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Peritoneal Cancer

Archives for July 2011

Please tell us your story
Hello to all of the brave women on this network. My mother was just diagnosed with PPC at stage 3c. She just had surgery (hysterectomy, and omenectomy) and will be seeing an oncologist. At first her symptoms were vague. In June 2010, She had a hx of a simple ovarian cyst seen by ultrasound,which was followed up after 4 mo.…
Long day tomorrow
Hey gang, Have a long day at Penn tomorrow. I'm scheduled for my second CT scan with contrast in the morning and then the usual doctor's visit and chemo hook up in the afternoon. This will be my first scan since they swiched out Avastin for Oxaliplatin. I will tuck in lunch with my mom and aunt in the middle. My onc thinks…
Secondary Peritoneum Cancer and FOLFOXFIRI Treatment
Hi all: Got the results of my MRI today from the oncologist. The MRI was done after 4 treatments of oxaliplatin/irenotecan/leucovin/5FU pump for cancerous seeding from a surgically removed gallbladder and its tumour. The good news is that the number and size of the nodules have not increased since an MRI done in April 2011…
Any recommendations for the newly diagnosed
My Mother, 69, was recently diagnosed with Peritoneal Cancer. We are in the very early stages of treatment as she has only had CT Scan and biopsy and has Omentum tumor and ascites removal surgery scheduled for Wed. July 27th and further treatment to be three rounds of chemo with a three week break in between. There has…
aussiemaddie
Hi, my husband had a cocktail of chemo thurs, it was all going fine until we were about to leave the chemo unit, when he had a reaction to the chemo which he couldn't breath, laryngeal spasm!!!!! Then he has been very sick and poorly since being home, he seems a little better today, a lot of belching though? On the good…
Not riding the chemo train again
Even though I post a lot on the ovarian cancer board, I thought I would post my update here as there seem to be more people who share my situation on this board. The situation is where you watch your elevated CA-125 without going on chemo right away. Basically, my MRI looks stable without lymph node involvement (no…
QUESTION? Mom in pain!
Mom had her debulking last friday so it has only been a week. I am concerned yet I understand alot of the reasons she feels the way she does. They sent her home with dilaudid and i just don't get it. It is like dope. The pain is still there but u can't **** about it. Excuse my french. I have begun to sound like a trucker…
From appendix to peritoneal?
Hi, my name is Mitch. about a year ago, I had surgery to remove my appendix. It was cancerous with goblet cell and signet ring cells present. I had a second surgery and they removed a string of cancer that had traveled from my appendix around the abdomen wall the back of my abdomen and created a tumor about fist sized and…
no offense to anyone, i neeeeed clinical, non inspirational answer , bottom line real answer. pleeee
> I have been asking for a detailed description of what to expect, physically , on progression of a dying patient. I have always walked my life in gratitude and love.I am not ready to die....but I know that I am. With never having more than 4months remission.I am fearful of the unknown part. I am good with the dying part…
thankyou
Thankyou to the replies with regarding my husband secondary peritoneal cancer. He starts his chemo tomorrow. Please keep me posted on any informatin for us, which we hope will help us in this so upsetting time of our lives.
SUCCESS!
I am very excited to say that during my mom's debulking on Friday, i was a nervous wreck but it was a success! They removed the omentum, hysterectomy, they only had to shave the liver, and spleen and other stuff. They only left a little bit in stomach that would have caused too much damage. She said 90% of tumors were…
ascites
Hi, im new to the peritoneal cancer site, my husband was dx stage 3c cc aug 2010, he had surgery then 6mths xeloda tabs, was doing very well, his last scan on the 24th of june found that the cancer had spread to the peritoneal, and one spot on lung and liver, his oncologist was concerned with the peritoneal, and the…
I opted out of the clinical trial
I opted out of the clinical trial last week. After two cycles of the Doxil, Avastin and Torisel they did a CT scan. One cycle consists of: Day 1 - Doxil, Avastin and Torisel Day 8- Torisel Day 15-Torisel The scan showed some shrinkage in the tumors, not alot. Between the blood work and CT scan it did show: Damage to the…
short term memory loss
I really didnt notice many cognitive changes during chemo. I have been off chemo 6 weeks now and I seem to have trouble finding the right word at times and forget the names of things. I usually eventually think of the word I want but it is annoying. Maybe I just notice it more because I am out and more social now. Has…
New to PPC - Eggs freezing
I am in Upstate New York in the Rochester area. Am a new patient of PPC. Primary Peritoneal Cancer. Will start Chemo soon. I have read about free eggs freezing for cancer patients by an Institute called SHER Institute for Reproductive Medicine. They are in the East Coast, West Coast and other locations. Does anyone know of…
Surgery!!!!!!
Mom went to Penn to find out catscan results. Chemo is doing it job and shrunk tumors quite a bit. Great! The only thing the same is her omentum which is where alot of the tumor was. I really would like to see the cancer. I know that sounds terrible but I love science and medicine. She has her debulking next friday. Dr.Chu…
Plueral effusion
My cancer was diagnosed after I suffered double plueral effusion. I underwent 3 chest drains within 2/3 weeks of each other before I started on my chemo regime. 4 weeks into my treatment I was back in hospital having my 4th chest drain. The irony of this was like a kick in the teeth as I was a road runner and used to run…
Trifunctional Antibody Catumaxomab as treatment for PPC
Future Oncol. 2010 Sep;6(9):1387-94. The trifunctional antibody catumaxomab in treatment of malignant ascites and peritoneal carcinomatosis. Ströhlein MA, Heiss MM. SourceDepartment of Abdominal, Vascular & Transplant Surgery, Cologne-Merheim Medical Center, University of Witten/Herdecke, Ostmerheimer Strasse 200, Cologne,…
Peritoneal Stripping
My doctors have said that they might contemplate releasing some of my adhesions as they are dense and take my peritoneum out by stripping it. Does anyone else here have any knowledge of this process and how difficult is the operation? Thanks everyone...:) Sue
Things that help us cope
It is hard living with a cancer diagnosis yet we all do it and all seem to manage to cope. What sort of things do people find have helped them "pick themselves up and carry on?" For me it is writing. I started writing in a journal a year before my diagnosis. I lost my mum to cancer and a very special relationship ended. I…
Happy Independence Day
...to all Americans on this discussion board! Cheryl
how many doxil infusions have you had???
After visiting the consultant today , he has said they only give 6 doxil treatments in the UK as there is no evidence that anymore is beneficial. I seem to recall someone posting on here that they had had about 18 doxil treatments? maybe I am wrong , but after he said it , I thought I don't care if it is just holding it at…
fab news for mum today!
Welll after being told the chemo was failing, today we have been told that the ct scan shows no new growth!!!!! hooray , happy days. So the plan of action is for mum to have the doxil on thursday, as she was previously. However, the consultant did say that as her ascites had filled up after only a week, it could be a sign…
Unusual?
I have posted before about mums PPC, just thought I would update and get some more opinions, great to have a PPC board!........ I was struggling with the fact that Mum has so little to go on re her symptoms and CA 125, her CA125 is never high and she had no symptoms except a pain in her stomach which has since been helped…
Catscan?
Unsure of why they will be able to tell if my mom's cancer has shrunk through a catscan? She had a catscan and the gyno/oncologist said it looked fine. Now all of the sudden they can see it?
For Cheryl - Our experience of different types of peritoneal cancer
Hi, rather than answer Cheryl's question about what type of peritoneal cancer I have under the topic of Hair loss and changes, I thought it appropriate to start a new thread on the topic, since the two are not really related. Others on this board have different experiences of peritoneal cancer. Mine was found, not by the…
Hair loss & changes
Bringing this subject over from those of us who started the subject under "Rare and other" types of cancer. Have I said to you Tina that, like Cheryl, I really like your bald look. Really suits you. Not everyone can do it. As for my own look, after mine started to regrow, my sister firs observed that it had grown back…
ggggggggggggggggggrrrrrrrrrrrrr I am so p****d off :(
Its Isabella sports day today.I jjust asked mum if she wanted to tag along.She is so up and down with how she feels at the moment, she doesn't feel she can come.Mum said she was afraid of being sick , she has been sick nearly everday day now since she has come home from the hospital. I am just so fed up (and upset today)…

Peritoneal Cancer

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