Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Archives for March 2020

Let's all check in,please
I am so worried about so many of you and not sure if you gave up on getting connected after the hacking or if you are not well or hopefully you are content with life as it is for now. But, just realized how much I miss not hearing from you and knowing that all is OK. I am on day 9 of the Magace and so far so good. I have…
Prayer for those on chemo
Prayer for today Lord, my heart aches for my friends, who are undergoing chemotherapy. How it saps their energy, Lord. Sometimes it seems the cure is more devastating than the disease. Stay close to them in this time of healing, Lord. Bring them comfort, and fill them with the knowledge that they can find hope in you. I…
Who would have thought?
I'm sitting here, listening to the "Best of the 60s" and thinking about my life. I was born in 1952, grew up in a small town, dirt poor, the oldest of five kids. We lived in a one-bedroom house and us kids slept upstairs in an unfinished attic. Our father beat us all along with our mother. I met my future husband when I…
Supposed to start Brachytherapy on Monday amidst covid-19 outbreak in NYS
I desperately need some advice. I don't know what to do, and I feel like my doctors are afraid to advise me one way or the other. First, I live in NYS where the outbreak is most active, though I am in upstate NY far away from NYC. My county currently has 46 positives, 200 in quarantine, but are refusing to test anyone that…
Timely article about cancer patients and Covid-19
Coronavirus means difficult, life-changing decisions for me and my cancer patients https://www.theguardian.com/society/2020/mar/19/cancer-patients-coronavirus-outbreak-difficult-decisions
GYNs won't do a visit
I started to lose weight the week before I began the rituximab for the indolent lymphoma. BTW, my counts improved greatly after the first dose, so clearly, it works for me. So naturally, my first thought, when it became evident yesterday that I really was losing weight, was that I had better start with an internal check,…
How is the virus impacting you?
We've always said that this is a safe place for us to vent our frustrations and fears, so I thought that I would start a thread where we could share with each other what's going on with us because of the coronavirus. We may have to do social distancing in our immediate environment, but we still have each other to lean on…
Just Have to Vent
So when last we talked I was starting to take Repatha for my cholesterol because God forbid I die of a heart attack instead of this damned cancer. I took one injection and by blood sugar spiked and was out of control. My endo vehemently denies its the Repatha but I know in my heart of hearts it is. He says although it's on…
Sometimes life makes the decisions
So much has happened in the time we were offline so let me share a little. I sold my home so easily and put the equity in a MM for end of life care when needed. Moved to my son's home Feb. 29, and all settled and all my worldly goods in one room! Just like I wanted it. My guys have been fantastic and Harry(my dog) and I…
Left bum discomfort after dilator and sex
I have not been having regular sex or using my dilator on a regular basis. I did not use my dilator for 4 months. When I did use it I ended up having some bleeding. I was checked out by my Mayo P.A., radiation onco doc and oncologist NP. They said everything looked Great. They stated the bleeding was from adhesions. Well,…
Keytruda/Lenvima ---- DAY 21
Glad to see the Discussion Board is up and running. I missed all you ladies. Well, today is Keytruda infusion #2 for the 30 minute infusion. Blood work was yesterday and I was expecting WBC, RBC, and hemaglobin to all be down but surprisingly all were actually up and all in normal range. great! Started Day 1 with 2 pills…
Coronavirus is deadly to us. Plan on self-isolating, very soon
I'll add more if site allows posting. It's been acting glitchy.
Radiation only statistical data
I first would like to thank everyone for all of their posts to this website, as they have helped me greatly understand things that men will never experience. My wife has recently suffered many significant medical issues and just as we thought we were seeing the light at the end of the tunnel, we were hit with the…
Persistent Iron-deficiency Anemia
Two and one-half years out from 12 rounds of Carboplatin & Taxol chemotherapy, my blood work shows persistent iron-deficiency anemia. I have been taking 65 mg daily Iron for at least one year, together with Vitamin C, and I eat daily protein of red meat, chicken, fish, legumes, etc. and plenty of the "good" veggies. Since…
So Glad We're Back!
I was really getting worried when this board was down for so long! What if we lost each other forever?? I wish there was some way CSN could keep track of posters. When I don't see someone for a while, I just hope and pray that they are doing so well, they no longer need our support. I know some of us are connected on other…

Uterine/Endometrial Cancer

Discussion List