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Concerned...
I am coming up on my 1 year since my TT for Hurthle Cell. I had a RAI in Dec 2011. I have located a mass about 2 inches or so above my incision site. I have been to all my cancer appointments and all blood work have come back in the areas that the levels should be. I am due to see my ENT on oct 8. And have a ultra sound of…
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FNA
Hey all, I am a recent survivor of breast cancer. Yay!That's over. That was REALLY hard. Anyway, I have a thyroid nodule that has grown and developed a couple of extra small ones since the last scan. My oncologist is sending me to a specialist to have it checked. She says he'll do a fine needle aspiration. I looked that…
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Will my RAI be screwed up if I don't move out of my house?
First the facts as I understand them from the research papers I have read. - one of the sine non qua of follicular Thyca is capsular/vascular invasion. - follicular cancer tends to met to the lungs and bones; and if it is going to met, it does so in the first 12 years. - fully encapsulated FVPTC with capsular/vascular…
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BRAF mutation
I know only enough about this mutation do know that it is something to be concerned about having. I have read a few research papers, but have not started obsessing about it. Is it something that is done without requesting it, or must you demand it, or must you already be diagnosed with metastisis? I think I read that it…
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Is cheese on the LID a mistake?
I posted the diet I was given yesterday, and it specifically lists cheese, butter, mayo as "ok" foods in one area, and says no dairy in another but allows 1 cup of milk per day. I think the cheese (with no limits - NIH states 1 oz of cheeze is allowable by some practices) is a mistake, but who am I to say anything to them?…
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I am new, but am barging ahead.
I have found a wealth of information on this site. I am so grateful and hope I will be able to support others here in the future as I gain more knowledge and experience. For now I am too new to be of much help. I am more afraid than anything, but am trying to moderate my fear by getting good info. Here is my personal info,…
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Question before low iodine diet
I am about to do my treatment of RAI. I am starting my low-iodine diet this monday. My question to anyone out there is I know salt has iodine, and sea salt is also a no no. But when you read the label on sea salt it states it has no iodine. Is there any thing you can use for a salt substitute. Also is there a milk…
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hair loss after 1 year scan?
Hi folks! Just had the 1 year scan in August, but I've been experiencing a lot of hair loss (did the thyrogen). Is this something attributed to the Thy Ca stuff, or not? I did lose a good bit of hair after surgery as the levels were getting stable, so I anticipated that. But this was not expected...?
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Hospital stay length?
I had my TT in December, but no cancer. However, my housekeeper (whom is like family) does have thyroid cancer. She is very poor and not eligible for any benefits. She had her TT today and they sent her home hours after the procedure! They did not verbally explain any of the complications she should look for as far as…
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Thyroglobuin raised from 1.1 to 1.6
Hello. My 57 year old mom was diagnosed with stage 3 papillary carcinoma thyroid cancer in January 2012. She had her total thyroidectomy and cancerous lymph nodes removed in February, followed by radioactive iodine treatment in March. Her WBS came back clean after treatment. A couple of blood tests after treatments showed…
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Question
I normal on the breast cancer board . They found a 4.2 nodule on my thyriod I had a FNA of it and it hurts. How long does it stop hurt or does it. I was told 24 hrs before the results now I got a 5 day wait .
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Lung metastasis
I just got my lung biopsy result today confirmed thyroid metastasis. I have multiple nodules on both my lungs being 10mm the biggest one according to my medical oncologist. She told me I have to go back to my Endo Dr. for further treatment. According to her(medical Oncology )I should see a Endo oncology for 2nd opinion if…
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Tg is 102 4 months post RAI
I just saw my ENT the other day and got my latest labs. My Tg is going down, but it is still 102 4 months after RAI. It started out around 1500. My TSH is 1.2 and not quite low enough as well. Doc said that if my Tg doesn't come down significantly he may want me to have another RAI. Is it normal or usual for ones…
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Tg is 102 4 months post RAI
I just saw my ENT the other day and got my latest labs. My Tg is going down, but it is still 102 4 months after RAI. It started out around 1500. My TSH is 1.2 and not quite low enough as well. Doc said that if my Tg doesn't come down significantly he may want me to have another RAI. Is it normal or usual for ones…
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Meddie?
HI- I am a 33 yr old mother of 2 young boys. I just had a biopsy that found my right 3.5 cm thyroid nodule is "suspicious for a neoplasm and concerning for medullary carcinoma". It further notes that numerous spindled cells and material concerning for amyloid are present. I have scheduled and appointment with an oncologist…
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Radioactive Iodine
Hi, Iam new to this site. I am due to have Radioactive Iodine treatment and have been told that I am to be kept in isolation from my family afterwards. Can I ask how people got home from the hospital after their treatment? And can I go outside afterwards too away from other people? What happens to my bed linen etc? Luv…