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just diagnosed -- need information
Endoscopy diagnosis of malignant tumor in abdominal esophagus. CT scan and ultrasound are being scheduled for staging. I need some basic information of where to go from here. Tumor was "soft" which suggests an earlier stage, but will have to wait for all test results. I need suggestions for surgical/onco team in Phila.…
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Fatigue update
The responses we got on fatigue were very helpful, enough so that my husband added this discussion group to his favorite list. He started his 6th round of chemo yesterday. He had been concerned that his fatigue would postpone the chemo. As it turned out as long as his blood counts were okay, they weren't concerned with how…
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Scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
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We are being discharged tomorrow
We are going to be discharged tomorrow, I am learning how to deal w the feeding pump today and getting all organized to go. I am so excited to be leaving and to see the turn in Layne--which was miraculous! Today, he walked downstairs to the piano and fountain and we listened for about two hours. Later, we will go see our…
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Husbands PET
Yesterday my husband got the results from his PET scan. Overall things looked pretty good. The lymph nodes and tumor at the esophagus have all shrunk considerably. He just finished his 6th round of chemo on Oct 5th (Epirubicin, Oxaliplatin and Xeloda every 3 wks). He has been feeling pretty good the past few days. The…
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Confused after EGD
Hi, Well, got my EGD and did not get the stent or tube. The dr was going to put a j tube in my small intestine since he said that my achalasia prevented the stent placement. But when he tried he could not do the j tube because my small intestine was not in easy reach. So went home like I came. He said everything looked…
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New to group
This is my first post to this group. I have checked posting a couple of times since my husband was diagnosed with stage IV esophageal cancer in July and have found it helpful, thank you. Discussion boards are new to me, please forgive any novice mistakes. He has compleated 5 weeks of radiation and 5 rounds of chemo. The…
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update on my dad
Hi, Well, my parents have decided to go with Johns Hopkins in Baltimore. They really like the Dr. alot. However, she's putting him in a wait and see status. I'm not thrilled, but whatever she feels. She does feel that he was on the right track in the clinical study and fully understands that it's going to be too hard to…
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need prayers- re-staging for Kim's ) aka (K_ann) dad this & next week.
hi cyber EC buddies in this most unlikeliest of circumstances..... I am thinking of all of you---all at different junctures of this process..prayers for all of you! My dad is going back to Duke for re-staging. He gets the Ct, PET and scope this week and surgeon consult next week--- I am so inspired by SO many on this…
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getting my EGD tomorrow
Hi, I just wanted to ask for good thoughts and prayers tomorrow, my EGD is scheduled at 1 PM and hopefully the gastro dr will be able to do a stent so I can eat better and swallow a lot better. I was not supposed to lose anymore weight and somehow dropped 4 lbs in 4 days with doing shakes and Ensure?? He also will be…
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Updates moving to our carepage
With Layne being so paranoid and combative I need to keep updates to a minimum but I know what info on the day to day of the surgery means to so many. Therefore, just to let you know that we will be updating every day, all the meds and side effects, etc., on our carepage. www.carepages.com/carepages/ourjourneyinhishands…
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BILL MARSHALL IS THE MAN
Bill you seem to make sence of this guilt and anger that i still carry with me all thease years I am sorry i did not know you in another life when i was VERY ANGRY and distructive You know how to put pen to paper as well as anybody i know including the doctors i was forced to see when i came back for the Nam THANK GOD for…
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NEW UPDATE ON LINDA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Just want everyone to know Linda is doing very well I have been here all along but just not posting much I was reading a post by our GREAT Bill Marshall and it just reminded me of something that happened to me while i was in the **** Hole in The Nam I was holding the lifeless body of my buddy in my arms not wanting to let…