Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Sarcoma

Archives for April 2021

<40 yr old Leiomyomasarcoma Patients
This sucker is hard enough to come by. But most patients seem to be older by the time its found or diagnosed. I'm looking to hear from people who dont fall into the "research study norms" for LMS. I was 31 when my tumor was found. It measured 10cm on a chest CT. It wasn't until after surgery 4 months later that they…
To those who have or know alot about neurofibromatosis
Hello , My dad has neurofibromatosis 1 and also has been battling rectal cancer for the last three years since that time I have searched for info on neurofibromatosis and found some but not much . Now my dad has had a neurofibroma in his throat for the last 20 years . It causes no symptoms so it's never really been much of…

Sarcoma

Discussion List