-
My story
Let me tell you a story about me. First thing is I have cancer(C). I have been living with it for 4 years. End of May last year they told me that I have 7 years to live. Second thing I want people to understand that I have Learning disability (LD). L D makes things challenging to live with never mined C. The thirs thing I…
-
Peritioneal canciroma secondary to colon cancer.
My boyfriend was diagnosed with colon cancer 3 months ago and the doctor said it already spread to peritoneal activity. I searched on the internet and the prognosis is very poor. I am very worried my boyfriend is only 30 and i want him to have a long healthy life. Can someone please share similar stories . Is this type of…
-
opting out of debulking
Hi Everybody, three months ago, my mom, 74 yrs old, went into the ER with bloating and was diagnsed with PPC. I feel like my life suddenly stopped as the doctor was giving us the news and now I live in some kind of cruel existance, parallel to everyone else. To date, we completed 3 rounds of chemo after which she got…
-
Protocel
My mom has stage 3C ppc. She had surgery a few months ago..started chemo..had to stop and is now starting again this week. I had initially heard of Protocel when I started researching alternative treatments. I know many are opposed to the alternative route, but I was wondering if anyone has tried this or knows anyone who…
-
My Doxil (Caelyx) result and extra good news
I have just had my 3rd infusion of Doxil. The side effects during the second round weren't pleasant with bad burning of hands and feet and nasty blisters requiring constant dressing by the nurses - and making life difficult - as well as rashes on my body. However the CA125 came in with a drop of 60 points over the month…
-
I guess it is back again (think it never really went away)
Just coming to the end of my "chemo break" as my oncologist suggested. I had a CT scan and my bloods done last week and will be getting the results in 2 days. I do not have a very good feeling about this. My stomach is bloating, which is a sure sign that the cancer seeds are growing and squashing everything inside. Don't…
-
A new info source?
This week I happened across what I thought was a valuable reference: NCCN Guidelines for Patients/Ovarian Cancer. The National Comprehensive Cancer Network is comprised of leading cancer research & clinical hospitals in the US: MD Anderson in Houston, Fred Hutchinson in Seattle, City of Hope in LA, Dana-Farber in Boston,…
-
New Photo
As you can see I did upload a new photo - current. The previous one was taken last Christmas after my first carbo/taxol. My new look!! JulieL
-
Time
I was reading about how long people had survived with this and had to do a double check. I'm 20 months since diagnosis .Seems like 5years .Strange how the mind plays tricks. X x
-
Good News Story
I want to share this with other PPC survivors! Yesterday for the first time I met someone else who has PPC (face to face I mean, not online!) and she is a 7 year survivor!!! She has had many treatments and for the last year has been clear and no treatment necessary. She looks wonderful and was inspirational to me! I am…
-
3 year anniversary
3 years since the doctors told me I had an incurable cancer. 3 years since I was told the average survival rate for my cancer was 8 - 18 months. Ha ha ha I tricked you all - I am still here and feeling really well and free from chemo (at the moment) I am looking forward to another 3 years living and managing my illness. I…
-
Doxil side effects
I have had my second round of Doxil and am now about midway through the 4 week cycle. This week I have had the burning hands and feet happen, also blotchy but not itchy rash on my lower legs and fore arms and a prickly itchy heat type rash on my chest, back and thighs! Talk about everything all at once! Also some…