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Feeding tube problems
Is there anyone out there who has problems with there feeding tubes. I would really like to get some info from others who deal with this problem.
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PLEASE SAY A SPECIAL PRAYER FOR KITTEN 0385
As you all know our dear friend Kitten, had to go for testing today, when you read this please stop and say a special prayer for her and her husband. Her tests don't look good, and I am worried. She has only been married 1 year, and hasn't even reached a 1 year anniversary from her last surgery. Her spirits are good, and…
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Results
Hey everyone.... Well, the CT scan showed fluid around my liver and lungs, so I am having further testing the next couple of days here at Mayo to find out if it's a residual effect from chemo/radiation or if it's cancer. I will update when I know what's going on! :0) Cathy Hey, as I always say..."Life's not about waiting…
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NOT FEELING WELL TODAY
Jeff, is not feeling well today, I guess we will have those days, he ate oatmeal yesterday and he never threw it up, but made him sick, I bought the kind of Brown Sugar and Maple and we think it was just either too sweet or just not for his body. I know we are going to have days like this, but only being home 5 days I…
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KITTEN0385
To all the esophogeal survivors/caregivers, please pray for her tonight she has a CT scan tomorrow to make sure everything is going well. She is very nervous and scared since it hasn't been a year yet. PLEASE SAY A PRAYER THAT THERE IS NOTHING THERE. thANKS LORI AKA MOE
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ITS A SLOW PROCESS
We have been home since Saturday, and doing semi well, he still cant do alot of things by himself, but I let him do what he can. I am blessed that he is doing as well as he is. I am also blessed that my work is letting me work from home, so that I still bring in a paycheck. Jeff had a very hard and rough road during…
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My dad is now home
Wow, yesterday the hospice let us take my dad home. We felt thats where he wanted to be. He kept trying to bolt for the door, regardless of wether he had strength or not. Thats my dad.Last night was his first night home. He had been an avid bicyclist so it was clear this morning he thought he was gonna start his routine…
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WE ARE HOME!!!!!!!!!!!!!
It is Saturday evening around 7:30 pm, we are home from a 3 week stay at the hospital. As you all know we started this journey on July 23, at 7:43 am, the surgery went well, on friday July 24, he was knocking on heavens door, I truly lost my husband but the angels upstairs was not ready to accept him yet, so they set him…
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CT Scan
Hey everyone!!! I have a CT scan coming up in just a few days, and I just wanted to ask everyone to say a little extra prayer (If you pray)...if not just cross your fingers and toes...for me these next few days...I could sure use it!! There was a spot of fluid they were watching by the surgical site that they're not sure…
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HAPPY I AM NO MORE TUBES-WE ARE EATING OUR FIRST FOODS- I am now a survivor
Well, I would like to share my final story from the hospital, we passed our swallowing test today, we had the NG tube about 3 pm today, and we are now eating our first foods, it is only soup and tea but it is a start. He is thrilled he said it taste like "GOLD" he is doing so good. We will still have the feeding tube and…
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My father has been diagnosed with an aggressive form
It is now Thursday August 6, 2009. My father is dying of Stage IV Esophagael Cancer. This cancer he has is aggressive, it came on in a month (may have been longer but nobody saw the signs)and once it was realized that the pain couldn't be controlled by the pain medication he had been prescribed for bad back pain(which we…
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One more tube out and 2 more to go
Okay, wanted to share more good news, we got our foley out, so he now has his "BIG BOY UNDERWEAR ON" (THAT IS MY SAYING GUYS) he has had a full day, physical therapy, lots and lots of company, and we are tired tired. Busy day, they brought me in a bed so we are set for the night. Jeff has come so far, in just 3 days, but…
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ANYONE WANTS MOE'S SHOES CAN HAVE THEM-I AM DONE WITH THEM
Well we are in our own room now, after 14 days in ICU, we will be in the hospital 2 weeks tomorrow, I have seen my husband on Death door, I actually know he was so close to dying, he has come so far, I prayed to GOD every day to bring him back to me, and I would never fuss with him again, well maybe just in a different…
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Choosing between more chemo/radiation or Surgery
My father was diagnosed with EC in May and has already received 2 rounds of chemo and 6 weeks of radiation. Now, he has to decide whether to have surgery or go for more rounds of chemo and one more round of radiation (and if so, lose the opportunity for surgery altogether). You can imagine this is a very, very difficult…
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WE ARE IN A ROOM NOW ONLY HAVE 4 TUBES NOW
Well we got moved to a room today after 14 days in ICU, Jeff is doing very well, he still has the NG tube and the feeding tube, we took the swallowing test and no leakage which is great news, but we are still too swollen to tolerate food so we are on meds for that first probably in the next few days we might be able too.…
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MOE IS JUMPING UP AND DOWN UP AND DOWN
I got a call this morning about 8:30 a.m. from the hospital telling me that Jeff's ventilator had been turned off and the tubes taken out and was asking for his 'WIFE" I immediately got dressed and not drive but ran to the hospital, it had been 12 days that I had got to talk to him, when I walked in, he cried I cried we…
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kindness and grace
when my love told me he had ec my heart stopped he was scared and needed me when my love grew tired and weak my faith was tested his outlook stayed focused never give up we pledge daily my love needed me and forever whatever that is I am his and I believe and he believes and he Lives so just for today with kindness and…
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Newbie
My wife of 43 yrs Linda was diagnosed with EC back in Febuary She is finished with Kemo and Raidation Surgery is in 2 weeks She is at Sloan in NYC I am tempoaraly unimployed and her care giver PLEASE someone give me help to get through this I know it is not easy to do I am doing my best Just need some advice here She is MY…
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UK centres ?
Does anyone know of a centre in uk that offeres alternative cancer treatments to supplement traditional treatments . I am specifically thinking of esophageal cancer which my brother has - stage 3. Thankyou