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Peritoneal Cancer

Archives for January 2013

2 Years
Two
Gemzar going well for me
Hi All Glad to report the result of my second round of gemzar. My CA125 has fallen by another 25 percent - down from 306 to 223!! So thrilled that this third chemo seems to be doing the right thing for me. Side effects have been minimal - some lethargy and lack of energy and neuropathy in my feet continuing. I am now also…
Alexandra
You were talking about going into have your tummy done. Did you do it yet? If so, how did you make out?
prognosis
hi....my grandmom was recently diagnosed with cancer....she had stomach ascites that developed recently.....she also has shortness of breath and back ache ..when the ascitic fluid was tested it showed atypical cells.....but her organs like liver, kidney and her gastro intestinal tract and the intestines are found to be…
What comes next?
Hi everyone, I write because my 63 year old mother in law was told last week that her PPC is back. She has a peanut size tumor in the abdominal cavity, between the main vein and the aorta. She was initially diagnosed with this in the summer of 2010, and went through eight months of super agressive chemo, plus it took her…
Diagnosed each year
Does anyone know how many people are diagnosed approximately each year with primary peritoneal cancer? Can't find that info anywhere? Thx !
Hope for our daughters
This story from the NY Times tells how in the future there may be a test for ovarian cancer short of removing ovaries to biopsy them. I can appreciate how welcome that might be -- 4 years ago, long before my PPC was diagnosed, I was suspected of having ovarian cancer and had a hysterectomy/oophorectomy. Results then were…
Roll Call - PPC
Hi All On the Ovarian site they are doing a roll call of people with a description of how they were diagnosed, when, treatment, outcomes, etc etc. I suggest we do the same as often when I look up a postee's details there are none. This is such a rare cancer the more we can share information the more we can help each other.…
Vomiting
I am currently in hospital with relentless and ongoing vomiting. I started a new chemo regime 3 weeks ago called oral etopocide. You take tablets for 7 days and then have 2 weeks off. Well on day 6 I could not stop throwing up and I was admitted into hospital. I have been in here on and off for weeks. I have severe…
Good news!
What a long time I've waited to say this: I'm normal! Blood drawn on New Year's Eve shows my benchmark CA 125 marker is in the normal range -- 31.2. Happy New Year! Just had to share the good news. I hope it lasts.
Happy happy New Year
Hi All After 3 rounds of Caelyx (Doxil) with awful awful side effects and rising CA125 I have now completed my first round of Gemcetabine (Gemzar). Thankfully no side effects at this stage however first blood tests have shown my CA125 has DROPPED from 425 to 306!!!! I am so excited!!! After several months of bad news at…
If I request a pet scan
hello I am just wondering if I pay for a pet scan would that show if I have peretoneal cancer or should I just have exploratory surgery? My gyn said come back in 3 months since the abdominal/ pelvis MRI, tv ultrasound and tumor markers were negative. She said that pelvic free fluid on an MRI of the pelvis is NOT considered…
NOT QUITE THERE YET. NOW WHAT--SURGERY?
Happy New Year, everyone! Yesterday I got the results of last week's PET scan. I was hoping for the status of N.E.D.—no evidence of disease. Not so fast. There was no uptake of the scan’s radioactive dye, meaning there’s no metabolic activity in the tumor, which of course is good news. There would be no value in further…

Peritoneal Cancer

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