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change synthroid - not good
New here. I am a 16 year cancer survivor. My medicine has always come from one place and I have always taken it the same, Until. About a year ago I began to feel bad: aching bones, low energy, sinus infection, whole body inflamation. Found a lump, ended up having an hysterectomy - not cancerous. Spring came, I felt a…
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What's Next?
I went to the Dr. today and got pathology report stating I have papillary carcinoma follicular variant confined to thyroid. My actual dr wasnt there so I dont know what is next for me. During surgery I had JUST my isthmus removed-not my right or left lobe. Since on the report it says its confined does that mean I will not…
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Translation?
I go back to my dr. on Jan. 4th. I was looking at my pathology report online. Too many medical terms that apparently change meaning when followed or are following another term. I get that the two lymph nodes (which I don't recall them telling me they removed) are negative for cancer. But what does the rest of it mean? (A)…
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More surgery?? but my thyroglob. # is decreasing!
I am a 29 y/0 woman -- -diagonosed 6/2011 w thyroid cancer, had surgery 7/2011 -- removed thyroid and 21 nodes on both sides of neck -- all positive for papillary. -had RAI 9/2011 -It's now 6 months later and I found a lump in my neck -- had biopsy few weeks ago, at first glance cells just looked like a hematoma (that…
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TSH level
My Endo. just called and told me my TSH was 1.8. Had the thyrogen shots and body scan last week. He wants me to go for PET scan on friday. I know the ideal # is 0.5,, but is my number way off?
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Confused!
Hi Everyone, I am a bit confused about something..Hoping someone can help. I posted here a while back about having noduels on my thyroid but normal Levels and your responses we're both helpful and very appriciated. I had a biopsy on the largest of my three noduels. That came back "Follicular Neoplasm". The surgeon stated…
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HELP...
I am 7 days post RAI ablation. My lymph nodes under my chin are terribly sore and swollen. I feel horrible today. I have absolutely no energy and do not even feel like sitting up for a long period of time. Has anyone else had this happen to them? I have felt good up until now. I was always a little tired but this is…
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7 days post op and feeling great !
HI everyone, I had a total thyroid (Papillary Carcinoma) on 12/13. I am only 7 days post op and I have to say I am feeling pretty good. I am currently taking cytomel and not feeling any weird side effects that I hear others speak about. I just want to let others know that there are a lot of negative posts all over the…
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ENT or Endocrine Surgeon
I was recently diagnosed with papillary cancer a few months ago. My nodule is 1.3 cm and was told I should have a TT. I'd rather take the whole thing out than chance a second surgery. I'm trying to decide if I should proceed with an ENT who specializes in Head/Neck tumors/disease or go with an Endocrine Surgeon. Have meet…
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I'm back after TT
I had my TT on December 9th. My incision is just beautiful. MD Anderson is amazing. I went in thinking they were going to just take the right side (the one with the 3.3cm nodule) since it had caused some damage to my right vocal chord. The dr. didn't want to risk damage to the left if that nodule was fine. However, I woke…
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Thyrogen shortage???
I had my TT in August of 2010. My Dr. wanted to administer a thyrogen injection prior to my 1 year blood tests for recurrent cancer (TG tests). He has not been able to get the thyrogen hormone shots. Now the company is saying that it might not be available until end of January or February. My Dr. didn't want to wait any…
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Is it ok to take cytomel long term?
Hello~ I had a TT and I131 treatment a year ago. Had to go off synthroid in order to have the year out scan done. After it was finished, my doctor put me on cytomel (25 mg) and synthroid (125mg). After some time I felt really good (like I use to before I had a TT). My doctor refuses to refill the cytomel even though I told…
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Quick question...
I just had my tracer dose of RAI and I have had a severe headach since about 35 minuites afterwards it is going on 19 hours now and tylenol is not cutting it. Is this common? If so.. when I get the higher dose on friday will the headache be worse?
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i am just a little confused
I know on every label and product they have the sodium content, but never say iodine. My dr. said if i need to use any i can use kosher salt. Are the recipes on Thyca.org safe to make?
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After the thyrogen shots
That is Monday and Tuesday. On wednesday I have to get an ultrasound and then take the pill. For some reason, it says I have to fast from 2:30 am. Does that mean fasting until I get the body scan on Friday?
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side effects of the no iodine diet
I was supposed to have the injections in August 2011, but the supply was low and had to be re-scheduled. When i started the diet, after a week my blood pressure went very low. Called the Endo. dr and asked if I should still take my blood pressure medicine with my bp that low. He said yes. Now I am scheduled for the shots…
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If you are new to thyroid cancer, read this.
I found my nodule around 10/06/11 had first ultrasound 10/17/11 which lead to a fine needle aspiration on 11/11/11 which is the same day my doctor called with the cancer diagnosis. I tried to find the right people to help but no one would answer any questions. I found some real useful websites that I will post later. While…
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Pap thyca in a lymph node in the breast?
I am 18 months out from TT/RAI. I had + nodes that were removed in TT. Last January, (at my 6 months testing) they found a + node that they called a mutation. They were hoping to get it with my tracer dose of RAI at the one year mark. It didn't respond, so I have a consultation with a surgeon along with my next batch of…
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Need Advice Please
Hi. My name is John and I am a first time poster. I had my TT 3 years ago after having surgery to remove a benign tumor on one side that turned out to be ptc. Recently I had a ultrasound which showed small growth on one side. 7mm by 3mm. About two weeks after the scan I began feeling sick. I have been sick for five days…