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Brain Cancer

Archives for July 2010

AA3 Recovery
HI, I just want to share that my 18 year old daughter is doing really well. She was diagnosed with AA3 when she was 16, Feb. 2009. She had surgery to remove the tumor, followed by radiation treatments and oral chemo. She had oral chemo for a year, every 6 weeks. She has had MRI's every three months for 17 months, and all…
Emotional Effects of Brain Tumors
Hey - Has any body had any long lasting negative emotional effects from brain surgery, radiation, having cancer, etc?
decadrone tapering too fast!!!!!
My husband has a brain met and did 15 sessions of whole brain radiation, doctor tapered decadrone too fast I believe, he ended up in hospital room with total mental confusion, now is home again. has this happened to anyone else?? thanks Linda
Help!
My wife (age 40) has multiple brain lesions, as a result of breast cancer metastasis, for which she received 5 days of whole brain radiation almost two months ago. She lost all her hair and is excessively tired and weak and unable to walk for more than a few minutes. There has been no follow up with the doctors and they…
PXA tumors
Looking to hear from others who have been diagnosed with PXA tumors. My son was diagnosed at the age of 15 with a PXA Grade II, but then after a second opinion after his 2nd surgery, there were concerns for a possible higher grade neoplasm (Grade III). He had 6 weeks of radiation (tomotherapy) and chemo (temodar) which…
Does anybody has heard about stem cell treatment for cancer?
There is an alternative treatment for cancer patients in Tijuana, Mexico. Issel treatment. Has anybody heard about this treatment? Thank you, Nubis
glioblastoma stage 4
hi. my husband was diagnosed with a brain tumor in jan. of 2010. he has been through the radiation and chemo. he also had surgery which removed most of it. now my dr. is talking about treatment with avistan. i just wanted to find out if this works and if so for how long. i do know everyone is different ,but just want to…
dystonia
has anyone experienced dystonia from full head radiation?
FB style? site for brain tumor patients and survivors
The abta told me about their new Connections site. It should be great once I figure out what I'm doing! Thought I'd post this here in case I'm not the last to know! http://hope.abta.org/site/UserLogin?NEXTURL=http://connections.abta.org/editor/app/admin/tptdashboard.aspx
brain met and decadrone
my husband has a brain tumor that has met from his esphogeal cancer. He has been on decadrone for the past month while doing whole brain radiation. The doctor says he will be weaning his off this steroid within a week, I thought you stay on it as a maintence dose to prevent swelling of the brain, can anyone answer this for…
Any suggestion to combat Fatigue and how to keep yourself preoccupy during recovery process
Hello everyone, I was diagnosed with a brain tumor recently and since underwent 2 surgeries for removal. I did well after surgeries but what I'm struggling with is fatigue and mental breakdown. Since I'm a very social person, I'm used to being around people all the time. Going through recovery, I find it mentally draining…
PTL-Post Transplant Lymphomas - in the brain
my husband (40 years young) was told he has 2 PTLs one on the left hemisphere and one on the brain stem. 4 years ago he had a kidney transplant. we are at the end of chemo (just this week) and in 3 weeks he will have another MRI. The previous MRIs showed no growth but also no shrinkage. We have an awesome medical…
Please help my dad!PLEASE!
First,thank you for your coming.My dad was diagnosed with Glioblastoma last month.We are very sad to hear that,because I can't believe it.My dad is a police.He is always very healthy,but now... I begin to search anything about this at internet,but i find that nobody know the reason of this disease. At chinese,doctor are…
Your The Best
Im leaving the site this morning. The reasons are personal. I want to thank you for your kindness, courage and support you have given to the memebrs here. I want to wish you the best very best of health and happiness. I will miss your spirit and love for one another Heart of Soul
medulloblastoma stage 4 my 55 yr husband
My husband was diagnosed april 17th 2010. He was biopsied and were told he had stage 4 medulloblastoma that was non operable. He has a permanent shunt in the top of his head that drains to his stomach. Radiation treatment started a couple of weeks after diagnosis, full head and spine for 4 weeks, than the last 2 weeks was…
"JoeyPup 1" please reply to me
You typed to me last week regarding brain mets from esphogeal cancer and radiation. I need to know more about it and you mentioned you are a nurse caring for someone with this situation. I am a wife, caring for my husband, who just found out he has a brain met to his cerrebellum part of his brain and is doing whole brain…
Nausea after treatment
My daughter just completed a 15 month treatment protocol for medulloblastoma. She was diagnosed at age 13, had surgery to remove the tumor, had 6 weeks of proton radiation, and her major chemo drugs were cytoxin, cisplatin, and vincristine. All through treatment she had very severe nausea and vomiting. She just stopped…
Petuitory Gland Tumor
I am a 2 year survivor of Esthesionueroblastoma, and recently was told I have a Petuitory Gland Tumor, still waiting on MRI results and more lab work. Just wanted to see if anyone on this site has had or heard of this type tumor and what they dealt with. S
GBM grade IV following Cardiac By Pass Surgery
Has anyone else been diagnosed with GBM grade IV after going through cardiac bypass surgery. My husband had a triple by pass in October 2008 and now in February 2010 he was diagnosed with GBM grade IV.

Brain Cancer

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