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Peritoneal Metastatic Adenocarcinoma

I was found to have Cancer of Unknown Primary (Peritoneal Metastatic Adenocarinoma) in April 2007. Before this I had stomach pain and had a biopsy done, but it came back negitative. So my doctor scheduled surgery to remove the two tumors and it turned out to be indeed cancer. I had 9 treatments of chemo (the treatment mostly used for women with ovarian cancer). I have been in remission since. I have blood work taken every 3 months and have had good results everytime. I was given the grim diagnosis of 2 years survial, but I am beating this at this point. I have yet to find anyone with this type of cancer, so I feel like a lone ranger. If anyone has this type cancer, please let me know your situation.


Last November I was diagnosed with Stage 4 PPC and it sounds similar to your cancer except mine was not localized into two tumors; rather it was scattered like confetti throughout my entire abdominal area. I had tumor debulking surgery which included removal of the omentum, female organs, and appendix followed by 6 courses of chemo -- also the same as that used for women with ovarian cancer. I responded well to chemo once the medical team found drugs that I could tolerate, and for the last couple of months I've been feeling great (my husband and I actually went on a 3-week camping trip). In two weeks I will see my oncologist for my first 3-month check up. As you can imagine, I'm somewhat nervous about what he will tell me. I would just like to thank you for posting your picture and your blog as it has given me immense hope that perhaps I will also still be around in two years. Long-term survival for those with PPC is iffy at best and it does my heart good to see how well you look. We just have to make the most of whatever time we have, so I hope you're enjoying your life. God bless.

Hello Lori, what a wonderful picture! Read your story with great interest & amazed at your recovery. I have just been diagnosed with Metastatic Adenocarcinoma but we don't know the primary yet. I am also in Stage 3 Kidney Disease but not yet on dialysis. My question is,
did you have kidney disease before they found your tumors? My metastatics showed up on the spine at the sacrum & L3, L4 & L5 vertrabraes this Nov. 09 after a Lumbar MRI. I had my first Lumbar MRI in June 09 which showed nothing. A constant backache was my symptoms for the last year and half. Needless to say, I am pretty drepressed and scared at whats to come. If you, or anyone else going thru this, can share a little with me about your journey so far, I will be so grateful. Best Wishes, Pat


I am so sorry it has taken so long to reply, I hope all is well with you.  It is now May 5th 2013 and I am still at this point in remission.  I now only see my oncologist once a year.  I did not have kidney disease, but I am diabetic and they always watch your kidneys.  I hope you can respond, I feel bad I have not been on this site for 4 years.


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