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Re: Good news regarding my tests
Hi Ladies: I just wanted to post some Good news. I had a second reoccurence of UPSC in the fall of 2016. I was originally diagnosed with stage 1 of UPSC in February of 2011. I only had an 18% chance of it reoccurring on me which is very very low odds of a reoccurrence with stage 1. My oncologist has been sending me for…
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Re: Good news regarding my tests
Hi Ladies: I just wanted to post some Good news. I had a second reoccurence of UPSC in the fall of 2016. I was originally diagnosed with stage 1 of UPSC in February of 2011. I only had an 18% chance of it reoccurring on me which is very very low odds of a reoccurrence with stage 1. My oncologist has been sending me for…
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Good news for me bad for a friend
Hello from Texas, it has been while since I posted. Still NED August will be 8 years from MMMT stage 3 grade 3 with no recurrance. So that is my Good news. Bad news for my friend Jon, just had surgery for a brain tumor, very agressive, radiation starts tomorrow along with chemo pills. Father of 4 amazing boys all still in…
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Cystectomy
hello all, does any one have info about radiation cystitis and cystectomy (bladder removal). Any and all information would be greatly appreciateD. Thank you in advance. Best wishes to all cancer survivors. Thank you in advance!
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Biopsy results
I have an appointment next Thursday to go over my results from my d&c I had done on the 23rd.but I’m getting nervous waiting.how long did you wait? Does that mean no news is good news
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Herceptin UPSC
Hi All, I was hoping those of you who have been on Herceptin would chime in and share your experience. With the support of many of you on this board, I pushed for genetic testing for my mother who has recurrent UPSC and is being treated at Kaiser. Her results came back Her2/neu positive and she has been approved for…
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LizaL: Response to your request for information on uterine carcinosarcoma (MMMT) specialists
LizaL I created this separate topic since your original request was buried in the old, long thread on MMMT. Those old threads can be hard to navigate when looking for new posts or seeking others' advice. You asked: Hi I was recently diagnosed with MMMT in vaginal and cervix. I received two chemo treatments but the cancer…
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Carboplatin only for chemo for 1a grade 3 undifferentiated cancer
Hi I was recently diagnosed with a State 1a and Grade 3 undifferentiated endometrial carcinoma. I had a total hysterectomy and will soon begin chemo. Because I already have some very mild neuropathy and balance/gait issues associated with cervical stenosis, my onc felt the risk of falls/gait problems wasn't worth the…
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Hysterscopy
After I had this procedure done which was to remove polyp and get biopsy.The doctor told me there wasn’t a polyp but other test showed polyp or endometrial mass. So I was confused. Has this happen to anyone else?
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How low did your CBC go with external radiation?
I finished 6 rounds of chemo March 1st. I finished external radiation (IMRT to the pelvis) June 6th. I'm still on Herceptin. Three weeks ago, my white count was low, at 4.0, my hemoglobin was low, at 10.2, and my platelets were in the low 80s. But today, three weeks later, everything was lower! My white count was 2.6,…
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Weight loss after hysterectomy
Did anybody experience weight loss after your hysterectomy? I had gained a lot of weight during the years and ended up at 157 lbs before the hysterectomy. I wanted to lose the weight and go back to what I used to be long ago (about 130 lbs) but somehow I couldn't do it. Then this cancer diagnosis became everything and had…
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Hysterectomy and colon cancer
Hi,I usually read posts on colon cancer forum,but maybe I can get some opinion or advice here. I have a rectosigmoid colon cancer stage3 (T4N2),low grade,which had been treated with chemo (Xeloda) and radiation this spring. Because CT scan (done in February,before starting the treatment) showed the tumor being invasive…
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Uterine lining
Is 11.2 mm considered thick for 45 year old premenopausal?
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D&C and hysterscopy
I am going to have my procedure done on Thursday and I just started my cycle today will they still do it?I hope I don’t have to reschedule I waited long time.
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How do you get help from the “site administrator”
Hello Ladies, Wishing you all the best. I have tried repeatedly to send a message via CSN e-mail and each time it “fails to go through”. The message I repeatedly receive is to contact the site administrator, yet there is no instruction on how to do that. Can anyone here help me? Thanks, Cathy
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3 years
I was in getting a mamagram on Friday. The technistion asked me about when was my last period. Accually she just wanted to know what decade. It made me think. It was 3 years ago just before mothers day that i was having my hysterectomy. I was in the hospital for mothers day. Sometimes 3 years ago seems so far a way and yet…
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Pten gene mutation article-really interesting
As you can see i've been reading the NYtimes this am and came across another really thought provoking article to share. https://www.nytimes.com/2019/05/17/health/gene-mutation-cancer.html?action=click&module=Well&pgtype=Homepage§ion=Health What caught my attention is how impossible it may be to eat enough of our…
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Cancer and Sleep Article
Read this in the NYTimes today and thought others might find it interesting. https://www.nytimes.com/2019/05/16/well/live/cancer-sleep-ambien.html?action=click&module=Discovery&pgtype=Homepage
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Very low blood platelets
I joined in April and posted as a "newbie" in mid-May. Diagnosed stage 1a, Grade 3 Serous in Nov 2018, hysterectomy Christmas eve, followed by 3 brachy radiation treatments, then scheduled for 6 treats of Carboplatin and Taxol. Completed 3 and had some neuropathy and louder tinnitus, small amout of hearing loss. Guess we…
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Update on my mother´s mmmt - Recurrence, spread and bad perspective
Dear ladies, I have to say that even if I don´t write in a while I keep on reading many of your posts and I´ve noticed that many of you keep active on writing just to support others. I can just say thank you all for that involvement and commttment with us. I cannot speak for others but for me it has been one of the major…
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clinical trial for me, I think
Thanks to MABound and LuLu who opened my mind to genomic testing and clinical trials. I am screening for a trial of an immunotherapy drug. Same as LuLu, I'm MSS but have some mutations that make this look promising as a treatment for me. Hoping to stabilize or even better. If all goes as expected with screening I begin the…
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Recurrence of Post menopausal bleeding
So beginning Thanksgiving weekend I had a several week bout of PMB. Saw my primary care doc right away. She sent me off after an exam for a transvaginal ultrasound and a referral for an ob/gun. Ultrasound showed thick uterine lining and enlarged uterus. Saw the ob/gyn doc in December and she suggested a hysteroscopy, polyp…
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Endometrial Cancer and Breast Cancer - Is there a link?
Hello Ladies... Happy Tuesday... I'm off to the gyno this afternoon to discuss symptoms I have been having for the last 6 weeks, only in my left breast, and now it is consistent on a daily basis. Burning, stabbing pain and sometimes itchy. My last mamo, was August 2018, and was negative, however I was encouraged to get a…
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Laparascopic hysterectomy NOT associated with increased risk of recurrence
Just in case anyone was worrying about this, I happened to speak with my gyn-onc surgeon today, and she told me that there definitely is NOT evidence of increased risk of recurrence of endometrial cancer with laparascopic hysterectomy. I had contacted her about sending her a cervical cancer patient, but I wanted to know…
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Shingles and increased CA-125
I am almost 2 years NED from surgery. I was Stage 1A, grade 3 with less than 50 mm myometrial invasion. Had 3 chemo and 6 brachytherapy. On 4/12 I started having symptoms f pain in my right pelvic area and feared recurrence. It turned out to be shingles. The rash was from lower back around to pelvic area and down inside…
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Can uterine biopsy detect cancer from 2 samples?
Possible DES Daughter (dr didn't have records to validate or not) with recent uterine symptoms. Annual is 6 weeks out. Last uterine biopsy was over five years ago. Can a biopsy of two pieces of uterine tissue be enough to find cancer cells?
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weight loss during and after pelvic external beam radiation
I've lost about ten pounds in 5 and a half weeks, with radiation treatment. I've had bad GI symptoms (diarrhea and no appetite) since about two weeks into radiation treatment, although a probiotic has helped. And I most definitely DO eat less - probably two meals a day, instead of three, and much less in the way of…
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Blood counts suppressed by pelvic external beam radiation tx?
I'm almost done with pelvic external beam IMRT, just one more treatment to go. Today I was in for Herceptin, and they did a CBC, Chem 20, and Ca-125 before my infusion. All that came back before I left was the CBC. I was very surprised to see that my platelet count, which had been low from chemo, but had always bounced…
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Thinking of you KatnHat
It has been almost two months from when we heard from you dear! I hope you are doing ok.
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Normal CA125 and recurrence
Hi all. Okay, so in September 2018 I got the lovely diagnosis UPSC stage 4. Did 3 taxol/carboplatine, it luckily worked, so surgery on dec 27th and finished of with 3 times chemo. Ended chemo on feb 27th Then on the day of my cat scan, march 20th. I got this excruciating pain in my abdomen . I went ahead with the scan, as…