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Uterine/Endometrial Cancer

Archives for November 2019

Happy Thanksgiving
Just wanted to wish everyone a Happy Thanksgiving with hopes that you all are in the midst of whatever your plans are. This group is one of the blessings in my life that I give thanks for even if I had to get cancer to need to find it.
Tested for Lynch Syndrome?
Hey all. After your biopsy or surgery, were you tested for Lynch? My gyn onc's office called to ask if I wanted my biopsy to be tested. They automatically test now, but back in 2012 when I was dx and had surgery they didn't. I said 'sure'. Goodness knows what this test if going to run on my insurance. So my questions to…
Endo cancer and cardiovascular death
There's a new longitudinal study out, "Cancer Patients Are at Higher Risk of Dying from Heart Disease and Stroke." I think it's worth a read by all of us. A few takeaways that particularly caught my eye: "For some cancers, like breast, prostate, endometrial, and thyroid cancer, around half will die from cardiovascular…
Thank you cmb
Thank you so much for all of the work you've put into the tribute and FAQ posts. I can't imagine how much time you've put into this, but your effort means so much!
A Tribute to Those Women We've Lost, but Not Forgotten
This page was created to memorialize the wonderful women on this board who did not survive their cancer. Although they are no longer here, we honor their journeys and appreciate their contributions to our collective knowledge about uterine cancer. This list focuses on those members with uterine cancer, but includes some…
Did you know there are oncology PTs
A really bright spot in my journey was my appointment today with an oncology PT ! He made me feel so much better as I do have lymphedema in both lower legs and he has given me relief that it will soon be under control. He also was very open and comfortable talking with me about the value of this therapy as time moves on.…
A Uterine Board FAQ?
I've been thinking about when to "unstick" the post explaining the data outage that now appears first in the topic list. I've left it stuck at the top of the topic list this long since I know that some members may go quite a while between visits to the board. But perhaps a more useful "sticky" topic would be a Frequently…
Clinical GYN-ONC research and personalized treatment protocols at Yale
Tonight I was at a lab tour and lecture at Yale's Gyn-Onc department. Their physician clinician researchers are doing clinical research and personalized treatment that is of great interest to me, and I assume to the women on this forum. The physician researchers are performing genetic sequencing of tumors, and then…
Living with recurrent advanced endometrial cancer at 56
First visit on the forum. Diagnosed with Stage 1B uterine cancer 19 years ago at the age of 37 ( no genetic predisposition, thin, no estrogen use, no risk factors). Treated with surgery and pelvic radiation. I did well and went back to work in healthcare after recovering from surgery. Thought I was cancer free forever. 2…
High Grade Endometrial Stromal Sarcoma (HGESS)
Has anyone diagnosed with HGESS and Stage IVB taken Doxil therapy monthly? if yes, how did it go?
Tips for surgery and after?
Dear wonderful people on this discussion list, I so appreciate all the tips I have received so far! I am facing surgery this Friday--laparoscopic and robotic. I should go home the same day. I have every confidence in the surgical team and have been assured by a doctor friend that Kaiser here is the best for this kind of…
Wait times for surgery impact on survival study
Impact of wait times on survival for women with uterine cancer. Elit LM, et al. J Clin Oncol. 2014. Show full citation Abstract PURPOSE: To determine whether wait time from histologic diagnosis of uterine cancer to time of definitive surgery by hysterectomy had an impact on all-cause survival. PATIENTS AND METHODS: Women…
One year ago.....
It's late at night, sweet hubby has gone to bed and I'm here hanging out with my girls. One year ago I was about 3 weeks post hysterectomy after having a bleeding incident over Labor Day weekend (thank goodness for that). I'm just about to have the first anniversary of my first chemo (carbo and taxol) November 19, losing…
CT ok (I think), granuloma
I just had my 6 month CT, see below (finished chemo and radiation in 6/2018 for stage 3a). Although the fluid and spot he identified are described as unchanged, this is the first time they've been noted (4th CT altogether). He only mentions the last scan, which makes me wonder about the earlier ones. No growth in 6 months…
Checking in after quite a while
Hello, everyone - I've been gone from the forum for quite a while, taking a break from talking and thinking constantly about cancer. For those who have joined the forum since I was here last, I was diagnosed almost two years ago with Stage IV, Grade 1 endometrioid adenocarcinoma. I'll update my forum profile shortly to…
opiods after surgery?
I would like to hear from people about their experience with pain-killers after surgery. I had a bad experience with opiods after a hip replacement, so told the doctor at my pre-op that I wanted something else. She suggested Tramadol rather than the Oxy that is usually prescribed. Since this is surgery that affects the…
Asking once again for your advice
Just returned from my post op check. News was not good. A tumor was removed on Oct.17 and the vagina looked clear but today it has already begun to grow again. The doctor describes it as like a rind that is at the vaginal cuff. This UPSC is determined to keep returning. She gave me several options which I will think about…
3 years
I Just got back from my 3 year checkup. I had a vaginal exam and Doc said things look good. The best part about this is I only need exams every six months. I am not seeing rhe doctor I saw today for a year. It was nice to say that to him. After a while it gets to be a pain making and remembering these apointments. Its…
Just diagnosed
I am 76 years old (soon to be 77) and have just been diagnosed with high grade endometrial adenocarcinoma, serous subtype. I am still trying to understand all the terminology, but from what I can find out, it's not a common type of uterine cancer and is aggressive--meaning, I think, that it comes back. I have no symptoms…
Hope & Gratitude
I don't post anymore, but I'm still here. I read updates from time to time to see how everyone is doing and think of all of you ladies often. Today marks one year cancer free for me. During those dark times many of you reached out to me and helped me when I desperately needed someone who could "understand". My husband and…
derMaus is BACK
Just in case you did not realize that Bobbi is back, go to the end of cmb's derMaus update and see her message. I am dancing a jig and singing happy songs to see that post. So glad she is feeling good enough to send us that message. Thank you, Bobbi, we love you !!!!
Preliminary List for Tribute Page
As the first step in assembling the tribute page I've gone back to the beginning of the board and found the dear ladies that we know are no longer with us. I've also started to pull together the other information for their entry on the page, but first I'd like to ask if I've missed anyone. The notice about a death may have…
A little good news
Dear sisters, This morning I met my new gyn/onc to receive the results of last week's PET scan and have a physical exam. I like her. She is no-nonsense and answers the hard questions without flinching. Today she had good news. Both exams indicated NED. With a stage IVB grade 2 diagnosis, it feels like a miracle from our…
Tribute Page?
I am wondering with so many losses on this board this past year if there is anyway to set up a tribute type page to our site? I don't know how everyone feels about that, but I feel like it might be a way for all of to mourn, honor and remember the ladies who have contributed so much here about their journeys... I don't…
DeMaus Update
Dear sisters. I heard from our dear Bobbi. She is at home being cared for by dear friends and hospice. Unfortunately she is still suffering a lot of pain. So please pray for her pain to be relieved and her mind to be at peace. Also pray for those who are caring for her. I know you'll wrap your virtual arms around her.
Has anyone been in contact with Dermaus (Bobbi)?
I'm really worried about Bobbi. I see she hasn't been on the board since 9-23-19. She's always answered my emails before, but the last few....nothing. Hopefully, she's just resting and recuperating. Love, Eldri

Uterine/Endometrial Cancer

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