-
Six Weeks Post-Op: My Questions
I took the following questions to my gyn onc who did my DaVinci robotic-assisted laparoscopic TH BSO and partial vaginectomy. He did not want to address my questions, and instead sent his PA in to talk with me and we went through them. Because they had a particular "vibe" going on at the clinic, she was also a bit…
-
TVUS Result 13mm, Scared to Death
Hi, I am new on here and hoping to find out more about Endometrial Cancer, testing, testing results, questions I should ask doctor, etc, etc. I have spent hours and days researching online and all I can do is cry, Im scared of dying and scared about the pain and side effects like Lymphedema that treatments could cause. I…
-
Looking for transportation
Hi I am new here. Looking for transportation to get to an oncology specialist 3 hours away. any ideas? Thanks!
-
Neulasta Onpro ??
I’ve had my 5th cycle of carbo/Taxol delayed 3 times now due to low blood counts. The first time it was cancelled I had low platelets and low WBCs, but specifically too low of neutrophils along with my platelets being too low for chemo. I was told to come back a week later. 2nd trip showed my neutrophils had increased some…
-
Finally some relief - neuropathy and diarrhea
I had seen my doctor's PA a few times who was much easier to talk to than my doctor who is from India. I signed the paperwork that I did not want any further testing like mammograms, colonoscopy, etc. I explained that I would not accept any further treatment if the cancer came back. Then she had me go through this…
-
18mm endometrial lining
Asked this on the gyn forum and then saw this one may be more helpful. I guess I'm just trying to see what I'm headed for... I'm turning 50 in a few months, and have had three full years of crazy periods from so heavy I was frightened and almost a month long, to missing period for months, to pink for days. Strange…
-
How is NED determined?
Hello! My mom just finished 8 rounds of Carbo/Taxol and is in a Keytruda trial. She is going for a CT scan right now (I'm praying hard). I was wondering how NED is determined? At her last CT scan, which was after Chemo #6, there were still 2 lesions. Does the lesion have to go away completely and no new ones to say NED?…
-
Pseudoprogression in Immunotherapy
I haven't done an update other than scatter some comments on other threads. I had my second Jemperli infusion last week but because the GO didn't like sounds--or lack ther of--I was scheduled for a CT scan which was today and results were posted within hours. Not pretty. The only good news was I have no blood clots that…
-
S/P TAH BSO= Status post total abdominal hysterectomy bil salpingo oophrectomy
Happy July 19th, my day of discovering I have high grade endometrioid adenocarcinoma FOGO grade 3, what a mouthful! I am 3 weeks postop and my very fisrt surgery ever, at age 69...lucky me. I felt the surgery was easy, almost pain-free too....only took 3 tramadol 50mg once discharged. I just happen to be a RN and wow it…
-
Hyaluronic Acid Gel For Vaginal Stenonis?
6.2. Hyaluronic Acid Therapy for Vaginal Side Effects after RT In Addittion To Dilator Use In addition to dilator use, I came across this study and was wondering if anyone has ever heard of using a gel with HA. I know I have fread about HA causing cancer cells to grow bit I thought that was if you took supplements. I will…
-
Metallic smell after treatment
I have just finished day 8 of 28 external radiation treatments. I was not prepared for the strong metallic odor I encountered on my person after treatment. Originally, I thought the odor was in the house somewhere at first... my cats, the trash etc. Then I realized it was attached to me.I thought it was in my clothes since…
-
Fatigue
Hello, My mom was diagnosed in December 2020 after her hysterectomy. There was spread to her lymph nodes. She started Carbo/Taxol and was in a Keytruda trial. She had her 8th (and scheduled to be last) chemo 4 weeks ago. She had a Keytruda infusion last week. From her 8th chemo and since, she has been incredibly tired. She…
-
Very Probable Recurrence (Update about my mom)
Hello all, I'm not sure if there's anyone who still remembers me. My last post about my mom was in 09/28/18 when she went into remission after being diagnosed with UPSC IIIC2 in 08/2016. It's been several years and I'm very sad to see many of the ladies who were a huge support and encouragement to me have passed on. Yet I…
-
Brachy Question - If You Do Brachy Can You Do External Pelvic Later If You Recur?
Hi Ladies - me again - sorry to be a pest. Does anyone know for certain if you do brachy only as initial post-op treatment, is external pelvic radiation an option if you have a local recurrence? I had one RO tell me yes, one tell me yes but at not at as strong a dosage as you would have had if you did external first and…
-
Chemo alternatives
Mom is currently in the hospital for pain management , she is 59 years old and was diagnosed in March , she has had 3 chemo treatments carbo/taxol and her main tumor has shrunk by 60% and her lungs are now clear of nodules BUT she also had disease progression and a new growth was detected on one of her lymphnodes cause…
-
Brachytherapy treatment
I had to have brachy treatment this time last year along with radiation for a reacuurance that I had. I am still getting diarrhea from it. Doctors gave me medication,I eat the brat diet. How long will this last? Any one else suffer with this?? thank you
-
1B3 - 2nd opinion slight different about radiation - internal vs external
My GO post-surgery and final path recommended 25 external radiation treatments for 1B3 EC no lymph involvement pelvic wash clear etc. I sought second opinions. I had one yesterday and the GO said to do inernal radiation instead. She acknowledged there is limited data spefically on 1B3 with no lymph node involvement and it…
-
My Garden Style Cancer is Kicking My ***
Spent yesterday feverish and ill. I am leaking from my backside from the HDR brachytherapy. This is not the most fun I've had in life. On the up side, I am vertical, no longer so dizzy and ill that I can't walk. I'm torn on whether to make the four hour round trip to our house on the Oregon Coast. Daughter, son-in-law, and…
-
Help! Post-Op Follow-Up Exam With GO & Also Exam by RO
The radiation oncologist told me he would need to physically examine me before starting external treatments. I kind of freaked out as the timeline wiill fall around the same time as when I am due for my post-op follow-up with my GO which I am sure also requires a physical exam. I had surgery on 6/10 and my appt with GO is…
-
Optimal Time Of Day To Schedule External Radiation If You Work?
Hi All - hop3 everyone is having the start of a nice long holiday wekeend. I am going to move forward with the 25 external radiation treatemnts. I am supposed to do my simulationthe week of 7/12 and start treatements the week of 7/19. Still waiting on insurance preapproval and scheduling. I was told that when I come in for…
-
Blister Pill Packs (and Imodium)
I'm starting this topic after reading a comment on another post. As I've mentioned in other posts, I've been plagued with diarrhea ever since I started taking Metformin for my Type 2 diabetes back in 2014. The diarrhea was far worse after my surgery and chemo treatments. And I continue to have problems today. Loperamide…