about how mum will go. Mum was diagnosed with brain tumor (GBM IV) in April. Right now she's awake a few minutes a day, can't talk, and can sometimes move her hand. Me & my dad just want her to go peacefully, to not prolong this. My brothers want her…
I am 25 year old caregiver to an active duty soldier and can I say Wow this really takes a toll.
Back in 2010 we found out my husband had mds/aml. I was pregnant with our third child and he was getting ready to deploy, I mean basically when it rains it pours. My husband has always been very healthy and active, independent, and a leader I mean goodness he has been in the army for 12 going on 13 years. Some days I never…
Just looking for some advise
Hi All, It's been a while since I've been here. My partner had stage 4a cervical cancer but has now been in remission for over a year. She still has a hole in her bladder and they want to give her a stoma. My problem is she is also in Kidney failure and has nephostomy tubes to help her kidney function. They seem to work…
the pain for me goes on
Here's where we are at.... David recovered from C-diff, thank God. He also fought off a shingles outbreak. I got him on an antiviral immediately and I think we headed off a big outbreak. David's pain is also being managed pretty effectively for the most part. I am very, very grateful for that. We also changed the way we…
At what point did you consider hospice for a loved one?
I had a brief talk with the social services rep at my wife's hospital. She said that 'hospice' doesn't necessarily mean a rapid end of life scenario, but basically means making the patient more comfortable as they've come to terms with their prognosis. I am not sure how long my wife has. Depending on the results of her…
I don't know what to hope for any more
My mom was diagnosed with Stage IV colorectal cancer two years and a few months ago. At diagnosis, she was expected to live a few weeks. Somehow she has managed to fight through and make it this far and has completely shocked everyone. Back when she was diagnosed, we were all devastated. Mom was always so healthy. She ate…
rollercoaster ride of the caregiver
My 42 year old boyfriend was diagnosed with cancer in April of this year. He lives with me and my 2 children. He has had 6 chemo treatments and with each one he seemed to suffer more. I have a few questions for the caregivers out there, because I'm new to this. Does chemo alter someone's personality or their judgement? He…
Hospice Since last post
Hi, It has been a few months since I've posted. My husband, stage iv bc with mets was place on hospice in the middle of July. We decided quality of life over quanity. I don't know if anyone has faced this before, but there are times I feel so guilty. I feel that maybe we made a mistake. Of course the dr did say that the…
What CSN Means to Me
I often recommend these boards to others because they have helped me through the hardest time in my life so far. I will always be thankful that I found them even though I wish I had found them sooner. I came here often while my husband was fighting his last battle with cancer. The support I was given by those who…
I feel very alone tonight-please help me.
While I am not a full blown caregiver, I am helping my mom recover from her mastectomy. I am 26 years old. I know that my mom has stage 4 cancer and will eventually get much worse. My brother refuses to help me, and spends most of his time shacking up with his girlfriend-the same one that called my mom the c*nt with…
I hate it when people stare at my wife!
Went to an outdoor food fest today with my wife. She really wanted to go despite the fact that her brain tumor(s) make it hard for her to walk and that it has been very hot out lately. She held on to me for support as we walked, but after about 20 minutes and several breaks, she really had trouble walking. Some people…

Caregivers

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