Brain Cancer
Discussion List
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possible useful info
Hey Guys, Some of you may know me from the chatroom, I am an almost one year survivor of breast cancer. I just wanted to share some information you may find helpful. Some of you may have heard of this magazine before..CURE.. The spring issue is "Into the Brain" If you have not heard of the magazine before, you can get it…
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Glioblastoma Multiforme
I was wondering if anyone knows what the recommended protocol is from MD Anderson for the treatment of GBM. Is it Temodar for 2 years, or alternating Temodar with CCNU? I know what Duke University suggests, but would be very curious to know what MD Anderson says....thanks, guys.
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The Grape Cure
Has anyone heard or tried this? It is a South African theory that you eat only grapes for a month or two which then helps decrease the size of the tumour. I have tried chemo, and lots of other ideas and none of them have worked. i was diagnosed nearly 4 years ago and given 8 months to live, so not doing to badly, but still…
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26 yr old Mom w/anaplastic astrocytoma has questions
My daughter is the patient. She will soon start Temador and 6/week radiation treatment. Does anyone have any suggestions or helpful hints for any of us? We are really scared, but also optomistic...is this normal?
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Newbie with oligodendroglioma
I have just finished 6 weeks of radiation and chemo (Temodar) for a Grade II oligo. I also had two surgeries. I am still on Dilantin and just finished weaning off of Decadron. I still get fatigued easily and my legs are very weak. I am also emotional. My biggest concern at this point is my vision, it seems to unfocus and…
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24 y.o. looking for help (GBM)
I am 24 years old and recently diagnosed with glioblastoma mulitform grade IV. I am currently on Temodar and doing radiation. I would love to talk with anyone in a similar situation
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reaction to radiation
My dad has gliablastoma multiforme diagnosed in December. He had most removed. he only has 10 radiation sessions left, and he is really bad. He is worse off now than before surgery. Short term memory is gone. He cannot read or write, and his coordiantion for eating is gone also. He has been reduced to eating over the sink.…
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mixed glioma(oligodendroglioma/astocytoma)
I have been Dx in May 2003 with this kind of brain tumor in my right frontal lobe. I have had surgery to remove it, but am taking temodar, PCV and then Radiation to remove any residue. My mind seems very foggy, and I am in need of anyone out there with this type to respond and make me understand what my future holds. Will…
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Help me to help my brother
This past Friday my brother had a brain tumor removed and today we got the path results back and they were found to be a malignant tumor. He is feeling really scared, confused and is having panic attaks because he thinks his life is over. He is only 18 yrs old and really needs to talk to someone who has gone through this.…
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Support Group
My name is Kevin Poston and I am trying to get a support group started for Teen, and young adult cancer survivers in the North West part of Alabama, if you live in that area and know someone who may be interested please email me at krp@hiwaay.net