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Gliosarcoma - Please Comment with your experiences
Hello to everyone! On February 19, 2010, my dad was diagnosed with Gliosarcoma. At first the doctors said it was Glioblastoma, but now they are saying it is Gliosarcoma. He had a crainomoty on March 24th. Most of the tumor was removed, and 8 wafers were placed in the cavity where the tumor was. He was to begin his…
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Long term effects of brain surgery
I had my oligodendroglioma tumor removed in 2008, I am still suffering from extreme fatigue and some small memory issues. Does anyone else have lasting symptoms? I am,however seizure free and would do it again in a heartbeat. Kelly
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Chemo Wafers
My husband was taken to surgery yesterday for his 2nd crainiotomy in 9 months. We went to see the Dr for his follow up MRI and they saw that the tumor was growing again. We had a physician tell us there was nothing else they could do. Then another physician told us about something called Chemo Wafers, they implant these on…
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Astrocytoma grade 2 almost 3 had surgery ???
Hello , I just had surgery on right temporal lobe removed astrocytoma grd2 going into grd3 it was about the size of a big peanut easy to get but path report says active after 2 weeks watching it at emory in atlanta they want to do some chemo of some type incase it has a cell wondering in the brain it is knocking on cancers…
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Post Op AAIII scary MRI Results????Any advice...
My husband, 32, was diagnosed with AAIII in August 09. Had successful tumor removal Sept 1 2009. Follow up with Chemo and Radiation for 6 weeks, clear subsequent MRI's. Still takes Temodor one week out of the month. Started getting headaches, rash on face, sores in his nose, and pink eye. Dr.'s requested immediate appt for…
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When you have no insurance?
My mother has lung cancer with mets to the brain. She has undergonce several surgeries the last being brain surgery to remove the tumor that was causing her to have seizures, and lose use of her left side. She is 59 years old this year. In the last 2 day she has fallen repeatedly, and has had a progressive change in…
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GBM IV, Left Frontal Lobe- many questions
I am beyond grateful to find this website. My mother, 67, was diagnosed w/ a GBM in October, 09 and my family has been going through this alone w/ a ton of questions. We noticed some thing was not right w/ her b/c she could not retrieve her words, names and communication became increasingly difficult. On 10/26/09 she had…
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GBM loved one is taking out anger on me
Well, the doctors decided that they will not try for a 3rd surgery. My starts mom chemo and radiation tomorrow, and we are just going to hope for the best. But, in the meantime, she is being horrid to me. I came back home (she lives in Central America) for ten days to be with her the first week of treatment. The weekend…
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How to handle the painstaking wait for MRI results?
Hello, I'm new to this forum and new at this brain tumor business as well. My big sister(28years old) was diagnosed with a brain tumor (oligodendroglioma grade II)in November 2009. She underwent surgery in December 2009. She just had her follow-up MRI today and we’ll find out the results next week I guess. The surgeon…
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childhood medullablastoma
this is for anyone who has recently found out that their child or grandchild has got a medullablastoma tumour.I havent been on this site for 2 years and have read someone trying to see if anyone younger than 2 years has ever had one.Well my grandson Sam had one ay 8 months old.That was in 2006.He had surgery to remove…
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2 months since GBM diagnosis, Going on third surgery
Hello everyone. My mother was recently diagnosed with GBM. She underwent a craniotomy to resect two tumors on January 20. Following an an amazingly-fast regrowth of one of the tumors, she underwent a second craniotomy on January 29. She has recovered from her surgeries very well, and she was slated to start radiation…
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Don't know what to think
My husband was diagnosed almost a year ago with GBM IV, inoperable. We were told statistically he had a year or less. He had the standard protocal of radiation and chemo, and then was started on avastin approx. 6 mos ago. He has been doing very well. The tumor shrunk considerably after the first course of avastin and has…
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second surgery for GBM
My husband was diagnosed with GBM in Oct 2008. He had surgery then. He recently had resection surgery again on Feb 5, 2010. I am concerned as he is not progressing. His walking and thinking skills are impaired. I am worried that this is disease progression although the surgeon says he needs more time to recover. He had the…