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contact with eward
Hi! My name is Sophie, I live in Europe and my mum is staged with primary ppc stage IV since february 2011. I saw in an earlier note that your mum is in the same stage and has been since 2009. This seems encouraging to me, how is she doing today? Has she been in remission? What treatments has she had? Mum has had 8 rounds…
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Anyone on gemzar?
Hi all, Mum will probably change from carbo/taxol which only worked for 8 rounds to Gemzar in february. The option is to stay with only hormones if still in remission. We hope for that. But anyone of you only on Gemzar? I can not remeber I seen it here on the board? Mum is a stage IV PPc since feb 2011. At the moment she…
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No More Chemo
Hey Gang, Yesterday I met with my Onc with a large group of my family and girlfriend. It was time for the doc to outline my options after my hospital stay and scans. Long story short, we decided that since everything we have tried against the C has failed, how miserable the side effects were making me, and in light of my…
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New to this
I was diagnosed in October when cancer was found in fluid from a pleural effusion. I've had debulking surgery that removed the ovaries and fallopian tubes, a third of the colon, my spleen and all the omentum (uterus was already gone). At first they called it ovarian cancer, but after surgery the pathology report came back…
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lymph node involvement
Hello everyone... Just asking for some advice if the answer to my latest difficulty is out there. I've developed a lump in what I think is my lymph node just below my ear. It's hard and goes along the lymph for about a few centimeteres. It's not painful but I'm concerned about what it means. :)
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At the airport
Just been away on holiday to Spain which was a good thing. I was wondering if anyone has any experience of getting assistance at the airport. At the moment, I look well although the pain never really goes away. I have some bloating which is worse on some days than others. Unexpected zonked out tiredness is still a problem…
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Nose bleeds
Hi all, Just wanted to gather info regarding experience with nose bleeds. Mom just finished second treatment and gets one week off before round 3. She had crazy nose bleeds on Thursday like a faucet. A total of 4 for the day ranging from 10-20 minutes. We called the doc and he said come on in for a blood test. Turned out…
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Hubby has PPC
My sweet Hubby had a hernia, when they went to repair, found PPC. Did scans...has abdominal fluid and it appears to have started in the appendix. Just finished 3rd round of chemo and he is so very tired. Eating as well as he can...they are talking debulking surgery but no definite anything...just guess we keep doing chemo…
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Sharing my good news
Thrilled to be told yesterday that my breasts are cancer free. One less area to deal with! Oncologist also advised that the thoracic surgeon saw no signs of cancer nodules on the outside of my lung when he did the surgery to attach the lung to the lining (pleurodesis) which is wonderful. Also following that no further…
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Mums going to have more chemo
Hi all, just to let you know mum has seen her onc today and she is going to have more chemo! She is going to have another 2 weeks to get her strength up ( hopefully ) and then she will have the chemo weekly, mum doesn't know what she is having or for how long, does anyone know which ones are normally given weekly? The…
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Tenderness after treatment
Hi I'm new to this and think I have made mistake already ha ha!! Can anyone tell me how there body feels when they have finished treatment and had surgery?? I had my Chemo in march 2011 had three sessions then surgery in June 2011 then a further three treatments all Carbo Platin and Taxol. My midriff feels very tender…
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Flying with fluid in your lungs ok?
Hi all, just want to ask if any of you have experience of flying with fluid in your lungs? Is 10 hours ok? Anything you can do to ease burden? Thanks! Sophie
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Going for 2nd opinion today!!
Hi guys Im going for a second opinion today at Yale New Haven Hospital the Smilo cancer center and i am very nervous i have been in remission for 3 yrs and my Dr said its back .So i am heading to Yale to make sure before i start chemo again and see if there is anything new out there for us with PPC. I will post anything i…
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Mum is up for travel!
Hi all, I want to share wounderful news with you! Mum is out of chemo until end of januari (on waitinglist to start new regimen as carbo/taxol 8 rounds now has taken its toll) and she and her husband has now bought a ticket to Bangkok for 14 days! Isnt that amazing? I never thought she would be able again after her soar…
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From: daBeachBum Scary Week
January 11, 2012 - 2:54pm Sorry to pile on after a scary week with so many other setbacks for us:-( I have been in the hospital since Thursday night. I presented with massive pain, bloating, and fecal vomiting and diarrhea. Their original prognosis was a perforated bowel, which is kind of a de-facto death sentence for me…
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Thank You
This is my first time writing on this board, but I have been reading the discussions for about two months. My mom is 75 and was recently diagnosed with PPC. I had never heard of PPC and mistakenly went to Google to educate myself. After a few days of utter panic I came across this site. From that day on, I feel equipped to…
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New from Cal
Hello I found this site, while trying to find more info on Peritoneal cancer. My mom was informed at the end of June last year, that she had Peritoneal Cancer. I feel like I/we have been running ever since.I feel like we landed in a made for TV movie. There was no cancer in our family until a couple of years ago. One of my…
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Chat rooms
I cant seem to get into a chat room anyone else have trouble?
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I'm new too
I was diagnosed last month with PPC following a collapsed lung and testing of the fluid which was drained off. I am very grateful to wonderful medical team who acted very quickly with surgery to repair my lung and my first chemo (Taxol and Carboplatin) within a week. I will probably have surgery after 3 rounds of chemo. I…
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Im new
Hi im new i just found you guys and have had ppc for 3 yrs.I went to my OB GYN and kept complaining for yrs about pain she sent me for an ultrasound and did a pap smear and said there was nothing there!This didnt happen just once it happened many times and i felt like she thought i was a hypocondriact(sry for spelling)So i…
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Waiting for results
Hello, I am writing this for my Mum Fiona. She is 65. I am 36yr old daughter. She is my advisor, my go-to when I am unwell, or have to 'chat' about life/men/jobs. I work aborad a lot. But I can't leave her now. She has raised 3 children as well as looking after a husband and cooking 3 course meals for 35 years (and going…
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update on mum
Well, all I can say is a miracle has occured ( well thats how it feels! ) Mum has been to hospital for assessment, they were surprised to find her so well, we have the hospice to thank for that, they are just wonderful, mums onc has said for her to have another 2 weeks getting strong and then she can have more chemo, mum…
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gggggggggggggrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!
http://www.youtube.com/watch?v=ToQ0n3itoII&ob=av2e For mum , miss you xxxxxxxxxxxxxx
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Mom is doing good!
Well, mom had her checkup after her last chemo at the end of october. Her ca125 was 3 than. Now she is in "remission" and her number is still a 3. I am very relieved. Now he is deciding to send her for a catscan of her lungs. Makes me a little peeved because if we had gotten treatment at a better hospital overall i am sure…
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Tina
Just wondering how you are doing. I have been busy with the holidays and may have missed a post from you. I hope all is going well.