So, my other chemo quit working, my CEA count went up to 24 this past week or two ago. So Friday the 21st I received my first infusion of Irinotecan. They told me to be prepared for stomach craps and had a vial of something to counter act it should it happen. It did not. After arriving home, I had a bout of diarhea, went three times in a hour. Then it went away on it's own. I felt fine and no other problems until 4 days later I had another round of diarhea (5 times) in the evening of the 24th, so I took to Immodiums (I prefer capsules)and it went away. On the 26th in the afternoon again another bout of diarhea, (4 times) so I took one Immodium as two seems too much for me. Other then a lot of burping and farting, I feel fine.
The first day, I swear I tasted metallic and salt. My nose ran slightly. But the next day nothing more felt. If this chemo is working and these are the side effects, I could stay on this quite some time I think. Of course I say that now, the side effects could worsen, etc., don't know in the future, but at the moment, all is well.
I am worried about losing my hair, but not as much as I would of two years ago, now I think of it as necessary and am looking at scarfs and hats to buy just in case, so I'm getting into the attitude of "oh, this scarf will look cute, or that hat is just right", guess it's attitude that you have to force your self to have in order to handle the many things that cancer does to you.