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Thyroid Cancer

Archives for May 2011

Hurthle Cell Carcinoma Free
I am six years out and have had all my scans come back clear. I have only done the low iodine diet for my last scan. I wasn't strict about it until the week of my scan. The techs and Drs said that was fine. Everything looks good so now it will be interesting to see what dose of synthroid I end up on. They have been keeping…
Medical Card Walet
If you have not done this I would recommend it because it makes things so much easier in my wallet I have a card with my medications , surgeries , allergies and other medical important info SAMPLE ------ Medications 1) Synthroid 200 mgs/day 2) Cytomel 25 mgs/day 3) ... ... ... i am not going to list all my meds here but be…
Medical Recoard Madness
I was going to post this as a response to Uncaring Doctors, but I realized this is something we should all look at. I have been collecting my medical records as I am approaching Military retirement and I need to submit my medical record to the VA. Everyone needs to make sure you have a full copy of your record for yourself…
Thyroid Level
Would someone please explain exactly what the thyroid numbers represent? For example, T4 T3 etc etc. Shame on me. I am a thyroid cancer survivor, but do not understand my levels. My doctor has become a bit aloof so I thought I ask here. Thank you.
Uncaring Doctors
I had my scan done the week of the 9th of May, they scheduled me with a PA at my Dr. office to get the results back on the 18th. I had requested to see my Dr. as it was supposed to be the last time since I had moved to Florida and was transferring my info there. The first appointment was August 1st with the Dr. They…
Iodine resistant with lung mets -surgical lung biopsy
After my recent 5millicurie dose of I-131 and WBS we've concluded I am no longer avid for iodine. To confirm that the nodules in my lungs are thyroid cancer and not something else, I will be undergoing a surgical biopsy with a cardio-thoracic surgeon. Haven't met with that specialist as yet so don't know all that it…
Side Effects??
Hi I am 18 years old and on June of 2010 I was diagnosed with thyroid cancer. I had my surgery in November of 2010 and my radiation treatment in December of 2010. It was a very emotional process before and and after the surgery. I had many lymph nodes removed along with a full thyroid removal. All of the lymph nodes were…
TSH levels and anxiety
My 20 year old daughter has a TT 6 years ago. Her TSH levels have gone up and down constantly ever since. Her dosage is changing every few months. She has gone from 100 mcg up to 200 mcg and back down to 125 mcg now. Along with this, she has anxiety, palpitations, chest pain, etc. Her Endo keeps her below 0.1, usually…
Weight gain with appropriate levels?
I am getting pretty bummed, as my weight seems to slowly be creeping up - even though I exercise 6 days a week (cardio and weights) and eat very well. I am working my butt off with absolutely the reverse of what I've been trying to do! I asked my endo and she said that since my levels look good, I am on the right dose. I…
NEED ADVICE
Hi aim a two time cancer survivor colon & tonsil. A friend of my has had ct shows mass on neck beside thyroid. He has constant chills I told him from the start to see ENT he went to family doctor who told him he don't need ENT he going needle biopsy next week. What is the general consensus on this. All he lost a lot of…
Leg/muscle weakness on one side only
Part of the effects I'm having with my hypothyroidism is the feelings of fatigue in my body, especially my legs. It's like I have restless leg syndrom, but what I'm concerned about is that it's really bad on my right side. My right leg feels almost heavier than the other side and more "dead" than the other side. Part of me…
Update
Hello Y'all. I'm just checking as I have been off line for about two weeks.... Refresher: Diagnosed w/ Papillary 12/28/2010 TT 2/7/11 LID 3/21- 4/15 Thyrogen 4/11 & 4/12 RA 4/13 (75mci) WBS 4/21 I went to my ENDO on 5/9 to discuss the results of the RA/WBS. There is slight activity in the thyriod bed, however I was told by…
another surgery booked
Hi All. I have just booked my surgery for around July 1st...had a tt in 2009, but no RAI. I asked for it, but was told I didn't need it. Thy ca is really strong in my family...2 sisters and 2 nephews with it. Also many siblings with nodules. So I pushed and they did further testing, my last ultrasound in jan showed a…
Newbie
Hi, I am posting for a relative. He had his thyroid taken out 2 weeks ago, and follow up with dr. showed small amount of cancer in the thyroid. My question is should he have chemo or radiation even though the thyroid was removed? The doctor said NO to him, but of course with cancer you never know where it could have spead…
Unsettled after scan results
Ok - finished my RAI last week, had my scans, and went for results today. Here is what the doctor said: The scans showed no uptake in the neck etc. Which could be good - meaning the tumors are gone, but also could be very bad meaning the tumors/lymph nodes are resistant to uptake of Iodine. In which case he says there is…
Where to stay after RAI?
Where did you stay after RAI? I have two small children and can't really go home to them afterward, until I know that I am totally safe. As a psychologist, I don't want to have to push them away for hugs, etc when they come jump on me :( My doc suggested a hotel, but are there precautions for this? I would imagine so, but…
8 years later and enlarged lymph nodes
8 years ago I had a total thyroidectomy, a mass, and 6 lymph nodes removed. I was told they all had cancer. Did the I131 a year later. Have been scanned every year since up til 2 years ago. I just had a US and they found 3 lymph nodes 2cm in size in my neck were they removed the others 8 years ago. Has anyone had this…
frustrated
I traveled to SC, 320 miles to go to my endocrinologist for my five year scan. My previous scans have all been clear, but I was doing the atkins diet which I just found out may have given me false scan results. I did a low iodine diet against my Dr.'s orders to see if this one would be any different. My follow up…
kinda new to this
my husband is going thought his 2nd treatment and i have some questions. this time cause of the complaints of his belly they are asking him to do a 24hr urine test. they want him to save his urine for 24hr and bring it in for testing but they never said what they where testing for. and because of this they liberalized his…
weight loss
Has any one lost weight after starting the Cytomel without trying?
Lymphadema
Hi gang, I asked my ENT surgeon if some sort of massage therapy might be beneficial to post operative healing in my case. He recommended I see a lymphadema specialist. Now, he hadn't volunteered that I should do this, I brought up the massage suggestion myself. This makes me think that he doesn't think I'm having any…
When do I get to be "cancer free"?
Hello. I'm new here. Have been posting on the thyca board, but figured I'd expand a little. (You guys aren't enemies, are you? :) Just got back from my follow-up WBS, six days after my 75mc RAI dose. For some reason I was expecting that nothing would light up this time and they'd be able to say that the RAI had worked and…
Is there any possibility to come Papillary Carcinoma(Thyroid) back again ?
Hi, My wife had the thyroid cancer called papillairy carcinomas a two years back and she had a surgery for removing the thyroid gland now she is perfectly all right , but now we are planing for having a baby , we just need to know is there any complication for pregnancy after papillairy carcinoma ?? and also we are worried…
Thyrogen Yahooo!
Just had my second thyrogen shot today in prep for my RAI tomorrow. I feel great - a bit of a headache and a little tired but that's it. I went to the hospital for the shots, and went to work afterwards. Even the LID hasnt bothered me this time round - I think its because I still feel normal and relatively energetic. I'll…
RAI and loss of taste
I had my RAI pill on April 18th and I'm experiencing a loss of taste. What's funny is I think it hit me a week later and not so much during the week of my radiation. I can only barely taste something...everything is pretty much flavorless, even water tastes funny. Just wondering if anyone experienced the same thing and how…
Thyrogen Shortage
I have done the LID for a week and the hospital just called and cancelled my test next week due to a thyrogen shortage. They don't have any, can't get any and don't know when they will, has anyone else had this happen?
Update: PET/CT Scan Finally
I finally had a PET/CT scan two weeks ago. I've only asked for one since I was diagnosed a little over a year ago. Since my CT and i131 scan came back showing nothing, and my TG count never went down, my Dr finally ordered a PET/CT scan. I received the results last week and we have finally found the culprit. It wasn’t a…
TSH LEVELS HIgh
Hi -- I have been struggling for about the last year with high TSH levels. Right now they are 16. My doctor has me on 275 level of synthroid. I'm still so tired, sluggish, feel bloated, and just all around yucky. Anyone else having the same issues? thanks,

Thyroid Cancer

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