Thyroid Cancer
Discussion List
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papillary thryoid cancer
Hi, I just found out a few days ago that I had papillary thyroid cancer and I was and still very scared... I have read so much infomation on this type of cancer, down to survival rates, RAI, and if it comes back. I have a docs appt march 3 but i am very scared and just knowing the test that I will have to go thru and the…
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Having surgery Feb 25!!!
I'm having my surgery this thursday!!! Little freaked out but I'm very positive. I'm hoping that they won't have to remove the whole thyroid.... I just want to be back home asap and recover. :)
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Not a real cancer?
I went to a pulmonary doctor today for a cough I've had for years. I'd never met him before and he took a medical history of me. When I told him I had had papillary thyroid cancer and had my thyroid removed, he shrugged it off and said, "Oh that's not a real cancer!" Now mind you, I think I know where he was coming from in…
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Sometimes I feel like someone is sitting on my neck!
I know this may sound strange, I am almost 3 months post completion thyroidectomy (first surgery in Sept) and post RAI almost 6 weeks ago. I am basically feeling great aside from my deep voice and the effort that it takes to speak sometimes. Sometimes I just feel like someone of thing.......is sitting on my neck, sort of…
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Parotid Gland Swelling (Saliva Gland)
Hi everyone I am new to CSN. I was diagnose with Papillary Thyroid Cancer in May 2009 and in June 2009 had a TT. I was informed by my doctors that the cancer that I had was an agressive one so they had to give me a high dose (150) of the RAI 131. The RAI was done in August 2009 and I was in the hospital for 2 days. For the…
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Medullary Thyroid Cancer Survivor
Hi! Just wondering if there are any other Medullary Thyroid Cancer survivors out there. I was diagnosed at 23 and I am a 50 yr. old female. I had 2 thyroid surgeries and was sent to MD Anderson Cancer Hospital for a bilateral neck dissection (3rd operation) followed by 6 weeks radiation back in 1983. I had localized lympth…
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Full body scan after RAI
Hi all: I have papillary thyroid cancner and had my entire thyroid removed two months agao. On Feb18th I did the full body scan after RAI (the RAI took place on Feb 7th). The technician told me that the results were strange and to come back today (Feb 21st) - they did another scan and then a CT of my mid section. I was…
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Am I Contaminated?
How do I know if I am safe to be around others. I know they say 5 days, but how do you know. What do you clean everything you have touched with. Is it going to be safe for me to kiss my grandson? At hospital they told me 5 days for my pregnant daughter and grandson, Doctor's office said 7 and Thyca says 8. How do you know?…
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Just diagnosed with thyroid papillary carcinoma
I had a TT on 2-3-10 due to papillary carcinoma. Once I got over my initial feelings of shock and fear, I began trying to learn all I can to better understand the treatment process. My ENT surgeon prepared me for RAI (I've been off levothyroxine since surgery.)He referred me to an oncologist and I meet with him next week.…
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Ultra sound
I had been feeling some discomfort in my throat now for about a month off and on. Didn't know if my mind was playing jokes on me or what. So I called my endo, I was'nt suppose to go back till next month for my 6 month ck. They moved it up to Feb 17th, Had blood work done on Feb 16th. My Endo says he can't feel anything but…
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feeding tube and air tube
hi i was told about 3 weeks ago that a bit down the line that i'm going to need a feeding tube along with a breathing tube. my doctor did'nt give me anymore info than that. i was freaked out and did'nt think to ask any questions. i have had thyroid cancer for allmost two years now. march 7th of 2008 they opened my throt…
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preparing for RAI
Hello, I'm into my 3rd week off synthroid in preparation for RAI treatment next week. The hypo symptoms haven't been bad.... yet. Am only experiencing a little brain fog & energy levels a bit draggy at times. I'm scheduled for labs next Monday to check my TSH levels. If those levels have reached 30, I'll be having the one…
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how long off work after surgery and awaiting radioactive iodine trx????
Just wondering how long people take off work after TT and awaiting radioactive iodine treatment???????? I had two surgeries to remove my thyroid last one being Jan. 4 and now the docs are dragging my scans and treatment out while I am miserable being hypo. I have two young children who take all my energy. I'm not back to…
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salivary gland problems
I completed radio iodine treatment in September. I am now having what I think is delayed salivary gland problem. Pain in my jaw; I have had mouth sores and salty taste intermittently since the treatment. Has any had this and what did you do about it? Do I call my endo? Or my primary care and get a referral for an ear, nose…
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FNA biopsy New results, scared...
Hi everyone! I am so glad to be here!I am in need of some quick help though... I've had a "pain" in the neck, lol, which started back in June (or before I think) with a dull ache in the lower left thyroid area (if you were looking at me), that of course I ignored, until in October I had to be seen for a small fender bender…
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Are they any others on this forum living in Israel
HI I would just like to know if there are any others on this forum that are living in Israel. The medicine and methods used here are a bit different than in the states and I would really like to know about your experiences. I have papillary cancer - had surgery in which they removed the entire thyroid, then the low iodine…
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RAI treatment - just got home
HI all After surgery for papillary cancer two months ago (total), I also had to go through RAI. I got through being Hypothyroid fairly well although the last three days were not great. I was able to work in a very stressful job right until the end. I also did not gain weight due to the low iodine diet. First time in life…
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:0( could I REALLY have cancer???
These past 9 mos. I have been experiencing throat/neck pain. At first I thought it was from not drinking enough water with my night meds. I went through a few lidocaine cocktails at work to get me by, but they didn't work,lol. The pain has gotten to be quite bothersome lately, which prompted me to get it checked. My…
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Had papillary thyroid cancer, new symptoms point to lymphoma?
Can any of you tell me if you have had this happen to you? I have had invasive malignant melanoma, then papillary thyroid and lymphnode cancer; total thyroidectomy, Jan. 09; Now I have symptoms: since November, enlarged lymphnodes and then they were painful and even in my face, like salivary glands...that subsided and docs…
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What questions I should ask my doctor???
I was diagnosed with papillary carcinoma last week. I'm going to see the surgeon on Feb 17, what questions should I ask him?? Im very new to this, 25 years old.
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Salivatory glands damaged
I was diagnosed with THYROID cancer on March 0f 2009. Had my thyroid removed and did the RAI treatment. I am currently taking 250 mcg of Levothroid. About one month ago I noticed that my tongue was getting stuck to my gums of my mouth at night. Know it seems to happen more often. At night when I wake up I have to force my…
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Has anyone had a false positive on a FNA?
I'm only asking because before I had my FNA results back my endocrinologist told a med student in front of me that it had been a bad idea for the ENT doctor to do the FNA when my thyroid was diffusely inflamed on both sides - for some reason the endocrinologist couldn't palpate the nodule at that time but the ENT guy could…
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Is the low iodine diet necessary for radioactive iodine treatment?????????? One Doctor says no.....
I am having my radioactive iodine treatment next week and the nuclear medicine doctor tells me to not worry about a low iodine diet, and to stop reading things on the internet. This makes me nervous because anywhere I have read about this treatment says to follow the low iodine diet.... Maybe there are different types of…
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Still haven't scheduled my surgery - very freaked out
Hi. I got diagnosed with Hashimoto's at the end of September and put on 100mcg of Synthroid... found out that I had papillary carcinoma right afterward. I have a well-differentiated 3 x 2.5 x 2.3 cm tumor on the lower right lobe of my thyroid. The doctors want me to have a total thyroidectomy followed by radioactive iodine…
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What can I eat?
Can I have candy like starburst and skittles? They don't have red dye 3 in them, but are processed so I am unsure, but I sure do want them!!!